Local
‘I’m not going to cry about this’
Friends rally for Va. couple saving for prosthesis after cancer claims woman’s leg
Zunaira Khalid (left) and her partner Ebony Bates in their basement apartment in Khalid's parents' house in Chantilly, Va. The couple says they're lucky most of the medical expenses from the June cancer surgery that claimed Khalid's leg were covered by insurance but only a small percentage will be covered for the prosthetic leg Khalid needs. (Washington Blade photo by Joey DiGuglielmo)
Zunaira Khalid benefit
Thursday at Policy
6:30 to 10 p.m.
Go here to make a donation.
Things were going pretty well for Zunaira Khalid and Ebony Bates in December. They’d had rough spots large and small throughout their nine-year relationship such as years of separation while Bates went to college in her native Pennsylvania, some occasional minor clashes that are inevitable in cross-cultural romances and all the usual pings and pangs that come and go as young people figure out what they want and don’t want from life.
But by the end of last year Khalid, a 35-year-old aspiring doctor and native Pakistani Muslim who’s been in the U.S. since age 12, and Bates, a 29-year-old Washington, Pa., native, realized their lives were beginning to jell. In October Bates landed what she calls her “dream job” with a government agency. She declines to say which because she says it’s not terribly gay friendly.
And after years of dabbling in various fields, Khalid, who’d drifted after finishing medical school questioning if she really wanted to be a doctor, decided medicine was her calling and she was in the uphill battle of getting back into the rigors of a residency program. Since 2005, the couple has lived in the basement of Khalid’s parents’ sprawling Chantilly, Va., home.
The two had been without health insurance for years. Bates was in school most of the ’00s doing undergrad and graduate work and Khalid had been unemployed for years studying to pass an exam to get back into medicine. The two had met in 2001 working together at Dulles Airport.
By December, Bates had coverage through her job. It took some arm twisting, but she convinced Khalid they needed to buy her some too, just in case. They found a decent plan for a little more than $100 per month through Aetna Health Insurance, an extraordinarily fortuitous decision on Bates’ part that saved the couple from financial ruin when Khalid got sick in February with an aggressive form of cancer that resulted in her leg having to be amputated in June.
“We were to the point where we’d been committed for several years,” Khalid says. “It’s almost impossible to have any sort of relationship recognition in Virginia, so that was never really discussed, but after D.C. passed marriage in December and then Ebony got a job she was like, ‘Look, we have a little money now, let’s get you a health plan. I didn’t think it was big deal. I don’t really get the flu or anything acute very often. I was like, ‘I’m fine, I don’t need it,’ but she was really adamant.”
To Khalid, she and Bates both burdened with considerable student loan debt, it seemed like one more expense. But she acquiesced and had an exam in December and got a clean bill of health.
The first signs of the cancer came innocuously in February. Khalid noticed her jeans felt tight around her left leg and took a bit of effort to get on. When it persisted, she had it looked at and was diagnosed with a pulled muscle. Just give it time to heal on its own, doctors told her. When it didn’t, she returned and an ultrasound found a cyst growing behind her knee. A biopsy revealed the mass was an aggressive sarcoma that was spreading fast. The situation quickly grew dire. It had grown from the size of a golf ball when an initial ultrasound was done to the size of a baseball a month later when an MRI was performed on Feb. 27.
Doctors told Khalid and Bates they were going to do everything they could to save her life and save her leg. It quickly became clear how potentially serious the diagnosis was.
“I remember when they said they were going to try to save her life first but we can’t guarantee that, that was really jarring for me,” Bates says. “Here they were talking about the possibility of death and if we were lucky she would make it through. It was just a lot of bad news at once.”
Bates, under pressure at her new job and in a probationary period where she knew she had to perform at her best, decided she needed to come out to her boss and explain the situation in case the stress started showing up in her performance. She was only able to miss a few days of work throughout Khalid’s illness, a point that irks the couple who marvel at the provisions that would be available if they were a married, opposite-sex couple.
But the couple opted to focus on the positive — most glaringly that Bates had the foresight to insist on an insurance plan for Khalid.
The first treatment step was two debilitating rounds of chemo, which destroyed Khalid’s immune system and put her in the hospital at Washington Hospital Center in D.C.’s Pleasant Plains neighborhood for weeks at a time. The chemo took such a toll — Khalid’s doctor told her he’d never seen anybody react so aversely to it — that a third round would have been too much for her body to handle. It was also unsuccessful at shrinking the mass to a degree doctors felt was acceptable.
There were essentially three problems with the growth — it had grown around a nerve meaning removing the mass would likely have resulted in Khalid having no control of her leg. Secondly it was so close to the bone, operating would be difficult and would have required, thirdly, a new route for blood supply to the leg, another iffy proposition considering the mass’s location. Amputation became the only safe option.
“I just realized very quickly that was the best decision I could make,” Khalid says. “I’d kind of prepared myself for it emotionally when they first told me it was a possibility. That first weekend, Eb had to be in Pennsylvania for work and I decided to go with her. It was the best thing. She was busy with work stuff but I just shopped, hung out at the hotel and really had time to make my peace with it.”
Bates soldiered on at work and says a strong relationship with Khalid’s parents — she says they treat her as if she, too, were their daughter — helped tremendously.
“Anytime I thought about how hard it was to juggle this with work, I just realized how much easier I had it compared to what she was going through,” Bates says.
Khalid is doing well now. She gets around on a pair of crutches cushioned with zebra-patterned covers. She was up and walking with a walker the day after her surgery. And she can still drive since she only needs to use her right leg.
The pain, though, has been excruciating at times. Muscle in her leg was essentially “wrapped” around hollow bone resulting in cookie-cutter like pressure from the bone’s edges. Khalid also experiences “phantom” pain where it feels as if her leg is still there, causing both pain and itching sensations.
“Basically the nerves have been cut but up here,” she says, pointing to her head, “it thinks everything is normal. So the nerves are freaking out and they don’t know what happened.”
She’s also stumbled several times as she attempts to get around.
The couple’s biggest challenge now is affording a massively expensive prosthetic leg for Khalid. The Aetna plan they chose has been great at kicking in thousands of dollars toward her chemo and surgery expenses but comes up far short on the cost of the prosthesis. The couple says it will cover only about $2,000 of the estimated $40,000 to $45,000 cost.
Friends are rallying. D.C. lesbian event promoter Ebone Bell has set up a website seeking contributions. Another lesbian friend, Darcy O’Callaghan, is planning an event Thursday at Policy for the couple. Donations are being accepted here.
Khalid says she’s keeping the stiff upper lip she’s maintained all along.
“I just decided up front I’m not going to cry about this,” she says. “I refuse to cry and give into this. If I have cried, it hasn’t been because of this stupid cancer, but because I’ve been touched by the things people have done for me.”
District of Columbia
Bowser budget proposal calls for $5.25 million for 2025 World Pride
AIDS office among agencies facing cuts due to revenue shortfall
D.C. Mayor Muriel Bowser’s proposed fiscal year 2025 budget includes a request for $5.25 million in funding to support the June 2025 World Pride celebration, which D.C. will host, and which is expected to bring three million or more visitors to the city.
The mayor’s proposed budget, which she presented to the D.C. Council for approval earlier this month, also calls for a 7.6 percent increase in funding for the Mayor’s Office of LGBTQ Affairs, which amounts to an increase of $132,000 and would bring the office’s total funding to $1.7 million. The office, among other things, provides grants to local organizations that provide services to the LGBTQ community.
Among the other LGBTQ-related funding requests in the mayor’s proposed budget is a call to continue the annual funding of $600,000 to provide workforce development services for transgender and gender non-conforming city residents “experiencing homelessness and housing instability.” The budget proposal also calls for a separate allocation of $600,000 in new funding to support a new Advanced Technical Center at the Whitman-Walker Health’s Max Robinson Center in Ward 8.
Among the city agencies facing funding cuts under the mayor’s proposed budget is the HIV/AIDS, Hepatitis, Sexually Transmitted Disease, and Tuberculosis Administration, known as HAHSTA, which is an arm of the D.C. Department of Health. LGBTQ and AIDS activists have said HAHSTA plays an important role in the city’s HIV prevention and support services. Observers familiar with the agency have said it recently lost federal funding, which the city would have to decide whether to replace.
“We weren’t able to cover the loss of federal funds for HAHSTA with local funds,” Japer Bowles, director of the Mayor’s Office of LGBTQ Affairs, told the Washington Blade. “But we are working with partners to identify resources to fill those funding gaps,” Bowles said.
The total proposed budget of $21 billion that Bowser submitted to the D.C. Council includes about $500 million in proposed cuts in various city programs that the mayor said was needed to offset a projected $700 million loss in revenue due, among other things, to an end in pandemic era federal funding and commercial office vacancies also brought about by the post pandemic commercial property and office changes.
Bowser’s budget proposal also includes some tax increases limited to sales and business-related taxes, including an additional fee on hotel bookings to offset the expected revenue losses. The mayor said she chose not to propose an increase in income tax or property taxes.
Earlier this year, the D.C. LGBTQ+ Budget Coalition, which consists of several local LGBTQ advocacy organizations, submitted its own fiscal year 2025 budget proposal to both Bowser and the D.C. Council. In a 14-page letter the coalition outlined in detail a wide range of funding proposals, including housing support for LGBTQ youth and LGBTQ seniors; support for LGBTQ youth homeless services; workforce and employment services for transgender and gender non-conforming residents; and harm reduction centers to address the rise in drug overdose deaths.
Another one of the coalition’s proposals is $1.5 million in city funding for the completion of the D.C. Center for the LGBTQ Community’s new building, a former warehouse building in the city’s Shaw neighborhood that is undergoing a build out and renovation to accommodate the LGBTQ Center’s plans to move in later this year. The coalition’s budget proposal also calls for an additional $300,000 in “recurring” city funding for the LGBTQ Center in subsequent years “to support ongoing operational costs and programmatic initiatives.”
Bowles noted that Bowser authorized and approved a $1 million grant for the LGBTQ Center’s new building last year but was unable to provide additional funding requested by the budget coalition for the LGBTQ Center for fiscal year 2025.
“We’re still in this with them,” Bowles said. “We’re still looking and working with them to identify funding.”
The total amount of funding that the LGBTQ+ Budget Coalition listed in its letter to the mayor and Council associated with its requests for specific LGBTQ programs comes to $43.1 million.
Heidi Ellis, who serves as coordinator of the coalition, said the coalition succeeded in getting some of its proposals included in the mayor’s budget but couldn’t immediately provide specific amounts.
“There are a couple of areas I would argue we had wins,” Ellis told the Blade. “We were able to maintain funding across different housing services, specifically around youth services that affect folks like SMYAL and Wanda Alston.” She was referring to the LGBTQ youth services group SMYAL and the LGBTQ organization Wanda Alston Foundation, which provides housing for homeless LGBTQ youth.
“We were also able to secure funding for the transgender, gender non-conforming workforce program,” she said. “We also had funding for migrant services that we’ve been advocating for and some wins on language access,” said Ellis, referring to programs assisting LGBTQ people and others who are immigrants and aren’t fluent in speaking English.
Ellis said that although the coalition’s letter sent to the mayor and Council had funding proposals that totaled $43.1 million, she said the coalition used those numbers as examples for programs and policies that it believes would be highly beneficial to those in the LGBTQ community in need.
“I would say to distill it down to just we ask for $43 million or whatever, that’s not an accurate picture of what we’re asking for,” she said. “We’re asking for major investments around a few areas – housing, healthcare, language access. And for capital investments to make sure the D.C. Center can open,” she said. “It’s not like a narrative about the dollar amounts. It’s more like where we’re trying to go.”
The Blade couldn’t’ immediately determine how much of the coalition’s funding proposals are included in the Bowser budget. The mayor’s press secretary, Daniel Gleick, told the Blade in an email that those funding levels may not have been determined by city agencies.
“As for specific funding levels for programs that may impact the LGBTQ community, such as individual health programs through the Department of Health, it is too soon in the budget process to determine potential adjustments on individual programs run though city agencies,” Gleick said.
But Bowles said several of the programs funded in the mayor’s budget proposal that are not LGBTQ specific will be supportive of LGBTQ programs. Among them, he said, is the budget’s proposal for an increase of $350,000 in funding for senior villages operated by local nonprofit organizations that help support seniors. Asked if that type of program could help LGBTQ seniors, Bowles said, “Absolutely – that’s definitely a vehicle for LGBTQ senior services.”
He said among the programs the increased funding for the mayor’s LGBTQ Affairs office will support is its ongoing cultural competency training for D.C. government employees. He said he and other office staff members conduct the trainings about LGBTQ-related issues at city departments and agencies.
Bowser herself suggested during an April 19 press conference that local businesses, including LGBTQ businesses and organizations, could benefit from a newly launched city “Pop-Up Permit Program” that greatly shortens the time it takes to open a business in vacant storefront buildings in the downtown area.
Bowser and Nina Albert, D.C. Deputy Mayor for Planning and Economic Development, suggested the new expedited city program for approving permits to open shops and small businesses in vacant storefront spaces could come into play next year when D.C. hosts World Pride, one of the word’s largest LGBTQ events.
“While we know that all special events are important, there is an especially big one coming to Washington, D.C. next year,” Bowser said at the press conference. “And to that point, we proposed a $5.25 million investment to support World Pride 2025,” she said, adding, “It’s going to be pretty great. And so, we’re already thinking about how we can include D.C. entrepreneurs, how we’re going to include artists, how we’re going to celebrate across all eight wards of our city as well,” she said.
Among those attending the press conference were officials of D.C.’s Capital Pride Alliance, which will play a lead role in organizing World Pride 2025 events.
Maryland
Health care for Marylanders with HIV is facing huge cuts this summer
Providers poised to lose three-quarters of funding
BY MEREDITH COHN | By the end of June, health care providers in Maryland will lose nearly three-quarters of the funding they use to find and treat thousands of people with HIV.
Advocates and providers say they had been warned there would be less money by the Maryland Department of Health, but were stunned at the size of the drop — from about $17.9 million this fiscal year to $5.3 million the next. The deep cuts are less than three months away.
The rest of this article can be read on the Baltimore Banner’s website.
District of Columbia
Taste of Point returns at critical time for queer students
BIPOC scholar to speak at Room & Board event on May 2
The Point Foundation will kick off May with its annual Taste of Point DC event. The event will be hosted at Room & Board on 14th Street and feature a silent auction, food tastings, a speech from a scholar, and more.
Point’s chief of staff, Kevin Wright, said that at Taste of Point, the scholars are the star of the show.
“People never come to an event to hear Point staff speak, they come to hear from the people most impacted by the program,” he said. “At its core Taste of Point is designed to center and highlight our scholars’ voices and experiences.”
This year, a Point BIPOC Scholar, Katherine Guerrero Rivera will speak at the event.
“It is a great opportunity to highlight the scholars out there on the front lines making impacts in almost every sector and job field,” Wright said.
Wright pointed out that this year especially is a pivotal time for LGBTQ students.
“In 2023, there were 20 states that passed anti-LGBTQ legislation,” he said. “By this point in [2024] we already have more.”
Wright said the impacts of those legislative attacks are far reaching and that Point is continuously monitoring the impact they have on students on the ground.
Last month, The Washington Post reported that states with anti-LGBTQ laws in place saw school hate crimes quadruple. This report came a month after a non-binary student, Nex Bennedict, died after being attacked at school.
“So, we see this as a critical moment to really step up and help students who are facing these challenges on their campus,” Wright said. “Our mission is to continue to empower our scholars to achieve their full academic and leadership potential.”
This year Point awarded nearly 600 LGBTQ students with scholarships. These include the flagship scholarship, community college scholarship and the BIPOC scholarship. When the foundation started in 2002, there were only eight scholarships awarded.
Dr. Harjant Gill is one of those scholars who said the scholarship was pivotal for him. Gill said he spent his undergraduate years creating films and doing activism for the LGBTQ community.
As a result, his academic record wasn’t stellar and although he was admitted into American University’s graduate program he had no clue how he would fund it.
Upon arrival to American he was told to apply for a Point scholarship and the rest was history.
“It ended up being the one thing that kept me going otherwise I would have dropped out,” he said. “Point was incredibly instrumental in my journey to becoming an academic and a professor.”
More than a decade later, Gill serves on the host committee for Taste of Point and is a mentor to young Point scholars. He said that he donates money yearly to Point and that when he is asked what he wants for a gift he will often tell his friends to donate too.
To attend the event on Wednesday, May 2, purchase tickets at the Point website. If you can’t attend this year’s Taste of Point DC event but would like to get involved, you can also donate online.
Malcolm Kenyatta could become the first LGBTQ statewide elected official in Pa.
Bowser budget proposal calls for $5.25 million for 2025 World Pride
White House debuts action plan targeting pollutants in drinking water
Health care for Marylanders with HIV is facing huge cuts this summer
Maine governor signs transgender, abortion sanctuary bill into law
Daniel Zamudio murderer’s parole request denied
State Department releases annual human rights report
‘Amm(i)gone’ explores family, queerness, and faith
Joe Vogel campaign holds ‘Big Gay Canvass Kickoff’
