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Clean living and HIV longevity

Checking in with 3 patients who beat the odds

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One year ago, I wrote about HIV and exercise and how crucial a component exercise has become for the treatment of HIV. I interviewed several subjects asking them to comment on what exercise has done for their diagnosis of this chronic and often life-threatening illness and all of them agreed that exercise was a contributing factor to their mental and physical well-being.

In this article I will focus more on HIV longevity and what “clean living” means to long-term survivors of HIV and how clean living has sustained their lives and quality of life.

Each person in this article was diagnosed in the late 1980s at a time when HIV was considered a death sentence and there were no medications for treatment.

Dr. Jose Mendoza, age 35, HIV positive since 1989

Dr. Jose Mendoza was diagnosed at 13 years of age as the result of a blood transfusion for a surgery. He was told he had three months to live. He was further diagnosed with AIDS in 1997 with advanced pneumonia from which he fully recovered while taking the latest HIV medications.

Mendoza was born and raised in Venezuela where HIV medications were difficult to obtain. And while Mendoza may have seemed too young to care for himself, he was both an accomplished ballet student and began taking Tae Kwan Do after his HIV diagnosis. Those two disciplines and the fact that he never took recreational drugs or engaged in unsafe sex he believes kept him alive.

Today, Mendoza thrives because of the same discipline including eating healthy, getting plenty of sleep, exercising regularly and drinking alcohol in moderation.

Donald Aucoin, age 59, HIV positive since 1988

Donald Aucoin was diagnosed with HIV in 1988 — 23 years ago when HIV was generally a death sentence. Aucoin was also diagnosed at a time when there were not HIV medications for treatment, but again only for when you got sick, so there was no treatment protocol.

Aucoin had to take his health into his own hands. Foremost, Aucoin believes that his sobriety from drugs, alcohol and cigarettes since 1979 is what keeps him alive and what he believes has contributed significantly to his longevity.

Exercise and eating well would be his other contributions to his longevity. In 1990, Aucoin joined DC Strokes, the gay rowing team and began rowing. He became an accomplished rower and participated in the Gay Games in Amsterdam in 1998, 10 years after his diagnosis and supposed imminent death sentence.

Today, on the brink of turning 60, Aucoin is living proof that taking care of yourself is crucial to not only surviving, but thriving.

Steve Lee, age 52, HIV positive since 1986

Steve Lee shares some notable similarities with both Aucoin and Mendoza. Lee was diagnosed in 1986, again at a time when medications were reserved for those sick with full-blown AIDS and AIDS-related illnesses. Lee has been clean and sober from drugs and alcohol since 1985.

Lee was not an athlete and only joined a gym after his diagnosis. He then began weight training and moved to Washington, D.C., in April of 1989 where he was introduced to the gay gym scene that would encourage more exercise. Lee also became a runner in Front Runners and would go on to enter his first marathon. He is training to run his third marathon this fall.

In 1994, Lee visited his first Gay Games in New York City and decided he wanted to be a part of the next Gay Games in 1998 in Amsterdam, but was not sure what he would do. Weight training had become a passion so he decided to compete in his first body building competition. He won a silver medal.

Today, like Mendoza and Aucoin, Lee exercises regularly and eats well.

It should be noted that each of these people are also on the latest HAART medication protocol for their respective HIV. HAART is the acronym for “highly active antiretroviral therapy.”

Remarkably, each of these three people has been HIV positive for more than 20 years. They agree that medications, and their clean living coupled with eating well and exercising has allowed them to thrive despite living with a life-threatening illness.

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Health

UNAIDS to commemorate Zero Discrimination Day’s 10th anniversary

UN agency urges global action to protect human rights

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A UNAIDS anti-discrimination exhibit at Tocumen International Airport in Panama in 2018. (Washington Blade photo by Michael K. Lavers)

As the world marks the 10th anniversary of Zero Discrimination Day; UNAIDS is sounding the alarm on the increasing threats to human rights, calling for renewed efforts to protect the rights of all individuals as a fundamental step towards ensuring health for everyone.

Established by UNAIDS a decade ago, Zero Discrimination Day aims to promote equality and fairness regardless of gender, age, sexuality, ethnicity or HIV status. The progress achieved over the past years is now in jeopardy, however, due to rising attacks on the rights of women, LGBTQ people and other marginalized communities.

UNAIDS Executive Director Winnie Byanyima emphasized the critical link between protecting human rights and safeguarding public health. 

“The attacks on rights are a threat to freedom and democracy and are harmful to health,” she said in a press release. “Stigma and discrimination obstruct HIV prevention, testing, treatment and care and hold back progress towards ending AIDS by 2030. It is only by protecting everyone’s rights that we can protect everyone’s health.”

Despite challenges, there has been notable progress. 

At the onset of the AIDS pandemic more than 40 years ago, two-thirds of countries criminalized consensual same-sex sexual relations. They are now decriminalized in two-thirds of countries. An additional 38 countries around the world have pledged to end HIV-related stigma and discrimination, contributing to positive changes that include 50 million more girls attending school compared to 2015.

To sustain and enhance these advancements; UNAIDS urges global support for women’s rights movements, LGBTQ rights, racial justice, economic justice, climate justice and peace initiatives. By standing with communities advocating for their rights, the U.N. aims to reinforce the collective effort towards a more inclusive and equitable world.

Zero Discrimination Day is observed on March 1.

Events and activities that will take place around the world throughout the month will serve as reminders of the essential lesson and call to action: Protecting everyone’s health is synonymous with protecting everyone’s rights.

“Through upholding rights for all, we will be able to achieve the Sustainable Development Goals and secure a safer, fairer, kinder and happier world — for everyone,” said Byanyima.

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Health

New CDC report finds transgender women at higher risk for HIV

More than 1,600 people in seven cities surveyed

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The Centers for Disease Control and Prevention in Atlanta (Photo courtesy of the CDC)

The Centers for Disease Control and Prevention issued a new study report this week that revealed that restricted by employment and housing discrimination and lack of access to needed gender-affirming healthcare for transgender women increasing the risk of contracting HIV. 

Researchers reviewed data from a 2019-2020 survey, the National HIV Behavioral Surveillance Among Transgender Women, which found that the demographics of HIV/AIDS have been disproportionally high, especially among Black and Latina trans women, who had experienced employment and housing discrimination coupled with lack of access to gender-affirming healthcare.

The Jan. 25 Morbidity and Mortality Weekly Report was based on data studies of more than 1,600 trans women in seven major urban locales. Participants from Atlanta, Los Angeles, New Orleans, New York, Philadelphia, San Francisco and Seattle were chosen by referrals from people and community-based organizations who knew or were part of the local population of trans women.

The study’s researchers noted: “Employment discrimination occurs at the overlapping nexus of poverty, homelessness, incarceration, health insurance, disability, food insecurity and survival sex work. These issues are interconnected.”

The study stated that trans women’s inability to access quality healthcare, including gender-affirming treatment or access to PrEP, and can expose them to potential incarceration as many turn to “survival sex work” and violence, which increases the risk of contracting HIV. 

The study’s author’s pointed out: “When economically marginalized transgender women are refused employment, this refusal cyclically contributes to economic hardships. This analysis …demonstrates the importance of transgender women working and living with dignity and without fear of unfair treatment.”

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Health

A Whole New Perspective on Well-Being

The Mather’s team recognizes that everyone’s wellness journey is completely unique to their life experiences and influences.

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The Mather is incorporating biophilic design—a design approach to facilitate access to nature or things that replicate natural patterns.

It’s easy to spot the distinctive, elegant silhouette of The Mather, a Life Plan Community for those 62+ opening this spring in Tysons, Virginia. What is not apparent to the naked eye is The Mather’s unique wellness philosophy, which is literally built into the community. 

The Mather’s team recognizes that everyone’s wellness journey is completely unique to their life experiences and influences.

Nature is one of the important factors that contribute to well-being. So The Mather is incorporating biophilic design—a design approach to facilitate access to nature or things that replicate natural patterns. This can include interior spaces with sightlines to a garden, choosing natural wood and stone as interior materials, or incorporating fragrant flowers and plants indoors to spark memories and provide tactile opportunities such as gardening. 

Residents of The Mather will be able to select from plentiful amenities, programs, and other offerings to target their personal wellness goals and preferences.

“Providing biophilic design within interior settings connects residents to the natural world,” says Mary Leary, CEO and President of Mather, the organization behind The Mather. “Research shows that a connection to nature provides positive benefits to mental states and overall well-being. At The Mather, biophilic design is the intersection of buildings and programs with nature in an urban setting.”

“The Mather is attracting a diverse group of older adults,” says Mary. “As a result, we aim to incorporate wellness practices from around the world, including Wyda movement theory of the Celtic Druids, which helps people achieve harmony with nature and contentment through mindfulness.” This holistic regenerative approach is similar to Qi Gong and yoga, while born in a different part of the world. Mather Institute has a special focus on mindfulness to support older adults’ practice of present moment awareness, which can lead to increased overall well-being, compassion, and joy.

A very different example of a wellness offering at The Mather is the Gharieni Welnamis spa wave bed, which uses computer-controlled vibrational therapy and audio frequencies to train the brain to relax. “The bed increases mindfulness, concentration, and creativity—all of which support our mission of creating Ways to Age Well,SM” says Mary.

These and other personalized ways to wellness will ensure that residents of The Mather can choose from seemingly countless ways to focus on their well-being. In other words, the sky’s the limit!

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