Connect with us

National

Sebelius promises to collect LGBT data in health surveys

Advocates call for transparency in devising questions

Published

on

Secretary of Health & Human Services Kathleen Sebelius (Blade file photo by Michael Key)

Secretary of Health & Human Services Kathleen Sebelius committed on Tuesday to start the collection of LGBT data as part of federal health surveys, although she said the questions that would be used to gather the information must be market-tested before they’re made part of any questionnaire.

During a news conference at the White House, Sebelius said in response to a question from the Washington Blade that the Department of Health & Human Services “fully intend[s] to collect LGBT data” through federal surveys.

“So it is definitely a commitment,” Sebelius said. “We will be adding data questions to the national health surveys. And right now we are looking at developing a slew of questions, market-testing them, coming back and making sure we have the right way to solicit the information that we need.”

Sebelius said including LGBT questions on federal health surveys has been difficult because the federal government hasn’t engaged in such data collection before and hasn’t settled on the right way to ask such questions. The secretary asserted the Department of Health & Human Services is market-testing questions to make sure they’re worded in the right way to collect the necessary information.

“The problem is that it’s never been collected, and what our folks came back to us with is we have to figure out — and we’re working with providers and advocates right now to actually market-test the questions — how to ask questions in a way that they elicit accurate responses, because collecting data that doesn’t give an accurate picture is not very helpful in the first place,” Sebelius said. “And there has been so little attempt, either directly to consumers or to parents or to anybody else, to ask questions about LGBT health issues that we don’t even know how to ask them.”

Although Sebelius expressed a commitment to include LGBT data collection as part of federal health surveys, she didn’t offer a timeline for when this market testing would be complete or when the questions would be included on the surveys.

To facilitate a better picture of the health of LGBT Americans, advocates have been seeking the inclusion of questions related to sexual orientation and gender identity on major federal surveys, such as the National Health Interview Survey and the Behavioral Risk Factor Surveillance System.

To gather data on sexual orientation, a survey could ask whether someone identifies as lesbian, gay or bisexual. Another survey more focused on sexual health, such as an HIV survey, could ask about sexual behavior and whether the responder has had sex with someone of the same gender.

For gender identity, a survey could ask whether respondents identify as transgender; if someone has transitioned from one gender to another over the course of their lives; or ask about non-conformity, regardless of how the respondent identifies their gender.

Advocates are hoping that data obtained from asking these questions may help ascertain whether certain health problems affect LGBT people more frequently than others, such as mental health problems or alcohol and drug abuse.

Joe Solmonese, president of the Human Rights Campaign, praised Sebelius in a statement for expressing her commitment to including the questions on the surveys and said the change is needed to address LGBT health disparities.

“It has been repeatedly demonstrated — including in a major LGBT health report issued just months ago by the Institute of Medicine —that LGBT people experience significant health disparities and that we cannot fully understand those disparities and how to address them until major health studies ask about our community,” Solmonese said.

Solmonese was referring to the report from the non-governmental United States National Academy of Sciences’ Institute of Medicine Report, published March 31, which found that researchers have insufficient data on LGBT people in health studies, prompting a tendency to treat LGBT people as a single homogeneous group.

Darlene Nipper, deputy executive director of the National Gay & Lesbian Task Force, also commended Sebelius for making the commitment for LGBT data inclusion as a means to address health problems affecting LGBT people.

“There is an urgent need to address health disparities because LGBT lives literally hang in the balance,” Nipper said. “We’re pleased that HHS is moving forward on data collection for the LGBT community in federal health surveys. While not typically headline grabbers, LGBT data collection in federal surveys is critical to the ultimate well-being of our community.”

A number of LGBT advocates also called for greater transparency in the way that the Department of Health & Human Services devises the potential questions to obtain health data on the LGBT population.

Gary Gates, distinguished scholar at the Williams Institute at the University of California in Los Angeles, called the commitment from Sebelius “fantastic,” but said questions on sexual orientation and gender identity “need not start from scratch.”

“We know a great deal already about how to measure sexual orientation and some recent studies have also highlighted promising approaches to measuring gender identity,” Gates said. “HHS now has a real opportunity to develop an open and transparent process as they assess how to best utilize this body of research to inform how they achieve LGBT inclusion in their data collection. That process must be transparent and involve experts from both inside and outside of the government as well as experts from the LGBT community.”

Nipper made similar remarks on the need for openness in the way the LGBT-related questions for the health surveys are developed.

“We encourage the secretary to take this directive and turn it into action in a transparent process that includes experts from both inside and outside of the federal government to implement it effectively,” Nipper said. “The sooner this happens, the sooner initiatives like Healthy People and the National Prevention Strategy will be able to adequately address the many health needs of our community.”

The National Prevention Strategy, a comprehensive plan aimed at increasing the number of Americans who are healthy at every stage of their lives, was published last week by the Department of Health & Human Services’ National Prevention Council. The strategy recognizes that good health comes not just from quality medical care, but also from clean air and water, safe work sites and healthy foods.

A transcript of the exchange between the Blade and Sebelius follows:

Washington Blade: Madam Secretary, I have a question for you on a different topic. As I’m sure you know, the absence of nationwide data about the LGBT community’s health needs and disparities has been a problem. Organizations want government assistance to address problems. The government insists on data to back up these requests, but the government won’t collect data, so the LGBT community remains stymied.

It’s public knowledge that groups have been advocating with HHS to address the data collection issue — specific things like including LGBT questions on the National Health Interview Survey and the Behavioral Risk Factor Surveillance System.

You and the president have been advocates for evidence-based decision-making. What’s the holdup here?

Kathleen Sebelius: Well, actually, it’s a great question, and we fully intend to collect LGBT data. The problem is that it’s never been collected, and what our folks came back to us with is we have to figure out — and we’re working with providers and advocates right now to actually market-test the questions — how to ask questions in a way that they elicit accurate responses, because collecting data that doesn’t give an accurate picture is not very helpful in the first place. And there has been so little attempt, either directly to consumers or to parents or to anybody else, to ask questions about LGBT health issues that we don’t even know how to ask them.

So it is definitely a commitment. We will be adding data questions to the National Health Surveys. And right now we are looking at developing a slew of questions, market-testing them, coming back and making sure we have the right way to solicit the information that we need.

Continue Reading
Advertisement

homepage news

Patrick O’Connell, acclaimed AIDS activist, dies at 67

Played key role in creating red ribbon for awareness

Published

on

Activist Patrick O’Connell was instrumental in creating the red ribbon to promote AIDS awareness. (Photo courtesy of Allen Frame; courtesy Visual AIDS)

Patrick O’Connell, a founding director of the New York City-based AIDS advocacy group Visual AIDS who played a lead role in developing the internationally recognized display of an inverted, V-shaped red ribbon as a symbol of AIDS advocacy, died on March 23 at a Manhattan hospital from AIDS-related causes, according to the New York Times. He was 67.

Visual AIDS said in a statement that O’Connell held the title of founding director of the organization from 1980 to 1995.

During those years, according to the statement and others who knew him, O’Connell was involved in the group’s widely recognized and supported efforts to use art and artist’s works to advocate in support of people with HIV/AIDS and efforts to curtail the epidemic that had a devastating impact on the art world.

Thanks to a grant from the Art Matters foundation, Visual AIDS was able to retain O’Connell as its first paid staff member in 1990, the group said in its statement.

“Armed with a fax machine and an early Macintosh computer, Patrick helped Visual AIDS grow from a volunteer group to a sustainable non-profit organization,” the statement says. “A passionate spokesperson for the organization, he helped projects like Day Without Art, Night Without Light, and the Red Ribbon reach thousands of people and organizations across the world,” the group says in its statement.

“We were living in a war zone,” the statement quoted O’Connell as saying in a 2011 interview with the Long Island newspaper Newsday. “But it was like a war that was some kind of deep secret only we knew about,” O’Connell said in the interview. “Thousands were dying of AIDS. We felt we had to respond with a visible expression,” he told the newspaper.

With O’Connell’s help, Visual AIDS in 1989 organized the first annual Day Without Art in which dozens of galleries and museums in New York and other cities covered art works with black cloths to symbolize the mourning of those who died of AIDS. Among those participating were the Brooklyn Museum, the J. Paul Getty Museum in Los Angeles, and the Metropolitan Museum of Art in New York, which replaced a Picasso painting with a “somber informational placard,” according to the New York Times.

In 1990 O’Connell helped Visual AIDS organize the first Night Without Light, which was held at the time of World AIDS Day. New York City’s skyscraper buildings, bridges, monuments, and Broadway theaters turned off their lights for 15 minutes to commemorate people who lost their lives to AIDS, the New York Times reported.

In the kickoff of its Red Ribbon Project in 1991, McConnell helped organize volunteers to join “ribbon bees” in which thousands of the ribbons were cut and folded for distribution around the city, the Times reports. Those who knew McConnell said he also arranged for his team of volunteers to call Broadway theaters and producers of the upcoming Tony Awards television broadcast to have participants and theater goers display the red ribbons on their clothes.

Among those displaying a red ribbon on his label at the Tony Awards broadcast was actor Jeremy Irons, who was one of the hosts. In later years, large numbers of celebrities followed the practice of wearing the red ribbon, and in 1993 the U.S. Postal Service issued a red ribbon stamp.

The Times reports that O’Connell was born and raised in Manhattan, where he attended Fordham Preparatory School and later graduated from Trinity College in Hartford, Conn., in 1973 with a bachelor’s degree in history. According to Visual AIDS, O’Connell served as director of the Hallwalls arts center in Buffalo, N.Y. from 1977 to 1978 before returning to New York City to work for a gallery called Artists Space.

The Times reports that O’Connell learned in the middle 1980s that he had contracted AIDS and began a regimen of early AIDS treatment with a cocktail of over 30 pills a day. His involvement with Visual AIDS, which began in 1989, ended on an active basis in 1995 when his health worsened, the Times reports.

As one of the last remaining survivors of his New York contemporaries who had HIV beginning in the 1980s, O’Connell continued in his strong support for AIDS-related causes through 2000s and beyond, people who knew him said.
Visual AIDS says it is gathering remembrances and photos for a tribute post for O’Connell on its website. It has invited people to share their memories of him by sending written contributions and images via email to: [email protected].

Continue Reading

National

Caitlyn Jenner releases campaign ad and social media reacts- ‘enough already’

Published

on

MALIBU – Former Trump presidential campaign manager Brad Parscale released the first campaign advert Tuesday for reality television celebrity Caitlyn Jenner who is running to replace California Governor Gavin Newsom in the recall election race.

The ad drew an immediate and overwhelmingly negative reaction for exasperated social media users, many who identify as LGBTQ, decrying the reality TV personality getting into politics.

Jenner, 71, who is Trans herself, had drawn a firestorm of criticism over the past few days after she was caught outside a Malibu coffee spot Saturday and made remarks to a reporter from celebrity tabloid media outlet TMZ, saying that she didn’t think it was fair to have trans women athletes competing in girls’ and women’s sports.

In Tuesday’s advert, Jenner claims to be a “compassionate disrupter” and offers to rebuild and reopen California while in imagery silently alludes that Newsom in conjunction with ‘big government’ has somehow destroyed the state.

“I came here with a dream 48 years ago, to be the greatest athlete in the world,” she says in the ad, noting her own history in the state. “Now I enter a different kind of race, arguably my most important one yet: to save California.”

Reaction to the ad has been brutal. (Sampling below)

Another challenger to Newsom also released a campaign video Tuesday Sacramento’s Fox affiliate KTXL reported.

California businessman John Cox, who has challenged Newsom previously for the governorship launched his Meet the Beast Bus Tour Tuesday morning at Miller Regional Park in Sacramento. Cox brought a live bear with him.

Throughout the news conference, Cox attacked Newsom’s handling of the state’s response to the COVID-19 pandemic, water management and strain on the power grid.

Cox lost the 2018 general election to Newsom by 23 points.

Continue Reading

homepage news

National transgender military advocacy group elects new president

Bree Fram has been SPARTA member since 2014

Published

on

Lt. Col. Bree Fram (Photo courtesy of SPARTA)

SPARTA, the nation’s leading transgender military service advocacy organization, announced Saturday that it had elected Bree Fram as its new board chair and president of the organization.

She has been a member of SPARTA since 2014 and has served on the board of directors since April 2018, most recently as vice president. Fram is also a lieutenant colonel and astronautical engineer in the U.S. Air Force and will soon be recommissioning into the U. S. Space Force.

She is currently a student at the U.S. Naval War College with a follow-on assignment to the Department of Defense at the Pentagon.

“I’m honored and humbled to serve as SPARTA president on behalf of so many amazing transgender service member,” said Fram. “We will do our utmost to continue SPARTA’s a rich history of incredible dedication and progress. My heartfelt thanks go to the previous leaders of the organization, including Sue Fulton, Jacob Eleazar, Blake Dremann, and Emma Shinn, and all our members for the incredible achievements of the past eight years. Despite setbacks, their desire to make transgender military service possible is reality again as of yesterday as the new Department of Defense Policy went into effect.”

The immediate past president, Emma Shinn served through a challenging time as President Trump’s ban on transgender service went into effect in April 2019. Her leadership rallied the organization and ensured SPARTA remained dedicated to positive change.

With the January 2021 executive order from President Biden directing the Defense Department to re-implement open transgender service, she and the organization celebrated a major success that will benefit all members of SPARTA and the nation.

“Leading SPARTA for the past two years has been a tremendous honor and privilege,” stated Shinn as her time at the head of SPARTA came to an end. She continued, “I am confident that SPARTA will continue to help our military and nation recognize the value trans service members bring to the mission. I am thankful for the opportunity SPARTA has given me to work with leaders in the DoD, legislators, and partner groups to make open trans service a reality again. I look forward to continuing to work with this amazing group of people under Bree’s leadership. I am excited for the future of our organization and nation.”

In a press release the organization noted that Fram’s remarks highlighted the fact that SPARTA’s mission is not over. “Although transgender service members have already proven they belong on the battlefield and here at home,” she said. “We need to ensure they can’t be erased in the future by an administration set on turning back the clock. Beyond ensuring our members can thrive in their careers, my top priority is to ensure the opportunity to serve is enshrined in law.”

Fram spoke on additional goals for SPARTA during her tenure and listed the following:

·  Minimize the administrative burden and career impact of transition in the military

·  Advocate for inclusion of transgender voices in policy making

·  Push for inclusive policies regarding intersex and non-binary military service

“All Americans who are otherwise qualified to serve in the military should have the opportunity to do so,” Fram summarized. “This nation will be better and better defended with inclusive policies that enable the military to draw upon the best talent this nation has to offer.”

Continue Reading
Advertisement
Advertisement

Follow Us @washblade

Sign Up for Blade eBlasts

Trending