National
Remembering Sean Sasser
AIDS activist spent final year in D.C.; memorial is Saturday
Sean Sasser working as a pastry chef at RIS, his last job. Sasser died Aug. 7. (Washington Blade file photo by Michael Key)
Sean Sasser memorial service
Saturday at 11 a.m.
National City Christian Church
5 Thomas Circle, N.W.
Michael Kaplan and his late partner Sean Sasser had a circuitous romantic life.
The two met in 1991 and worked together waiting tables at the same bar in Minneapolis. But both were dating other people at the time and several months later, Sasser moved to San Francisco, a move that would prove life altering. While there, he met, dated and eventually married Pedro Zamora, a romance memorably captured on MTV’s “Real World: San Francisco” during its third season in 1994.
Kaplan and Sasser met again in 1996 at a conference and dated for about two years, some of which was long distance. They were apart for several years but reconnected in 2006 and spent the last six years living together.
Sasser, a long-time AIDS activist and pastry chef, spent his final years in Washington with Kaplan. He died Aug. 7 of HIV-exacerbated mesothelioma, a rare lung cancer Kaplan says Sasser was likely exposed to while working with asbestos fixing up old houses in his native Detroit decades ago. Sasser, born Oct. 25, 1968, was 45.
A public memorial service is planned for Saturday at 11 a.m. at National City Christian Church at Thomas Circle in Washington. “Real World” cast members Judd Winick and Pam Ling will speak along with Phill Wilson, president and CEO of the Black AIDS Institute, and Douglas Brooks, chair of AIDS United’s Board of Trustees and a member of the President’s Advisory Council on HIV/AIDS.
Kaplan is the president and CEO of AIDS United. He spoke with the Blade at length this week about his relationship with Sasser.
After many years of working various jobs and each being in different cities at different times, Kaplan and Sasser moved to Washington last fall. Alarmed by a health scare in May, the two got married in June. Kaplan says it was a “long-term, committed serious relationship” in which “we both talked about and planned our futures together.” At one point in Oregon, the two were foster parents of a child named Alice who lived with them from the time she was 4 to 6.
Sasser had lived with HIV for 25 years; Kaplan for 20. Kaplan says Sasser “went quickly.”
“He probably lost 60 pounds in the last nine weeks of his life,” Kaplan says. “He was a real solid guy. On June 17, they confirmed that this thing in his lung was cancerous. By July, it was confirmed as stage four mesothelioma. He had one round of chemo, but it was just too aggressive. Doctors said he wasn’t strong enough for another round. And by Aug. 7 he was gone.”
Kaplan says he has “a strong network of friends” and is doing as well as can be expected.
“It’s a lot of change right now,” he says.
Sasser is survived by his mother, Pat Robinson Sasser, and a sister, Staci White. Both are expected to attend the service this weekend. Sasser’s father died a few years ago.
After Zamora’s death in November 1994 — just hours after the last episode of his season of “Real World” aired — Sasser, who’d been rejected by the Navy for an HIV-positive test, traveled widely speaking at colleges about HIV. He worked with Health Initiatives for Youth, GLAAD, Human Rights Campaign and the AIDS Alliance for Children Youth & Families. He was appointed by President Clinton to the Presidential Advisory Council on HIV/AIDS.
Kaplan says after about four years of AIDS advocacy work, Sasser was ready to return to his first love — cooking.
He says Sasser never mentioned to people he met that he’d been on “Real World,” but would confirm it if people recognized him and brought it up themselves. He had a few boxes of “Real World” mementos and a couple photos with President Clinton packed away. He took them with him each time he moved, but never unpacked them.
“He didn’t hide it, but he’d moved on,” Kaplan says. “In Portland especially, he’d really built up quite a place for himself as a pastry chef at a hotel there, The Nines. They had two restaurants and he oversaw a lot of banquets and that type of thing there. … He loved the precision of baking and training others how to do it.”
The topic of Zamora wasn’t taboo among them, Kaplan says, and Zamora’s name would come up occasionally. Kaplan recalls watching the 2008 biopic “Pedro” with Sasser and remembers him saying how “hard it is to see someone else portray you” (DaJuan Johnson played Sasser in the film).
Although Kaplan says Sasser would have been shocked that so many media outlets reported his death, he says Sasser “was quite aware of the visibility” his “Real World” appearances had afforded him.
“He definitely knew that it was a real landmark for this young, gay couple, two men of color with HIV, to be shown getting married,” Kaplan says. “For so many people, it was some of the first public faces of HIV they’d seen. They were the first face of many things as young, queer men of color. Sean totally understood the magnitude of that and never shunned it. He didn’t seek attention, but he knew that if having his face out there would make a difference, he was happy to do so.”
Kaplan says one thing that might surprise people about Sasser was his love of children. He mentored several kids affected by HIV in both Portland and Atlanta.
“If Sean had had his way, we would have had three kids and a house,” Kaplan says. “He loved music, he loved baking, he loved traveling and he loved children. He was an incredibly humble person and he was just all about living his life.”
Donations to the Sean Sasser Endowment Fund can be made at seansasserfund.aidsunited.org.
A Wider Bridge on Friday announced it will shut down at the end of the month.
The group that “mobilizes the LGBTQ community to fight antisemitism and support Israel and its LGBTQ community” in a letter to supporters said financial challenges prompted the decision.
“After 15 years of building bridges between LGBTQ communities in North America and Israel, A Wider Bridge has made the difficult decision to wind down operations as of Dec. 31, 2025,” it reads.
“This decision comes after challenging financial realities despite our best efforts to secure sustainable funding. We deeply appreciate our supporters and partners who made this work possible.”
Arthur Slepian founded A Wider Bridge in 2010.
The organization in 2016 organized a reception at the National LGBTQ Task Force’s Creating Change Conference in Chicago that was to have featured to Israeli activists. More than 200 people who protested against A Wider Bridge forced the event’s cancellation.
A Wider Bridge in 2024 urged the Capital Pride Alliance and other Pride organizers to ensure Jewish people can safely participate in their events in response to an increase in antisemitic attacks after Hamas militants attacked Israel on Oct. 7, 2023.
The Jewish Telegraphic Agency reported authorities in Vermont late last year charged Ethan Felson, who was A Wider Bridge’s then-executive director, with lewd and lascivious conduct after alleged sexual misconduct against a museum employee. Rabbi Denise Eger succeeded Felson as A Wider Bridge’s interim executive director.
A Wider Bridge in June honored U.S. Rep. Debbie Wasserman Schultz (D-Fla.) at its Pride event that took place at the Capital Jewish Museum in D.C. The event took place 15 days after a gunman killed two Israeli Embassy employees — Yaron Lischinsky and Sarah Milgrim — as they were leaving an event at the museum.
“Though we are winding down, this is not a time to back down. We recognize the deep importance of our mission and work amid attacks on Jewish people and LGBTQ people – and LGBTQ Jews at the intersection,” said A Wider Bridge in its letter. “Our board members remain committed to showing up in their individual capacities to represent queer Jews across diverse spaces — and we know our partners and supporters will continue to do the same.”
Editor’s note: Washington Blade International News Editor Michael K. Lavers traveled to Israel and Palestine with A Wider Bridge in 2016.
The White House
‘Trump Rx’ plan includes sharp cuts to HIV drug prices
President made announcement on Friday
President Donald Trump met with leaders from some of the world’s largest pharmaceutical companies at the White House on Friday to announce his new “Trump Rx” plan and outline efforts to reduce medication costs for Americans.
During the roughly 47-minute meeting in the Roosevelt Room, Trump detailed his administration’s efforts to cut prescription drug prices and make medications more affordable for U.S. patients.
“Starting next year, American drug prices will come down fast, furious, and will soon be among the lowest in the developed world,” Trump said during the meeting. “For decades, Americans have been forced to pay the highest prices in the world for prescription drugs by far … We will get the lowest price of anyone in the world.”
Trump signed an executive order in May directing his administration “to do everything in its power to slash prescription drug prices for Americans while getting other countries to pay more.”
“This represents the greatest victory for patient affordability in the history of American health care, by far, and every single American will benefit,” he added.
Several pharmaceutical executives stood behind the president during the announcement, including Sanofi CEO Paul Hudson, Novartis CEO Vas Narasimhan, Genentech CEO Ashley Magargee, Boehringer Ingelheim (USA) CEO Jean-Michel Boers, Gilead Sciences CEO Dan O’Day, Bristol Myers Squibb General Counsel Cari Gallman, GSK CEO Emma Walmsley, Merck CEO Robert Davis, and Amgen Executive Vice President Peter Griffith.
Also in attendance were Health and Human Services Secretary Robert F. Kennedy Jr., Commerce Secretary Howard Lutnick, Centers for Medicare and Medicaid Services Administrator Mehmet Oz, and Food and Drug Administration Commissioner Marty Makary.
Under the Trump Rx plan, the administration outlined a series of proposed drug price changes across multiple companies and therapeutic areas. Among them were reductions for Amgen’s cholesterol-lowering drug repatha from $573 to $239; Bristol Myers Squibb’s HIV medication reyataz from $1,449 to $217; Boehringer Ingelheim’s type 2 diabetes medication jentadueto from $525 to $55; Genentech’s flu medication xofluza from $168 to $50; and Gilead Sciences’ hepatitis C medication epclusa from $24,920 to $2,425.
Additional reductions included several GSK inhalers — such as the asthma inhaler advair diskus 500/50, from $265 to $89 — Merck’s diabetes medication januvia from $330 to $100, Novartis’ multiple sclerosis medication mayzent from $9,987 to $1,137, and Sanofi’s blood thinner plavix from $756 to $16. Sanofi insulin products would also be capped at $35 per month’s supply.
These prices, however, would only be available to patients who purchase medications directly through TrumpRx. According to the program’s website, TrumpRx “connects patients directly with the best prices, increasing transparency, and cutting out costly third-party markups.”
Kennedy spoke after Trump, thanking the president for efforts to lower pharmaceutical costs in the U.S., where evidence has shown that drug prices — including both brand-name and generic medications — are nearly 2.78 times higher than prices in comparable countries. According to the Pharmaceutical Research and Manufacturers of America, roughly half of every dollar spent on brand-name drugs goes to entities that play no role in their research, development, or manufacturing.
“This is affordability in action,” Kennedy said. “We are reversing that trend and making sure that Americans can afford to get the life-saving solutions.”
Gilead CEO Dan O’Day also spoke about how the restructuring of drug costs under TrumpRx, combined with emerging technologies, could help reduce HIV transmission — a virus that, if untreated, can progress to AIDS. The LGBTQ community remains disproportionately affected by HIV.
“Thank you, Mr. President — you and the administration,” O’Day said. “I think this objective of achieving the commitment to affordability and future innovation is extraordinary … We just recently launched a new medicine that’s only given twice a year to prevent HIV, and we’re working with Secretary Kennedy and his entire team, as well as the State Department, as a part of your strategy to support ending the epidemic during your term.
“I’ve never been more optimistic about the innovation that exists across these companies and the impact this could have on America’s health and economy,” he added.
Trump interjected, asking, “And that’s working well with HIV?”
“Yes,” O’Day replied.
“It’s a big event,” Trump said.
“It literally prevents HIV almost 100 percent given twice a year,” O’Day responded.
A similar anti-HIV medication is currently prescribed more than injectable form mentioned by O’Day. PrEP, is a medication regimen proven to significantly reduce HIV infection rates for people at high risk. Without insurance, brand-name Truvada can cost roughly $2,000 per month, while a generic version costs about $60 per month.
Even when medication prices are reduced, PrEP access carries additional costs, including clinic and laboratory fees, office visits, required HIV and sexually transmitted infection testing, adherence services and counseling, and outreach to potentially eligible patients and providers.
According to a 2022 study, the annual total cost per person for PrEP — including medication and required clinical and laboratory monitoring — is approximately $12,000 to $13,000 per year.
The TrumpRx federal platform website is now live at TrumpRx.gov, but the program is not slated to begin offering reduced drug prices until January.
The White House
EXCLUSIVE: Democracy Forward files FOIA lawsuit after HHS deadnames Rachel Levine
Trans former assistant health secretary’s name changed on official portrait
Democracy Forward, a national legal organization that works to advance democracy and social progress through litigation, policy and public education, and regulatory engagement, filed a lawsuit Friday in federal court seeking to compel the U.S. Department of Health and Human Services to release information related to the alteration of former Assistant Secretary for Health Adm. Rachel Levine’s official portrait caption.
The lawsuit comes in response to the slow pace of HHS’s handling of multiple Freedom of Information Act requests — requests that federal law requires agencies to respond to within 20 working days. While responses can take longer due to backlogs, high request volumes, or the need for extensive searches or consultations, Democracy Forward says HHS has failed to provide any substantive response.
Democracy Forward’s four unanswered FOIA requests, and the subsequent lawsuit against HHS, come days after someone in the Trump-Vance administration changed Levine’s official portrait in the Hubert H. Humphrey Building to display her deadname — the name she used before transitioning and has not used since 2011.
According to Democracy Forward, HHS “refused to release any records related to its morally wrong and offensive effort to alter former Assistant Secretary for Health Admiral Rachel Levine’s official portrait caption.” Levine was the highest-ranking openly transgender government official in U.S. history and served as assistant secretary for health and as an admiral in the U.S. Public Health Service Commissioned Corps from 2021 to 2025.
Democracy Forward President Skye Perryman spoke about the need to hold the Trump-Vance administration accountable for every official action, especially those that harm some of the most targeted Americans, including trans people.
“The question every American should be asking remains: what is the Trump-Vance administration hiding? For an administration that touts its anti-transgender animus and behavior so publicly, its stonewalling and silence when it comes to the people’s right to see public records about who was behind this decision is deafening,” Perryman said.
“The government’s obligation of transparency doesn’t disappear because the information sought relates to a trailblazing former federal official who is transgender. It’s not complicated — the public is entitled to know who is making decisions — especially decisions that seek to alter facts and reality, erase the identity of a person, and affect the nation’s commitment to civil rights and human dignity.”
“HHS’s refusal to respond to these lawful requests raises more serious concerns about transparency and accountability,” Perryman added. “The public has every right to demand answers — to know who is behind this hateful act — and we are going to court to get them.”
The lawsuit also raises questions about whether the alteration violated federal accuracy and privacy requirements governing Levine’s name, and whether the agency improperly classified the change as an “excepted activity” during a lapse in appropriations. By failing to make any determination or produce any records, Democracy Forward argues, HHS has violated its obligations under federal law.
The case, Democracy Forward Foundation v. U.S. Department of Health and Human Services, was filed in the U.S. District Court for the District of Columbia. The legal team includes Anisha Hindocha, Daniel McGrath, and Robin Thurston.
The Washington Blade reached out to HHS, but has not received any comment.
The lawsuit and four FOIA requests are below:
‘Dogs of Venice’ looks at love lost and rediscovered
A Wider Bridge to close
‘Trump Rx’ plan includes sharp cuts to HIV drug prices
Rehoboth’s Blue Moon is for sale but owners aim to keep it in gay-friendly hands
Comings & Goings
LGBTQ Democrats say they’re ready to fight to win in 2026
Brian Footer suspends campaign for Ward 1 D.C. Council seat
Lighting candles in a time of exhaustion
Why queer spaces often fail South Asian women
