Connect with us

Opinions

Igniting a disability rights revolution

‘Crip Camp’ tells story of pioneering protesters who won new rights

Published

on

Kathi Wolfe, gay news, Washington Blade

Kathi Wolfe (Washington Blade photo by Michael Key)

Recently, my cousin Marsha asked me if I wished I didn’t have a disability. I’ve been low vision since birth. Almost daily, a family member, friend, or stranger tells me my life must suck because I’m blind. I love Marsha. But, “I don’t want to be non-disabled,” I told her, “my disability is part of who I am. It’s part of what makes me Kathi!”

“I like being who I am,” I added. Why am I proud to be myself in a culture that often stigmatizes me because of my disability and sexuality? The roots of my pride go back to a group of teens who listened to rock music, smoked pot and made out at Camp Jened, a summer camp for disabled teenagers in the Catskills in the 1960s and 1970s.

The story of those campers and how they moved on from their “mini-Woodstock” to change the world is told in the Oscar-nominated documentary “Crip Camp: A Disability Revolution.” The documentary, produced by Barack and Michelle Obama, is directed by Nicole Newnham and Jim LeBrecht, a former Camp Jened camper. The doc, featuring rock music, raging sexuality and disability pride will give you, non-disabled, disabled, hetero or queer, a contact high.

You’ll learn from “Crip Camp” about how more than 100 disabled protesters, hetero and queer, led by Camp Jened alums, took over a San Francisco federal building for nearly a month in 1977. The sit-in, believed to be the longest non-violent takeover of a federal building, ignited a disability rights revolution.

Thankfully, the documentary doesn’t lecture us. The doc does what great documentaries do: It tells a riveting story.

I spent a week at camp when I was nine. I’m sure the camp staff meant well, but I was the only disabled camper there and ableism prevailed. My counselor cut my meat for me at dinner (though I had no problem with feeding myself). I was given a “special” award for my “courage.” Though I screamed when I found a tick in my hair.

I would have loved to have been at Camp Jened. There, the campers were treated as three-dimensional human beings. They weren’t “special.” At school during the year, they were often segregated in special education classes and shunned by the non-disabled kids. “I didn’t date in high school,” Judith (“Judy”) Heumann, a Camp Jened alum and author with Kristen Joiner of “Being Heumann: An Unrepentant Memoir of a Disability Rights Activist,” says in “Crip Camp.”

But, at Camp Jened, there were make-out sessions behind the bunks, she adds.

Lionel Je’Woodyard was a counselor at Jened. The disabled teens at Jened faced some of the same discrimination that he encountered as a Black man, Je’Woodyard says.

Years later, the seeds of self-respect planted in the teens at Jened bore fruit.

Heumann, who has polio and uses a wheelchair, is a founder of the disability rights movement. In April 1977, she and (the late) disabled, lesbian activist Kitty Cone led a month-long disability rights protest. The takeover was supported by the Black Panthers and the LGBTQ community.

Crip Camp, through archival footage and interviews with Heumann, Cone, queer disability activist and writer Corbett O’Toole and others, conveys the significance of this historic sit-in.  Protests were held in federal buildings in other cities, including, Washington. D.C.  as  result of the protests, on April 28, 1977, the regulations implementing Section 504 of the Rehabilitation Act of 1973 were signed.

“Section 504” says if you receive federal funds, you can’t discriminate against people because they’re disabled. For example, an employer receiving federal funds can’t deny you employment because you’re disabled. This was manna from heaven for we who’d been excluded. Section 504 was a precursor to the Americans with Disabilities Act.

The 504 sit-in was the Stonewall of the disability rights movement. Like many, I wasn’t there at the sit-in. Yet, I wouldn’t be out and proud today, if not for section 504 or Camp Jened.

 

Kathi Wolfe, a writer and a poet, is a regular contributor to the Blade.

Advertisement
FUND LGBTQ JOURNALISM
SIGN UP FOR E-BLAST

Opinions

‘Are you on PrEP?’

Md. lawmakers considering bill to expand access to medication

Published

on

From left, FreeState Justice Executive Director Phillip Westry and Maryland state Del. Ashanti Martinez (D-Prince George's County) (Courtesy photos)

When we’re out with friends, we ask a question that sometimes surprises people: Are you on PrEP?

PrEP is a medication that reduces the risk of getting HIV by about 99 percent when taken as prescribed. We’re both on it. And we both talk about it openly because too many people in our communities still haven’t heard of it, can’t access it, or have been made to feel like asking for it says something about who they are.

It doesn’t. Taking PrEP is about taking control of your health. It’s that simple.

But getting there wasn’t simple for either of us. Our paths to PrEP looked different.

Del. Martinez learned this firsthand. When he asked his primary care doctor about PrEP, the response wasn’t medical — it was judgment. Instead of a prescription, he got a lecture. He had to leave Maryland entirely and go to Whitman-Walker in D.C. just to get basic preventive care. He serves on the Health Committee and sits on the public health subcommittee. Even he couldn’t access HIV prevention in his own state. That reality was soul-crushing, not just for him, but because he immediately thought about every person in his community who doesn’t have the resources to find another way.

Phillip came to PrEP through his work at FreeState Justice, where he was learning about HIV transmission rates and the gap in PrEP access for queer people of color. Black Marylanders account for 65 percent of new HIV diagnoses but only about 35 percent of PrEP users. Latino Marylanders account for nearly 19 percent of new diagnoses but fewer than 8 percent of PrEP users.

Seeing those numbers, he had to ask himself why he wasn’t on it. When he walked into Chase Brexton’s HIV Prevention clinic in Baltimore, the experience was easy and affirming, exactly what it should be for everyone. No judgment, just care. That’s the kind of experience every Marylander deserves.

A proposed bill would make it the standard in Maryland. HB 1114 would let people walk into their neighborhood pharmacy and access PrEP without waiting months for a doctor’s appointment, remove insurance barriers that slow things down, and connect them to ongoing care. 

Our stories are not unusual. When we talk to friends about PrEP — and we do, regularly — we hear the same things. People who didn’t know about it. People who tried and gave up. People who assumed it wasn’t for them. People who couldn’t afford it or couldn’t find a provider. There’s still misinformation out there, and there’s still stigma. Among women in Maryland, most new HIV diagnoses come from heterosexual contact, but PrEP is still rarely part of the conversation from their doctors.

When we talk to our friends about PrEP, we lead with honesty. Here’s what it does, here’s what it costs, here’s where to go. We talk about the different options: daily pills or long-acting shots. Generic options are available, and in many cases, free. If you’re sexually active, it might be right for you. It’s not a morality question. It’s a health question.

We try to make it feel approachable, because it should be. We answer every question, because sometimes we’re the first person someone has had this conversation with. It’s a conversation between people who trust each other. And it works, but it can only go so far when the system itself is still in the way.

We have the medical tools to virtually end new HIV transmissions. What we need now are the policies to make sure everyone can reach them. At a time when the future of federal HIV prevention programs is under attack, Maryland has both the opportunity and the responsibility to lead.

We’re asking our friends to take charge of their health. We’re asking Maryland to make it possible.

If PrEP sounds right for you, talk to your provider. If you know someone who could benefit, share what you know. And if you want to see Maryland get this right, tell your legislators to support HB 1114.

State Del. Ashanti Martinez represents District 22 in Prince George’s County in the Maryland House of Delegates, where he serves as Majority Whip and sits on the Health Committee. Phillip Westry is the executive director of FreeState Justice, Maryland’s statewide LGBTQ+ advocacy organization.

Continue Reading

Opinions

A dream: Democrats focus on candidates who can win

Defeating every Republican has to be the goal in 2026, 2028

Published

on

(Washington Blade photo by Michael Key)

I know this is just a dream, but I am a dreamer and continue to hope Democrats can get beyond Black or white, gay or straight, man or woman; to look at who can win in 2026, and then in 2028. It’s often said each election is the most consequential in our lifetime. The next two actually are. 

The reality is without change; we face losing our democracy. We have a racist, sexist, homophobic, lying felon, in the White House. He has a Cabinet of vile incompetents, and a cadre of fascist advisers, controlling our government. They threaten our freedoms, and even our health. They think the military is theirs to use at will, without restrictions. Again, my dream for elections in 2026 and 2028, is we put our personal desires aside, for the good of the nation.

Everyone is being hurt by Trump. Black women being fired in huge numbers. Transgender people literally having their lives threatened. The LGBTQ community facing new threats. Civil rights are being undermined, and the Latino community across the country is targeted. Women are losing the right to control their bodies. Our voting rights are being threatened, and all this is happening with the consent of the Republican sycophants in Congress who are either in complete agreement with the felon, or threatened into submission by him, and his fascist cohorts. This is what we are facing in the next two election cycles as we try to take back our country. As the opposition party, we must first take back Congress in 2026. If we succeed, we must replicate that success as we work to reclaim the White House in 2028. 

I believe we must all be represented in our elected officials. For years I felt comfortable looking at the equality issue in choosing a candidate, as even in the worst-case scenarios, when losing meant the election of the likes of a Richard Nixon or Ronald Reagan, I never believed my country’s existence was threatened. They, and others like them, may have been vile, but none professed wanting to be king. They didn’t go to court seeking full immunity for anything they did and getting it from judges they appointed. 

I am a proud gay man but will not automatically vote for an LGBTQ candidate in the next elections. In 2024, I worked hard, and proudly, to see two strong Black women elected to the United States Senate. In the 2008 primary I was proud to stand with Hillary Clinton, then support Barack Obama when he won the nomination. In 2016, I again stood with Hillary. In 2020, I proudly supported Kamala Harris as vice president and then supported her for president in 2024. 

Today, I am looking at the next two election cycles differently. I have written the only way to win back my country is to look at which Democrat can win in a particular race. I will support a Democrat committed to voting for the Democratic leadership in the House and the Senate, and in their state legislature, even if they don’t support fully everything I want. Because when Democrats win the leadership, they set the agenda. The Democratic platform has been about the same for many years. It stands for equality in every area. Have we accomplished all we stand for, clearly NO. Have we made progress, clearly YES. 

In these upcoming elections each Democrat may win their race with a different set of issues at the forefront. I have suggested in the morning they go to the diners in their district, and in the evening to the bars, to find out what people are talking about, and concerned about. Then respond to that by running on those issues. If there is a primary, demand each candidate pledge to fully support the winner. Think about what is said about Democrats and Republicans, “Democrats fall in love; Republicans fall in line.” Well in the next two election cycles, Democrats need to fall in line with every Democrat on the ballot in the general election willing to say, “if elected I will vote for, and support, the Democratic leadership.” 

If we don’t commit to doing that in the next two election cycles, we may actually not have future elections. It is the only way we can stop the felon, and his fascist government, from winning. Defeating every Republican in 2026 and 2028, has to be the goal for all who care about our country, and moving on to the next 250 years. Not winning is not an option.  


Peter Rosenstein is a longtime LGBTQ rights and Democratic Party activist.

Continue Reading

Opinions

Capital Pride must be transparent about sexual misconduct investigation

More questions than answers after two board members resign

Published

on

A scene from last year's WorldPride Parade organized by Capital Pride. (Washington Blade file photo by Michael Key)

We are living through some very difficult times in our country. We have a felon in the White House who has surrounded himself with incompetent sycophants and fascists. A Congress that bows down to him, often based on his threats. Things have gotten so bad that his supporters are beginning to wake up to the fact that he cares not a whit for them. They are demanding he stop hiding his involvement with the convicted sex trafficker, Jeffrey Epstein, and come clean. So, to distract them from this, he began a war in the Middle East in which members of the American military have already lost their lives. He says more lives will be lost. He hopes this war of distraction will have Americans forget his failed domestic policies and the Epstein scandal. 

But at the same time that all of this is happening, I am forced to look around at organizations I support and ask if they are being open and honest in the way we are demanding of the felon in the White House.

Recently, I have received calls about an organization I have the utmost pride in: Capital Pride. The calls are about Capital Pride’s internal investigation of “a claim” made against a former board chair, who resigned and no longer has any role with the organization. There has been no public proof of any wrongdoing. At the time, Capital Pride announced it had retained an “independent firm” to investigate the complaint. Now, more than four months later, a second board member has resigned sharing her letter of resignation with the Blade. 

Taylor Lianne Chandler, a member of the Capital Pride board of directors since 2019 who served as the board’s secretary, submitted a letter of resignation on Feb. 24 that alleges the board has failed to address instances of “sexual misconduct” at Capital Pride. 

“This board has made its priorities clear through its actions: protecting a sexual predator matters more than protecting the people who had the courage to come forward. … I have been targeted, bullied, and made to feel like an outsider for doing what any person of integrity would do – telling the truth,” Chandler wrote in her resignation letter. 

The Blade reported the organization announced, “As we continue to grow our organization, we’re proactively strengthening the policies and procedures that shape our systems, our infrastructure, and the support we provide to our team and partners.” 

Again, it is four months later, and there has been no information from Capital Pride regarding that investigation.

Chandler said a Capital Pride investigation identified one individual implicated in a “pattern” of sexual harassment related behavior over a period of time. She added she was bound by a Non-Disclosure Agreement that applies to all board members and she cannot disclose the name of the person implicated in alleged sexual misconduct or those who came forward to complain about it. She added, “It was one individual, but there was a pattern and a history.” 

Again, reading that letter from Chandler and because of the news being full of the Epstein scandal, it makes me want assurances that no organization representing my community will ever think it can cover up issues like this. Capital Pride leadership must be totally transparent. 

Capital Pride is a wonderful organization with so many incredible people working and volunteering there. They make our community proud. I never want to see a blemish on the organization. So, I am calling on them to be open and transparent about the investigation they themselves announced, and let the community know what they found, in detail. More important even than the entire community knowing, is for their staff and volunteers to know what they found. No one should be bound by an NDA, which leads to people thinking something really bad is going on.

I thought twice, even three times, before writing this column. I don’t want it to be seen as casting aspersions on all of Capital Pride, or anyone who may have worked there, or volunteered there. But again, because of the focus on the Epstein scandal, and my writing about the felon and his Cabinet officials involved in it, my calling for them to come clean and tell us all they know, I feel compelled to say the same to the organization I have supported over the years, which even honored me as a Capital Pride Hero in 2016. I want them to move forward and be a beacon of light for our community for many years to come. The work they do makes a difference for so many. 

I wrote in my memoir that coming to a Pride event helped me to come out, and I am sure it has done the same for so many others in our community. What Capital Pride does is important and it must be as transparent as we demand of any other organization.


Peter Rosenstein is a longtime LGBTQ rights and Democratic Party activist.

Continue Reading

Popular