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Judy Heumann helped so many of us with disabilities to be out and proud

‘Like the color of my eyes or the color of my hair, it is a part of who I am’

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Judy Heumann speaks in the TED Talk 'Our fight for disability rights -- and why we're not done yet.' (Screen capture via TED YouTube)

When I was growing up, people like me, who were disabled, were usually met with scorn, pity and exclusion. 

On March 4, Judith (Judy) Heumann, a founder of the disability rights movement,  died at 75 in Washington, D.C. 

For decades, Heumann, who contracted polio when she was 18 months old, was a leader of a civil rights movement that changed the lives of millions of folks like me.

Judy (so many of us, whether we knew or not, connected with her on a first-name basis), was known as the “mother” of the disability rights movement. She was the Harvey Milk of our struggle.

You might think: why should LGBTQ people care about the passing of a disability rights leader?

Here’s why: Nearly, 20 percent of people in this country have a disability, according to the U.S. Census Bureau. This includes LGBTQ+ people. An estimated three to five million people are queer and disabled.  

Studies, including a study by the Map Advancement Project, reveal that queer people are more likely than non-queer people to become disabled. We face the double-whammy of anti-queer and disability-based discrimination. The MAP study reported that of the more than 26,000 transgender people surveyed, 39 percent reported having a disability.

If you’re queer and have a disability (blindness, epilepsy, cerebral palsy, psychiatric disorder, etc.), you’ve likely run up against employers who don’t want to hire you or restaurants who don’t care to serve you. If you’re a queer parent of a disabled child, you’ve probably had to fight to get your kid the education they need.

These battles are hard. But, thanks to Heumann and the movement she led, there are ways — from the Americans with Disabilities Act to working the media — to fight this injustice.

Heumann, who at 29 led a month-long protest that was the Stonewall of the disability rights movement, and in her 70s was the star of the fab, Oscar-nominated documentary “Crip Camp,” was a powerhouse of energy, discipline, hard work and humor. She was a quintessential bad ass who worked for justice 24/7, and  kicked your butt if you didn’t.“Kathi, get your self together!” commanded the voice over the phone, “or you won’t get anything done.”

It was 1987, and I was writing my first news story. I was interviewing Heumann about an historic protest that she’d led a decade earlier. It was the 10th anniversary of what is believed to be the longest non-violent sit-in a federal building. 

In April 1977, more than 100 disabled people took over the (then) Health, Education and Welfare building in San Francisco. President Richard Nixon had signed the Rehabilitation Act into law in 1973. But, regulations, known as “504,” a section of the Act that prohibited discrimination against disabled people by institutions (schools, hospitals, etc.) receiving federal funding, hadn’t been signed. After protesting in the San Francisco building for a month and in Washington, D.C. (including at then President Jimmy Carter’s church), the “504″ regulations were signed.

Heumann, who was an official in the Clinton administration and a special adviser in the Obama State Department, was tough, kind, and proud of herself and the movement that she founded.

For Heumann, who is survived by her husband and brothers, disability was a normal part of life, not a tragedy.

“I never wished I didn’t have a disability,” Heumann wrote in her memoirs “Being Heumann: An Unrepentant Memoir of a Disability Rights Activist.”

When Heumann was a child, disabled children were often institutionalized. Like being queer, being disabled wasn’t considered to be normal then. 

Doctors advised Heumann’s parents to send Judy to an institution when she was a child. But her parents, who were Jewish and had fled Nazi Germany, refused. This experience turned her mother and father against institutionalizing her, Heumann wrote in her memoir.

“If I’d been born just 10 years earlier and become disabled in Germany, it is almost certain the German doctor would also have advised that I be institutionalized,” Heumann wrote, “The difference is that instead of growing up being fed by nurses in a small room with white walls and a roommate, I would have been taken to a special clinic, and at that special clinic, I would have been killed.”

Just as it is if you’re queer, if you’re disabled, if you want to respect yourself, you need to be out and proud.

Judy more than anyone I’ve ever known, helped so many of us with disabilities to be out and proud. She taught us that being disabled isn’t something to be ashamed of. That it’s an important aspect of who we are.

Her disability, Judy often said,  is, “Like the color of my eyes or the color of my hair, it is a part of who I am.” 

I knew Judy only from interviewing her over the years and being on an episode of her podcast “The Heumann Perspective.” But Judy, whether you’d known for decades or just a few months, made you feel like you were a friend.  She’d advise you, cheer you on and challenge you over the phone, in texts and on Zoom.

She almost got me, a non-make-up wearing lesbian, to wear lipstick (so I wouldn’t look like a ghost on her podcast). Earlier this winter, Judy wondered why I didn’t put my disability on my resume. Being nervous could be good, she said, when I was scared of reading at a poetry festival.

“If you don’t respect yourself and if you don’t demand what you believe in for yourself, you’re not going to get it,” Judy said.

Thank you, Judy for teaching us to respect ourselves and to demand our rights! R.I.P., Judy!

Kathi Wolfe, a writer and a poet, is a regular contributor to the Blade.

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Remembering Jesse Jackson

Civil rights icon supported LGBTQ rights, D.C. statehood

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Rev. Jesse Jackson (Washington Blade archive photo by Jim Marks)

There is no question that Jesse Louis Jackson, Sr. had a significant impact on the civil rights movement, Democratic Party politics and D.C.’s struggle for statehood. After I heard of his death, I took some time to reflect on how our lives had intersected although I met him only once in person.

During the 1970s, sickle cell disease was a celebrated cause in the African-American community. Rev. Jackson was in the vanguard of that advocacy because he had the sickle cell trait. My mother had sickle cell disease and I have the trait. I responded to Rev. Jackson’s exhortation to be involved with fighting the disease and was blessed to have worked for seven years at the Howard University Center for Sickle Disease in its community outreach program.

In 1983, the March on Washington for Jobs, Peace & Freedom was held to celebrate the 20th anniversary of the 1963 March on Washington. Local organizing committees called Coalitions of Conscience were formed to get people involved with the march. I attended the first meeting in D.C. and introduced a resolution that the 20th anniversary program held on the National Mall include a speaker representing the LGBT community. The resolution passed unanimously but the response from the chief organizer of the march, Rev. Walter Fauntroy, was that no such speaker would be permitted. Fauntroy was also the District of Columbia delegate to Congress. Three days before the march, four gay men – all D.C. residents, three of whom were Black – went to meet with Del. Fauntroy to discuss his opposition to having a LGBT speaker on the day of the march. He refused to meet with them and had them arrested. I was one of those arrested.

Our arrests made local and national news. While we were in jail, a conference call was held consisting of representatives of most of the major national civil rights leaders in the nation to discuss having an LGBT speaker at the march. Among those on that call were Coretta Scott King, Ralph Abernathy, Mayor Marion Barry, Dorothy Height; Reverends Joseph Lowery, Walter Fauntroy and Jesse Jackson. The decision was made to give three minutes to a speaker representing the LGBT community. The speaker was Audre Lorde, the African-American lesbian writer, poet, professor and civil rights activist. Jesse Jackson’s presence on that call was critical to her being chosen as a speaker.

In 1984, I was a volunteer in the Jesse Jackson for president campaign in his quest for the Democratic Party nomination. I, along with dozens of volunteers, boarded the bus that left from Union Temple Baptist Church to journey to Alabama to campaign for Rev. Jackson in that state’s primary. My involvement with Jackson’s D.C. campaign led me to visit the Players Lounge for the first time in order to get signatures for Jackson’s D.C. presidential delegate slate and to do voter registration.

Jackson did not win the Democratic presidential nomination in either his 1984 or 1988 campaigns. But his efforts along with Congresswoman Shirley Chisolm’s and Rev. Al Sharpton’s presidential campaigns paved the way for Barack Obama’s historic nomination and victory for president in 2008.

In 1990, Jesse Jackson was elected to be one of D.C.’s United States Senators or what is known as a “shadow senator.” He made it clear that D.C.’s struggle for statehood is not just a political issue but a salient civil and human rights issue. His involvement helped make D.C. statehood a national issue.

I cannot remember the exact year that I finally met Jesse Jackson in person but it was around the turn of the millennium. There was an event taking place in the Panorama Room at Our Lady of Perpetual Help Roman Catholic Church. Rev. Jackson was standing alone on the hill taking in the breathtaking view of D.C. I walked over, introduced myself and  thanked him for what he had done for the D.C. statehood, LGBT rights, and the Democratic Party. Even though he was a major celebrity he gave me a hug as if we were longtime friends. It was a brief conversation but we both agreed to keep praying for a cure for sickle cell disease. That hope is still being kept alive.


Philip Pannell is a longtime Ward 8 community activist. Reach him at [email protected].

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‘Are you on PrEP?’

Md. lawmakers considering bill to expand access to medication

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From left, FreeState Justice Executive Director Phillip Westry and Maryland state Del. Ashanti Martinez (D-Prince George's County) (Courtesy photos)

When we’re out with friends, we ask a question that sometimes surprises people: Are you on PrEP?

PrEP is a medication that reduces the risk of getting HIV by about 99 percent when taken as prescribed. We’re both on it. And we both talk about it openly because too many people in our communities still haven’t heard of it, can’t access it, or have been made to feel like asking for it says something about who they are.

It doesn’t. Taking PrEP is about taking control of your health. It’s that simple.

But getting there wasn’t simple for either of us. Our paths to PrEP looked different.

Del. Martinez learned this firsthand. When he asked his primary care doctor about PrEP, the response wasn’t medical — it was judgment. Instead of a prescription, he got a lecture. He had to leave Maryland entirely and go to Whitman-Walker in D.C. just to get basic preventive care. He serves on the Health Committee and sits on the public health subcommittee. Even he couldn’t access HIV prevention in his own state. That reality was soul-crushing, not just for him, but because he immediately thought about every person in his community who doesn’t have the resources to find another way.

Phillip came to PrEP through his work at FreeState Justice, where he was learning about HIV transmission rates and the gap in PrEP access for queer people of color. Black Marylanders account for 65 percent of new HIV diagnoses but only about 35 percent of PrEP users. Latino Marylanders account for nearly 19 percent of new diagnoses but fewer than 8 percent of PrEP users.

Seeing those numbers, he had to ask himself why he wasn’t on it. When he walked into Chase Brexton’s HIV Prevention clinic in Baltimore, the experience was easy and affirming, exactly what it should be for everyone. No judgment, just care. That’s the kind of experience every Marylander deserves.

A proposed bill would make it the standard in Maryland. HB 1114 would let people walk into their neighborhood pharmacy and access PrEP without waiting months for a doctor’s appointment, remove insurance barriers that slow things down, and connect them to ongoing care. 

Our stories are not unusual. When we talk to friends about PrEP — and we do, regularly — we hear the same things. People who didn’t know about it. People who tried and gave up. People who assumed it wasn’t for them. People who couldn’t afford it or couldn’t find a provider. There’s still misinformation out there, and there’s still stigma. Among women in Maryland, most new HIV diagnoses come from heterosexual contact, but PrEP is still rarely part of the conversation from their doctors.

When we talk to our friends about PrEP, we lead with honesty. Here’s what it does, here’s what it costs, here’s where to go. We talk about the different options: daily pills or long-acting shots. Generic options are available, and in many cases, free. If you’re sexually active, it might be right for you. It’s not a morality question. It’s a health question.

We try to make it feel approachable, because it should be. We answer every question, because sometimes we’re the first person someone has had this conversation with. It’s a conversation between people who trust each other. And it works, but it can only go so far when the system itself is still in the way.

We have the medical tools to virtually end new HIV transmissions. What we need now are the policies to make sure everyone can reach them. At a time when the future of federal HIV prevention programs is under attack, Maryland has both the opportunity and the responsibility to lead.

We’re asking our friends to take charge of their health. We’re asking Maryland to make it possible.

If PrEP sounds right for you, talk to your provider. If you know someone who could benefit, share what you know. And if you want to see Maryland get this right, tell your legislators to support HB 1114.

State Del. Ashanti Martinez represents District 22 in Prince George’s County in the Maryland House of Delegates, where he serves as Majority Whip and sits on the Health Committee. Phillip Westry is the executive director of FreeState Justice, Maryland’s statewide LGBTQ+ advocacy organization.

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A dream: Democrats focus on candidates who can win

Defeating every Republican has to be the goal in 2026, 2028

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(Washington Blade photo by Michael Key)

I know this is just a dream, but I am a dreamer and continue to hope Democrats can get beyond Black or white, gay or straight, man or woman; to look at who can win in 2026, and then in 2028. It’s often said each election is the most consequential in our lifetime. The next two actually are. 

The reality is without change; we face losing our democracy. We have a racist, sexist, homophobic, lying felon, in the White House. He has a Cabinet of vile incompetents, and a cadre of fascist advisers, controlling our government. They threaten our freedoms, and even our health. They think the military is theirs to use at will, without restrictions. Again, my dream for elections in 2026 and 2028, is we put our personal desires aside, for the good of the nation.

Everyone is being hurt by Trump. Black women being fired in huge numbers. Transgender people literally having their lives threatened. The LGBTQ community facing new threats. Civil rights are being undermined, and the Latino community across the country is targeted. Women are losing the right to control their bodies. Our voting rights are being threatened, and all this is happening with the consent of the Republican sycophants in Congress who are either in complete agreement with the felon, or threatened into submission by him, and his fascist cohorts. This is what we are facing in the next two election cycles as we try to take back our country. As the opposition party, we must first take back Congress in 2026. If we succeed, we must replicate that success as we work to reclaim the White House in 2028. 

I believe we must all be represented in our elected officials. For years I felt comfortable looking at the equality issue in choosing a candidate, as even in the worst-case scenarios, when losing meant the election of the likes of a Richard Nixon or Ronald Reagan, I never believed my country’s existence was threatened. They, and others like them, may have been vile, but none professed wanting to be king. They didn’t go to court seeking full immunity for anything they did and getting it from judges they appointed. 

I am a proud gay man but will not automatically vote for an LGBTQ candidate in the next elections. In 2024, I worked hard, and proudly, to see two strong Black women elected to the United States Senate. In the 2008 primary I was proud to stand with Hillary Clinton, then support Barack Obama when he won the nomination. In 2016, I again stood with Hillary. In 2020, I proudly supported Kamala Harris as vice president and then supported her for president in 2024. 

Today, I am looking at the next two election cycles differently. I have written the only way to win back my country is to look at which Democrat can win in a particular race. I will support a Democrat committed to voting for the Democratic leadership in the House and the Senate, and in their state legislature, even if they don’t support fully everything I want. Because when Democrats win the leadership, they set the agenda. The Democratic platform has been about the same for many years. It stands for equality in every area. Have we accomplished all we stand for, clearly NO. Have we made progress, clearly YES. 

In these upcoming elections each Democrat may win their race with a different set of issues at the forefront. I have suggested in the morning they go to the diners in their district, and in the evening to the bars, to find out what people are talking about, and concerned about. Then respond to that by running on those issues. If there is a primary, demand each candidate pledge to fully support the winner. Think about what is said about Democrats and Republicans, “Democrats fall in love; Republicans fall in line.” Well in the next two election cycles, Democrats need to fall in line with every Democrat on the ballot in the general election willing to say, “if elected I will vote for, and support, the Democratic leadership.” 

If we don’t commit to doing that in the next two election cycles, we may actually not have future elections. It is the only way we can stop the felon, and his fascist government, from winning. Defeating every Republican in 2026 and 2028, has to be the goal for all who care about our country, and moving on to the next 250 years. Not winning is not an option.  


Peter Rosenstein is a longtime LGBTQ rights and Democratic Party activist.

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