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Lesbian activist awarded Presidential Citizens Medal

Langbehn receives second-highest civilian honor

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Janice Langbehn (left) and President Obama (Blade photo by Michael Key)

A lesbian activist who helped secure hospital visitation rights for gay couples across the country on Thursday received the nation’s second-highest civilian honor.

Janice Langbehn, who was unable to visit her partner in 2007 before she died in a Florida hospital, was among 13 recipients of the 2011 Presidential Citizens Medal. During a ceremony in the East Room of the White House, President Obama conferred the medals to each of the recipients.

During his remarks, Obama paid special attention to award recipients who took action after their families endured hardship. For Langbehn, the trial was being separated from her partner of 18 years, Lisa Pond, as she lay dying in the hospital after suffering from a brian aneurysm.

“As a father and husband, I can’t begin to imagine the grief that they must have felt in that moment — their anger and their sense that the world was not fair,” Obama said. “But they refused to let that anger define them. They each became, in Janice’s words, an ‘accidental activist.’ And thanks to their work, there are parents and partners who will never have to go through what they went through.”

Obama conferred the award to Langbehn, a lesbian who hails from Lacey, Wash., after a military aide standing the near the stage read a description of her accomplishments.

“Janice Langbehn transformed her own profound loss into a resounding call for compassion and equality,” the aide said. “Determined to spare others from similar injustice, Janice spoke out and helped ensure that same-sex couples can support and comfort each other through some of life’s toughest trials. The United States honors Janice Langbehn for advancing America’s promise of equality for all.”

Since Pond’s death, Langbehn has spoken with the press and organizations about being denied the ability to visit her partner in the hospital. Lambda Legal filed a lawsuit on her behalf against the facility, Jackson Memorial Hospital, which was unsuccessful. However, the hospital later agreed to change its policy on its own accord.

Langbehn is credited with being the figure that inspired President Obama to issue a memorandum last year directing hospitals receiving of Medicare and Medicaid funds — or virtually all hospitals — to allow patients to designate whomever they choose to visit them in the hospital, including a same-sex partner.

Her story inspired a 2009 article in the New York Times that reportedly was read by then-White House Chief of Staff Rahm Emanuel and shown to Obama. After reading the article, Obama directed Secretary of Health & Human Services Kathleen Sebelius to make the change on hospital visitation policy.

Among the 150 attendees at the ceremony were Langbehn’s brother Wallace “Skip” Langbehn; her sister Marilyn Langbehn, Human Rights Campaign Family Project Deputy Director Tom Sullivan; Beth Littrell, a staff attorney in the Southern Regional Office of Lambda Legal; and Cindi Creager, communications director of the LGBT Community Center in New York.

The Presidential Citizens Medal is given to Americans who perform “exemplary deeds of service for their country or their fellow citizens.” This year, the 13 awardees were chosen from a pool of nearly 6,000 public nominations received by the White House.

The civilian honor is second only only to the Presidential Medal of Freedom. Other honorees include civil rights activists Rosa Parks and Dorothy Height.

In a statement, Langbehn called receiving the Presidential Citizens Medal “a great honor.”

“It is my hope that my family’s loss, this medal, and the attention it brings to the discrimination our families have faced during the most difficult moments, will help ease suffering and ensure that no family has to go through what my family went through,” she said.

Joe Solmonese, president of the Human Rights Campaign, commended Langbehn in a statement for her work and said her action secure one of the most fundamental needs for gay families.

“Janice Langbehn turned her family’s healthcare horror story into action and has worked hard to make sure other LGBT Americans aren’t denied the right to be at an ailing loved one’s bedside,” Solmonese said. “Her story inspired our President to address one of our community’s most critical needs, and for that she has earned the nation’s second-highest civilian honor.”

Prior to the ceremony, Langbehn had an interview with the Washington Blade on the White House grounds. A transcript of the interview follows:

Washington Blade: Can you tell me about how you heard the news that you got this medal and what your reaction was at the time?

Janice Langbehn: It was actually found out on what would have been Lisa’s and my 20th anniversary of our holy union. And I was quite shocked because I had no idea I was even nominated for this prestigious honor. It also again reaffirms that all my speaking out over these last four-and-a-half years is important, was important and continues to be important for equality for all of us. We’re no longer second class citizens. If I can get the Presidential Citizens Medal, we all need to be first-class citizens in this country.

Blade: Now that you’re on the White House grounds, can you tell me where your thoughts are at this time?

Langbehn: I’m really nervous obviously for what’s to come. And also, I hope I’m worthy of such a high honor from the country.

Blade: Can you talk to me a little bit about what you’ve done since the death of your spouse and how it’s led to the hospital visitation rights memo?

Langbehn: It was about three months after Lisa died in ’07 that I was asked to speak at our local Pride event in Olympia, Wash. And I connected with GLAAD, who helped me figure out how to put the message together. And them, once the words came out it was so natural after that that what happened to our family was so wrong.

Lisa died completely alone. For eight hours, our children and myself were barred from her bedside for no other reason than we were gay. And so, she died completely alone, and no one should have to die alone in this country if they have family.

And I have said it since the beginning, I have felt like a failure to Lisa because our vows were in sickness and health and I wasn’t there the time she most needed me, and so speaking out was somewhat of a way to get it out the community that this happens. We need our paperwork, but this also needs to change. And that’s what President Obama, along with Secretary Sebelius was able to do, and I’m so grateful for that.

Blade: Do you think the hospital visitation rights memo that President Obama issued — did that sufficiently address the issue, or is more work needed?

Langbehn: I think it did address the issue of hospital visitation, without a doubt, and then, the follow up memo of how to implement it in hospitals that came out this last August absolutely tells hospitals, “A, B, C, D, make sure this is in your patients’ bill of rights, etc., and make sure your staff are culturally competent on LGBT issues.”

I think the one area that’s still is kind of a little grey is if the patient comes in incapacitated and the documents aren’t there ahead of time — like ours were — though it didn’t help us. So, there’s still work to do and Secretary Sebelius admits that there’s still plenty of work to do. But this is a great first step and its Lisa’s legacy.

Blade: Is there anything more you’d like to see from President Obama? What’s the next thing you’d like to see from President Obama on the issues of LGBT rights?

Langbehn: Well, he’s got to get rid of DOMA. DOMA has to go and ENDA needs to come in. I mean, I can’t say it any more bluntly than that. The more patchwork of rights that we have across the country, the more of a problem it’s going to be, so DOMA has to go, and it’s as simple as that.

Blade: Thank you so much, Ms. Langbehn. I really appreciate it.

Watch the video here:

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Florida

AIDS Healthcare Foundation sues Fla. over ‘illegal’ HIV drug program cuts

Tens of thousands could lose access to medications

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(Photo by Catella via Bigstock)

Following the slashing of hundreds of thousands of dollars from Florida’s AIDS Drug Assistance Program, AIDS Healthcare Foundation filed a lawsuit against the Florida Department of Health over what it says was an illegal change to income eligibility thresholds for the lifesaving program.

The Florida Department of Health announced two weeks ago that it would make sweeping cuts to ADAP, dramatically changing how many Floridians qualify for the state-funded medical coverage — without using the formal process required to change eligibility rules. As a result, AHF filed a petition Tuesday in Tallahassee with the state’s Division of Administrative Hearings, seeking to prevent more than 16,000 Floridians from losing coverage.

The medications covered by ADAP work by suppressing HIV-positive people’s viral load — making the virus undetectable in blood tests and unable to be transmitted to others.

Prior to the eligibility change, the Florida Department of Health covered Floridians earning up to 400 percent of the federal poverty level — or $62,600 annually for an individual. Under the new policy, eligibility would be limited to those making no more than 130 percent of the federal poverty level, or $20,345 per year.

The National Alliance of State and Territorial AIDS Directors estimates that more than 16,000 patients in Florida will lose coverage under the state’s ADAP because of this illegal change in department policy. Florida’s eligibility changes would also eliminate access to biktarvy, a widely used once-daily medication for people living with HIV/AIDS.

Under Florida law, when a state agency seeks to make a major policy change, it must either follow a formal rule-making process under the Florida Administrative Procedure Act or obtain direct legislative authorization.

AHF alleges the Florida Department of Health did neither.

Typically, altering eligibility for a statewide program requires either legislative action or adherence to a multistep rule-making process, including: publishing a Notice of Proposed Rule; providing a statement of estimated regulatory costs; allowing public comment; holding hearings if requested; responding to challenges; and formally adopting the rule. According to AHF, none of these steps occurred.

“Rule-making is not a matter of agency discretion. Each statement that an agency like the Department of Health issues that meets the statutory definition of a rule must be adopted through legally mandated rule-making procedures. Florida has simply not done so here,” said Tom Myers, AHF’s chief of public affairs and general counsel. “The whole point of having to follow procedures and rules is to make sure any decisions made are deliberate, thought through, and minimize harm. Floridians living with HIV and the general public’s health are at stake here and jeopardized by these arbitrary and unlawful DOH rule changes.”

AHF has multiple Ryan White CARE Act contracts in Florida, including four under Part B, which covers ADAP. More than 50 percent of people diagnosed with HIV receive assistance from Ryan White programs annually.

According to an AHF advocacy leader who spoke with the Washington Blade, the move appears to have originated at the state level rather than being driven by the federal government — a claim that has circulated among some Democratic officials.

“As far as we can tell, Congress flat-funded the Ryan White and ADAP programs, and the proposed federal cuts were ignored,” the advocacy leader told the Blade on the condition of anonymity. “None of this appears to be coming from Washington — this was initiated in Florida. What we’re trying to understand is why the state is claiming a $120 million shortfall when the program already receives significant federal funding. That lack of transparency is deeply concerning.”

Florida had the third-highest rate of new HIV infections in the nation in 2022, accounting for 11 percent of new diagnoses nationwide, according to KFF, a nonprofit health policy research organization.

During a press conference on Wednesday, multiple AHF officials commented on the situation, and emphasized the need to use proper methods to change something as important as HIV/AIDS coverage availability in the sunshine state. 

“We are receiving dozens, hundreds of calls from patients who are terrified, who are confused, who are full of anxiety and fear,” said Esteban Wood, director of advocacy, legislative affairs, and community engagement at AHF. “These are working Floridians — 16,000 people — receiving letters saying they have weeks left of medication that keeps them alive and costs upwards of $45,000 a year. Patients are asking us, ‘What are we supposed to do? How are we supposed to survive?’ And right now, we don’t have a good answer.”

“This decision was not done in the correct manner. County health programs, community-based organizations, providers across the state — none of them were consulted,” Wood added. “Today is Jan. 28, and we have just 32 days until these proposed changes take effect. Nearly half of the 36,000 people currently on ADAP could be disenrolled in just over a month.”

“Without this medication, people with HIV get sicker,” Myers said during the conference. “They end up in emergency rooms, they lose time at work, and they’re unable to take care of their families. Treatment adherence is also the best way to prevent new HIV infections — people who are consistently on these medications are non-infectious. If these cuts go through, you will have sicker people, more HIV infections, and ultimately much higher costs for the state.”

“Patients receiving care through Ryan White and ADAP have a 91 percent viral suppression rate, compared to about 60 percent nationally,” the advocacy leader added. “That’s as close to a functional cure as we can get, and it allows people to live healthy lives, work, and contribute to their communities. Blowing a hole in a program this successful puts lives at risk and sets a dangerous precedent. If Florida gets away with this, other states facing budget pressure could follow.”

The lawsuit comes days after the Save HIV Funding campaign pressed Congress to build bipartisan support for critical funding for people living with or vulnerable to HIV. In May of last year, President Donald Trump appeared to walk back his 2019 pledge to end HIV as an epidemic, instead proposing the elimination of HIV prevention programs at the Centers for Disease Control and Prevention and housing services in his budget request to Congress.

House appropriators, led by the Republican majority, went further, calling for an additional $2 billion in cuts — including $525 million for medical care and support services for people living with HIV. 

While Senate appropriators ultimately chose to maintain level funding in their version of the spending bills, advocates feared final negotiations could result in steep cuts that would reduce services, increase new HIV infections, and lead to more AIDS-related deaths. The final spending package reflected a best-case outcome, with funding levels largely mirroring the Senate’s proposed FY26 allocations.

“What the state has done in unilaterally announcing these changes is not following its own rules,” Myers added. “There is a required process — rule-making, notice and comment, taking evidence — and none of that happened here. Before you cut 16,000 people off from lifesaving medication, you have to study the harms, ask whether you even have the authority to do it, and explore other solutions. That’s what this lawsuit is about.”

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National

Federal authorities arrest Don Lemon

Former CNN anchor taken into custody two weeks after Minn. church protest

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Don Lemon (Screenshot via YouTube)

Federal authorities on Thursday arrested former CNN anchor Don Lemon in Los Angeles.

CNN reported authorities arrested Lemon after 11 p.m. PT while in the lobby of a hotel in Beverly Hills, Calif., while he “was leaving for an event.” Lemon’s lawyer, Abbe Lowell, in a statement said his client was in Los Angeles to cover the Grammy Awards.

Authorities arrested Lemon less than two weeks after he entered Cities Church in St. Paul, Minn., with a group of protesters who confronted a pastor who works for U.S. Immigration and Customs Enforcement. (An ICE agent on Jan. 7 shot and killed Renee Good, a 37-year-old Minneapolis woman who left behind her wife and three children. U.S. Customs and Border Protection agents on Jan. 24 shot and killed Alex Pretti, a 37-year-old nurse who worked for the Department of Veterans Affairs, in Minneapolis.)

Lemon insists he was simply covering the Cities Church protest that interrupted the service. A federal magistrate last week declined to charge the openly gay journalist in connection with the demonstration.

“Don Lemon was taken into custody by federal agents last night in Los Angeles, where he was covering the Grammy awards,” said Lowell in his statement. “Don has been a journalist for 30 years, and his constitutionally protected work in Minneapolis was no different than what he has always done. The First Amendment exists to protect journalists whose role it is to shine light on the truth and hold those in power accountable.”

“Instead of investigating the federal agents who killed two peaceful Minnesota protesters, the Trump Justice Department is devoting its time, attention and resources to this arrest, and that is the real indictment of wrongdoing in this case,” Lowell added. “This unprecedented attack on the First Amendment and transparent attempt to distract attention from the many crises facing this administration will not stand. Don will fight these charges vigorously and thoroughly in court.”

Attorney General Pam Bondi on X confirmed federal agents “at my direction” arrested Lemon and three others — Trahern Jeen Crews, Georgia Fort, and Jamael Lydell Lundy — “in connection with the coordinated attack on Cities Church in St. Paul, Minnesota.”

Fort is also a journalist.

Lemon, who CNN fired in 2023, is expected to appear in court in Los Angeles on Friday.

“Freedom of the press is a cornerstone of a free society; it is the tool by which Americans access the truth and hold power to account. But Donald Trump and Pam Bondi are at war with that freedom — and are threatening the fundamentals of our democracy,” said Human Rights Campaign President Kelley Robinson on Friday in a statement. “Don Lemon and Georgia Fort were doing their jobs as reporters. Arresting them is not law enforcement it is an attack on the Constitution at a moment when truthful reporting on government power has never been more important. These are the actions of a despot, the tactics of a dictator in an authoritarian regime.”

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The White House

Expanded global gag rule to ban US foreign aid to groups that promote ‘gender ideology’

Activists, officials say new regulation will limit access to gender-affirming care

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President Donald Trump speaks at the 2025 U.N. General Assembly. The Trump-Vance administration has expanded the global gag rule to ban U.S. foreign aid to groups that promote "gender ideology." (Screenshot via YouTube)

The Trump-Vance administration has announced it will expand the global gag rule to ban U.S. foreign aid for groups that promote “gender ideology.”

Deputy Secretary of State Christopher Landau in a memo, titled Combating Gender Ideology in Foreign Assistance, the Federal Register published on Jan. 27 notes  “previous administrations … used” U.S. foreign assistance “to fund the denial of the biological reality of sex, promoting a radical ideology that permits men to self-identify as women, indoctrinate children with radical gender ideology, and allow men to gain access to intimate single-sex spaces and activities designed for women.”

“Efforts to eradicate the biological reality of sex fundamentally attack women by depriving them of their dignity, safety, and well-being. It also threatens the wellbeing of children by encouraging them to undergo life-altering surgical and chemical interventions that carry serious risks of lifelong harms like infertility,” reads the memo. “The erasure of sex in language and policy has a corrosive impact not just on women and children but, as an attack on truth and human nature, it harms every nation. It is the purpose of this rule to prohibit the use of foreign assistance to support radical gender ideology, including by ending support for international organizations and multilateral organizations that pressure nations to embrace radical gender ideology, or otherwise promote gender ideology.”

President Donald Trump on Jan. 28, 2025, issued an executive order — Protecting Children from Chemical and Surgical Mutilation — that banned federal funding for gender-affirming care for minors.

President Ronald Reagan in 1985 implemented the global gag rule, also known as the “Mexico City” policy, which bans U.S. foreign aid for groups that support abortion and/or offer abortion-related services.

Trump reinstated the rule during his first administration. The White House this week expanded the ban to include groups that support gender-affirming care and diversity, equity, and inclusion programs.

The expanded global gag rule will take effect on Feb. 26.

“None of the funds made available by this act or any other Act may be made available in contravention of Executive Order 14187, relating to Protecting Children From Chemical and Surgical Mutilation, or shall be used or transferred to another federal agency, board, or commission to fund any domestic or international non-governmental organization or any other program, organization, or association coordinated or operated by such non-governmental organization that either offers counseling regarding sex change surgeries, promotes sex change surgeries for any reason as an option, conducts or subsidizes sex change surgeries, promotes the use of medications or other substances to halt the onset of puberty or sexual development of minors, or otherwise promotes transgenderism,” wrote Landau in his memo.

Landau wrote the State Department “does not believe taxpayer dollars should support sex-rejecting procedures, directly or indirectly for individuals of any age.”

“A person’s body (including its organs, organ systems, and processes natural to human development like puberty) are either healthy or unhealthy based on whether they are operating according to their biological functions,” reads his memo. “Organs or organ systems do not become unhealthy simply because the individual may experience psychological distress relating to his or her sexed body. For this reason, removing a patient’s breasts as a treatment for breast cancer is fundamentally different from performing the same procedure solely to alleviate mental distress arising from gender dysphoria. The former procedure aims to restore bodily health and to remove cancerous tissue. In contrast, removing healthy breasts or interrupting normally occurring puberty to ‘affirm’ one’s ‘gender identity’ involves the intentional destruction of healthy biological functions.”

Landau added there “is also lack of clarity about what sex-rejecting procedures’ fundamental aims are, unlike the broad consensus about the purpose of medical treatments for conditions like appendicitis, diabetes, or severe depression.”

“These procedures lack strong evidentiary foundations, and our understanding of long-term health impacts is limited and needs to be better understood,” he wrote. “Imposing restrictions, as this rule proposes, on sex-rejecting procedures for individuals of any age is necessary for the (State) Department to protect taxpayer dollars from abuse in support of radical ideological aims.”

Landau added the State Department “has determined that applying this rule to non-military foreign assistance broadly is necessary to ensure that its foreign assistance programs do not support foreign NGOs and IOs (international organizations) that promote gender ideology, and U.S. NGOs that provide sex-rejecting procedures, and to ensure the integrity of programs such as humanitarian assistance, gender-related programs, and more, do not promote gender ideology.”

“This rule will also allow for more foreign assistance funds to support organizations that promote biological truth in their foreign assistance programs and help the (State) Department to establish new partnerships,” he wrote.

The full memo can be found here.

Council for Global Equality Senior Policy Fellow Beirne Roose-Snyder on Wednesday said the expansion of the so-called global gag rule will “absolutely impact HIV services where we know we need to target services, to that there are non-stigmatizing, safe spaces for people to talk through all of their medical needs, and being trans is really important to be able to disclose to your health care provider so that you can get ARVs, so you can get PrEP in the right ways.” Roose-Snyder added the expanded ban will also impact access to gender-affirming health care, food assistance programs and humanitarian aid around the world.

“This rule is not about gender-affirming care at all,” she said during a virtual press conference the Universal Access Project organized.

“It is about really saying that if you want to take U.S. funds —   and it’s certainly not about gender-affirming care for children — it is if you want to take U.S. funds, you cannot have programs or materials or offer counseling or referrals to people who may be struggling with their gender identity,” added Roose-Snyder. “You cannot advocate to maintain your country’s own nondiscrimination laws around gender identity. It is the first place that we’ve ever seen the U.S. government define gender-affirming care, except they call it something a lot different than that.”

The Congressional Equality Caucus, the Democratic Women’s Caucus, the Congressional Hispanic Caucus, the Congressional Asian and Pacific American Caucus, and the Congressional Black Caucus also condemned the global gag rule’s expansion.

“We strongly condemn this weaponization of U.S. foreign assistance to undermine human rights and global health,” said the caucuses in a statement. “We will not rest until we ensure that our foreign aid dollars can never be used as a weapon against women, people of color, or LGBTQI+ people ever again.”

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