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A Welcome Lifeline

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Friends Paul Johnson and Ryan Maddock bonded for life after kidney donation.

Paul Johnson went on a mini-vacation to Puerto Rico in April 2017. But his r&r was interrupted when his then-boyfriend noticed Paul’s feet, calves and thighs were extremely swollen. His feet barely fit in his shoes on the return flight to D.C. 

In the next few months, Paul underwent several medical tests to determine what was wrong. Ultimately, he was diagnosed with a rare genetic autoimmune disorder. The news was bleak—Paul would need a kidney transplant if he had any chance of living a long life. 

Paul, who rapidly gained 42 pounds of fluid and could hardly breathe at times, would receive overnight dialysis treatment several times a week so a machine could filter his blood to keep him alive. Despite his condition, Paul maintained his social life to stave off the depression. Unbeknownst to him, there was someone in his circle of friends paying extra close attention to Paul.

It was 2011 when Paul first met Ryan Maddock playing on opposing Stonewall Kickball teams. “There are certain people you meet, and right away you can tell they have a good heart. Ryan was one of those people,” said Paul.

When Paul grew ill, Ryan, a hospital social worker, knew something was up. During the next year or so, Ryan would check in with Paul and ask about his condition. “He didn’t just scratch the surface. Instead, he asked meaningful questions that brought me comfort. He was my lifeline.”

One day when the two were chatting on the sidelines, Ryan offered to be Paul’s kidney donor. Paul brushed him off because several friends had already started the process to see if they could be his donor, but each backed out. Paul figured Ryan would be no different. 

In August 2019, Ryan pulled Paul aside for the fifth time and said, “I want to give you a kidney. I want to do this for you.” 

Paul finally realized Ryan was serious and with his blessing, Ryan began the process to determine if his kidney was a match for Paul. Both were disappointed to learn that they were not a match. However, Ryan was determined to save Paul’s life so the two signed up to participate in a kidney swap. This meant Ryan would donate a kidney to someone else whom he matched with and in exchange Paul would receive a kidney from a matching donor. 

On July 14, Paul and Ryan both went into surgery at Medstar Georgetown Transplant Institute. That morning, Ryan donated his kidney to an anonymous recipient in Boston. By evening, Paul received a new kidney from an anonymous donor in Cincinnati. 

After Paul woke up from surgery, he had a visitor. It was Ryan, who needed to see for himself the relief on Paul’s face. “We are two good friends doing something extraordinary. We were always in this together.” 

Both are recovering well after their surgeries and are already back to work. Paul plans to write a letter to show his gratitude to his kidney donor and hopes they can all meet someday.  

“I don’t think there are words that are big enough to express my appreciation. This gift extended my life and changed everything for the better.”

Everyone can register to be an organ donor. Get the facts and register at BeADonor.org. 

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Comings & Goings

Ferentinos joins National Museum of American History advisory board

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Susan Ferentinos, Ph.D.

The Comings & Goings column is about sharing the professional successes of our community. We want to recognize those landing new jobs, new clients for their business, joining boards of organizations and other achievements. Please share your successes with us at [email protected]

The Comings & Goings column also invites LGBTQ+ college students to share their successes with us. If you have been elected to a student government position, gotten an exciting internship, or are graduating and beginning your career with a great job, let us know so we can share your success. 

Congratulations to Susan Ferentinos, Ph.D., on her appointment to the Advisory Board of the Smithsonian’s National Museum of American History. On her appointment she said, “This is a moment when historians must stand up for accuracy, complexity, and the full breadth of the American story. I look forward to working with my fellow board members to ensure the National Museum of American History continues to fulfill its mission of serving all Americans with the highest standards of scholarship and integrity.”

Ferentinos operates her own national consulting business based in Port Townsend, Wash., with satellite operations based in Delaware County, Pa. Her business helps museums, historic sites, and government agencies expand and diversify the stories they tell about the American past. Her work focuses on interpreting LGBTQ history and women’s history, bringing overlooked narratives into mainstream historical interpretation. Her clients have included the National Park Service, the American Association for State and Local History, Baltimore Heritage, and numerous museums and historic sites across the country.  Among her many accomplishments, Susan was part of the teams responsible for getting three LGBTQ sites designated as National Historic Landmarks. Two of those landmarks are in Washington, D.C. She authored the NHL nominations for the Furies Collective, in Capitol Hill, building on research performed by local historian Mark Meinke, and she authored the NHL nomination for the home of African-American educators Lucy Diggs Slowe and Mary Burrill, in Brookland, building on research by Eric Griffitts and Katherine Wallace, of EHT Traceries. 

Ferentinos earned her bachelor’s degree from College of William and Mary in International Development and Philosophy; a master’s from Indiana University in United States History; and a Ph.D. from Indiana University in United States History.

Shawn Gaylord

Congratulations also to Shawn Gaylord on joining a team at Berkshire Hathaway PenFed Reality in Solomons, Md. His focus will be Southern Maryland – Calvert, St. Mary’s, Charles, and Anne Arundel. Gaylord still leads the LGBTQ+ Strategies Team at The Raben Group and works part-time on federal policy for GLSEN. 

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Maryland

Md. Commission on LGBTQIA+ Affairs released updated student recommendations

LGBTQ students report higher rates of bullying, suicide

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(Washington Blade photo by Ernesto Valle)

The Maryland Commission on LGBTQIA+ Affairs has released updated recommendations on how the state’s schools can support LGBTQ students.

The updated 16-page document outlines eight “actionable recommendations” for Maryland schools, supplemented with data and links to additional resources. The recommendations are: 

  • Developing and passing a uniform statewide and comprehensive policy aimed at protecting “transgender, nonbinary, and gender expansive students” against discrimination. The recommendation lists minimum requirements for the policy to address: name, pronoun usage, and restroom access.
  • Requiring all educators to receive training about the specific needs of LGBTQ students, by trained facilitators. The training’s “core competencies” include instruction on terminology, data, and support for students.
  • Implementing LGBTQ-inclusive curricula and preventing book bans. The report highlights a “comprehensive sexual education curriculum” as specifically important in the overall education curriculum. It also states the curriculum will “provide all students with life-saving information about how to protect themselves and others in sexual and romantic situations.” 
  • Establishing Gender Sexuality Alliances “at all schools and in all grade levels.” This recommendation includes measures on how to adequately establish effective GSAs, such as campaign advertising, and official state resources that outline how to establish and maintain a GSA. 
  • Providing resources to students’ family members and supporters. This recommendation proposes partnering with local education agencies to provide “culturally responsive, LGBTQIA+ affirming family engagement initiatives.” 
  • Collecting statewide data on LGBTQ youth. The data on Maryland’s LGBTQ youth population is sparse and non-exhaustive, and this recommendation seeks to collect information to inform policy and programming across the state for LGBTQ youth. 
  • Hiring a full-time team at the Maryland Department of Education that focuses on LGBTQ student achievement. These employees would have specific duties that include “advising on local and state, and federal policy” as well as developing the LGBTQ curriculum, and organizing the data and family resources. 
  • Promoting and ensuring awareness of the 2024 guidelines to support LGBTQ students. 

The commission has 21 members, with elections every year, and open volunteer positions. It was created in 2021 and amended in 2023 to add more members.

The Governor’s Office of Communication says the commission’s goal is “to serve LGBTQIA+ Marylanders by galvanizing community voices, researching and addressing challenges, and advocating for policies to advance equity and inclusion.” 

The commission is tasked with coming up with yearly recommendations. This year’s aim “to ensure that every child can learn in a safe, inclusive, and supportive environment.” 

The Human Rights Campaign’s most recent report on LGBTQ youth revealed that 46.1 percent of LGBTQ youth felt unsafe in some school settings. Those numbers are higher for transgender students, with 54.9 percent of them saying they feel unsafe in school. 

Maryland’s High School Youth Risk Behavior Survey reveals a disparity in mental health issues and concerns among students who identify as LGBTQ, compared to those who are heterosexual. LGBTQ students report higher rates of bullying, feelings of hopelessness, and suicidal thoughts. Nearly 36 percent of LGBTQ students report they have a suicide plan, and 26.7 percent of respondents say they have attempted to die by suicide. 

The commission’s recommendations seek to combat the mental health crisis among the state’s LGBTQ students. They are also a call for local and state governments to work towards implementing them. 

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Virginia

Va. lawmakers consider partial restoration of Ryan White funds

State Department of Health in 2025 cut $20 million from Part B program

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Virginia Capitol (Washington Blade photo by Michael Key)

​​The Virginia General Assembly is considering the partial restoration of HIV funding that the state’s Department of Health cut last year.

The Department of Health in 2025 cut $20 million — or 67 percent of total funding — from the Ryan White Part B program. 

The funding cuts started with the Trump-Vance administration passing budget cuts to federal HIV screening and protection programs. Rebate issues between the Virginia Department of Health and the company that provides HIV medications began.

Advocates say the funding cuts have disproportionately impacted lower-income people.

The Ryan White HIV/AIDS Program, a federal program started in 1990, provides medical services, public education, and essential services. Part B offers 21 services, seven of which remained funded after the budget cuts. 

Equality Virginia notes “in 2025, a 67 percent reduction severely destabilized HIV services across the commonwealth.” 

Virginia lawmakers have approved two bills — House Bill 30 and Senate Bill 30 — that would partially restore the funding. The Ryan White cuts remain a concern among community members. 

Both chambers of the General Assembly must review their proposed changes before lawmakers can adopt the bills.

“While these amendments aren’t a full restoration of what community-based organizations lost, this marks a critical step toward stabilizing care for thousands of Virginians living with HIV,” said Equality Virginia Executive Director Narissa Rahaman. “Equality Virginia plans to continue their contact with lawmakers and delegates through the conference and up until the passing of the budget.” 

“We appreciate lawmakers from both sides of the aisle who recognized the urgency of this moment and will work to ensure funding remains in the final version signed by the governor,” added Rahaman.

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