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New survey seeks updated data on trans experience

Are cultural changes impacting people’s lives?

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National Center for Transgender Equality, gay news, Washington Blade
National Center for Transgender Equality, gay news, Washington Blade

Executive Director of the National Center for Transgender Equality Mara Keisling (Washington Blade photo by Michael Key)

Amid increased transgender visibility and pro-trans policy changes at the federal level, a leading transgender advocacy group is seeking to recreate an influential survey to monitor developments in the trans experience.

Four years ago, the questionnaire — titled “Injustice at Every Turn” and jointly organized by the National Center for Transgender Equality and the National LGBTQ Task Force — was the most extensive survey ever taken of the transgender community and found widespread anti-trans discrimination.

Mara Keisling, executive director of the National Center for Transgender Equality, said her organization is renewing the survey to obtain updated data years later.

“The survey data is used by all activists, almost all journalists, so we wanted everybody to have the most up-to-date data,” Keisling said.

According to NCTE, as of Friday, a total of 12,000 people have committed online to taking the survey — almost double the 6,400 who took the 2011 survey. Keisling said she doesn’t have a goal in mind for the new survey other than an increased number of respondents and outreach to populations such as seniors and people of color. Transgender people can register here to take the survey, which will be online Aug. 19.

“Honestly, we want to see if things are improving,” Keisling said. “It’s been five years. There seems to have been a lot of cultural and policy movement, and we want to see if that’s impacting people’s lives.”

Among the findings of the survey in 2011: Transgender people faced double the rate of unemployment, nine-in-10 say they experienced harassment or discrimination on the job and 19 percent said they were refused housing because of their gender identity.

Many of the questions in the new survey would be the same, but others will be added for more complete data on the trans experience. For example, one question on the 2011 survey found 41 percent of respondents reported attempting suicide and another found one-fifth experienced homelessness at some point in their lives. The updated survey will include follow-up questions on whether these incidents of suicide and homelessness occurred in the past year for more accurate data.

Another new change is redirecting those who complete the survey, which will be anonymous, to a form allowing them share personal stories of anti-trans discrimination. The intent is to add the sense of personal experience for potential use in advocacy work at a later time.

Keisling said the personal story option portion of the survey will add to efforts for advocacy on transgender rights not just on Capitol Hill, but in state capitols and media situations.

“Everybody can opt out of that if they want, but it’s just really important for advocacy to be able to tell real people stories and to be able to find individuals who can come forward and tell their own stories,” Keisling said.

In 2011, the transgender survey was a co-project of NCTE and what is now the National LGBTQ Task Force. This time around, the Task Force has stepped aside to keep the project within NCTE.

Rea Carey, executive director of the Task Force, said in a statement to the Blade her organization is excited about the survey and supporting the launch, but opted to leave it to NCTE.

“Together, the National LGBTQ Task Force and NCTE agreed that NCTE would be the sole producer of the report this year and we look forward to seeing the results,” Carey said. “Like our work together on Injustice at Every Turn, NCTE, the National LGBTQ Task Force, and our movement will be able to use the data to continue to make the case for increased attention to the needs of all transgender people.”

Also contributing to the research team for the survey is Jody Herman, scholar of public policy at the Williams Institute, University of California, Los Angeles. As a consultant to the project, she’s working on survey question design to ensure it’s on par with federal surveys and will help with analysis once data is gathered.

“We’re going to design a public use data set so the data can be made available to other organizations or researchers, academics, so they conduct their own research with the data set, so I’m hoping it’ll fuel another wave of research about transgender people,” Herman said.

One reason for renewing the survey is the lack of information on transgender people in the American population at the federal level. Although the Department of Health & Human Services has included sexual orientation questions in health surveys, questions about gender identity have not been included.

Keisling said most information about groups of people in the United States comes from federal government initiatives, which she called “the gold standard for data,” but she said information is lacking for LGBT people.

“One of the most disappointing things about the federal government currently, and there has been so much progress on LGBT issues in the Obama administration…but still we do not have the federal government data for trans people, or even gay, bi people, or just queer people in general,” Keisling said. “We just don’t have them studying us as they should be yet. We’re going to keep pushing for that, but until then, we’re going to have to be collecting our own data.”

It seems unlikely a transgender-related question will be added to the questionnaire the U.S. Census Bureau distributes every 10 years and anticipated in 2020 because that survey will be reduced to a short form. Instead, transgender advocates are pushing for inclusion in the American Community Survey, the annual survey with more extensive questions.

Keisling said there are dozens of other surveys to which LGBT questions could be added, including many conducted by the Department of Health & Human Services. The best way to look at the issue, Keisling said, is through agencies. Just last week, she said she had a meeting with the Bureau of Justice Statistics within the Justice Department.

“There’s the Bureau of Labor Statistics, there’s the National Center for Health Statistics, there are just so many, and there’s just a very small few now that are beginning to count LGBT people,” Keisling said.

Jamal Brown, a spokesperson for the White House Office of Management & Budget, responded by saying policymakers for years have collected data on LGBT populations, but acknowledged more work remains.

“LGBT people are not uniform, with experiences shaped by a diversity of factors including age, race, gender, socioeconomic background, education, and disability,” the spokesperson said. “And without improved data, there’s no way to adequately describe these differences and what they mean for LGBT Americans.”

But Brown said an interagency review is underway to evaluate federal data gathering for LGBT people and “develop recommendations that will inform federal statistics in the future.” The White House Office of Information and Regulatory Affairs held its first interagency meeting on the issue April 9.

Once the data from the latest transgender survey is obtained, Keisling said she expects it to show where anti-trans discrimination exists and that it will help lead the way to fixing it.

“But we’re also going to disseminate the information to the state LGBT groups, to local HIV service organizations, the federal government probably will use the survey in different ways and the media, which has become such an important public education around trans issues, will be no doubt using the survey,” Keisling said.

Keisling said much like the 2011 questionnaire, she predicts the survey will reveal the problems facing transgender people are compounded when they’re part of racial minority groups because of persistent racism.

For example, the 2011 survey found black transgender people live in a significantly higher rate of poverty. Thirty-four percent reported a household income of less than $10,000 a year. That’s more than twice the rate for transgender people of all races (15 percent), four times the general black population rate (9 percent) and more than eight times the general U.S. population rate (4 percent).

But Keisling said the data from the updated survey will “absolutely” be a tool to help ameliorate those compounded problems going forward.

“When you’re trying to move forward, it’s important to understand where you are and which moves forward are the most urgently needed, and this survey will really help with that,” Keisling said.

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New York

Men convicted of murdering two men in NYC gay bar drugging scheme sentenced

One of the victims, John Umberger, was D.C. political consultant

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(Washington Blade photo by Michael K. Lavers)

A New York judge on Wednesday sentenced three men convicted of killing a D.C. political consultant and another man who they targeted at gay bars in Manhattan.

NBC New York notes a jury in February convicted Jayqwan Hamilton, Jacob Barroso, and Robert DeMaio of murder, robbery, and conspiracy in relation to druggings and robberies that targeted gay bars in Manhattan from March 2021 to June 2022.

John Umberger, a 33-year-old political consultant from D.C., and Julio Ramirez, a 25-year-old social worker, died. Prosecutors said Hamilton, Barroso, and DeMaio targeted three other men at gay bars.

The jury convicted Hamilton and DeMaio of murdering Umberger. State Supreme Court Judge Felicia Mennin sentenced Hamilton and DeMaio to 40 years to life in prison.

Barroso, who was convicted of killing Ramirez, received a 20 years to life sentence.

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National

Medical groups file lawsuit over Trump deletion of health information

Crucial datasets included LGBTQ, HIV resources

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HHS Secretary Robert F. Kennedy Jr. is named as a defendant in the lawsuit. (Washington Blade photo by Michael Key)

Nine private medical and public health advocacy organizations, including two from D.C., filed a lawsuit on May 20 in federal court in Seattle challenging what it calls the U.S. Department of Health and Human Services’s illegal deletion of dozens or more of its webpages containing health related information, including HIV information.

The lawsuit, filed in the United States District Court for the Western District of Washington, names as defendants Robert F. Kennedy Jr., secretary of the Department of Health and Human Services (HHS) and HHS itself, and several agencies operating under HHS and its directors, including the Centers for Disease Control and Prevention, the National Institutes of Health, and the Food and Drug Administration.

“This action challenges the widespread deletion of public health resources from federal agencies,” the lawsuit states. “Dozens (if not more) of taxpayer-funded webpages, databases, and other crucial resources have vanished since January 20, 2025, leaving doctors, nurses, researchers, and the public scrambling for information,” it says.

 “These actions have undermined the longstanding, congressionally mandated regime; irreparably harmed Plaintiffs and others who rely on these federal resources; and put the nation’s public health infrastructure in unnecessary jeopardy,” the lawsuit continues.

It adds, “The removal of public health resources was apparently prompted by two recent executive orders – one focused on ‘gender ideology’ and the other targeting diversity, equity, and inclusion (‘DEI’) programs. Defendants implemented these executive orders in a haphazard manner that resulted in the deletion (inadvertent or otherwise) of health-related websites and databases, including information related to pregnancy risks, public health datasets, information about opioid-use disorder, and many other valuable resources.”

 The lawsuit does not mention that it was President Donald Trump who issued the two executive orders in question. 

A White House spokesperson couldn’t immediately be reached for comment on the lawsuit. 

While not mentioning Trump by name, the lawsuit names as defendants in addition to HHS Secretary Robert Kennedy Jr., Matthew Buzzelli, acting director of the Centers for Disease Control and Prevention; Jay Bhattacharya, director of the National Institutes of Health; Martin Makary, commissioner of the Food and Drug Administration; Thomas Engels, administrator of the Health Resources and Services Administration; and Charles Ezell, acting director of the Office of Personnel Management. 

The 44-page lawsuit complaint includes an addendum with a chart showing the titles or descriptions of 49 “affected resource” website pages that it says were deleted because of the executive orders. The chart shows that just four of the sites were restored after initially being deleted.

 Of the 49 sites, 15 addressed LGBTQ-related health issues and six others addressed HIV issues, according to the chart.   

“The unannounced and unprecedented deletion of these federal webpages and datasets came as a shock to the medical and scientific communities, which had come to rely on them to monitor and respond to disease outbreaks, assist physicians and other clinicians in daily care, and inform the public about a wide range of healthcare issues,” the lawsuit states.

 “Health professionals, nonprofit organizations, and state and local authorities used the websites and datasets daily in care for their patients, to provide resources to their communities, and promote public health,” it says. 

Jose Zuniga, president and CEO of the International Association of Providers of AIDS Care (IAPAC), one of the organizations that signed on as a plaintiff in the lawsuit, said in a statement that the deleted information from the HHS websites “includes essential information about LGBTQ+ health, gender and reproductive rights, clinical trial data, Mpox and other vaccine guidance and HIV prevention resources.”

 Zuniga added, “IAPAC champions evidence-based, data-informed HIV responses and we reject ideologically driven efforts that undermine public health and erase marginalized communities.”

Lisa Amore, a spokesperson for Whitman-Walker Health, D.C.’s largest LGBTQ supportive health services provider, also expressed concern about the potential impact of the HHS website deletions.

 “As the region’s leader in HIV care and prevention, Whitman-Walker Health relies on scientific data to help us drive our resources and measure our successes,” Amore said in response to a request for comment from  the Washington Blade. 

“The District of Columbia has made great strides in the fight against HIV,” Amore said. “But the removal of public facing information from the HHS website makes our collective work much harder and will set HIV care and prevention backward,” she said. 

The lawsuit calls on the court to issue a declaratory judgement that the “deletion of public health webpages and resources is unlawful and invalid” and to issue a preliminary or permanent injunction ordering government officials named as defendants in the lawsuit “to restore the public health webpages and resources that have been deleted and to maintain their web domains in accordance with their statutory duties.”

It also calls on the court to require defendant government officials to “file a status report with the Court within twenty-four hours of entry of a preliminary injunction, and at regular intervals, thereafter, confirming compliance with these orders.”

The health organizations that joined the lawsuit as plaintiffs include the Washington State Medical Association, Washington State Nurses Association, Washington Chapter of the American Academy of Pediatrics, Academy Health, Association of Nurses in AIDS Care, Fast-Track Cities Institute, International Association of Providers of AIDS Care, National LGBT Cancer Network, and Vermont Medical Society. 

The Fast-Track Cities Institute and International Association of Providers of AIDS Care are based in D.C.

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U.S. Federal Courts

Federal judge scraps trans-inclusive workplace discrimination protections

Ruling appears to contradict US Supreme Court precedent

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Judge Matthew Kacsmaryk of the U.S. District Court for the Northern District of Texas (Screen capture: YouTube)

Judge Matthew Kacsmaryk of the U.S. District Court for the Northern District of Texas has struck down guidelines by the U.S. Equal Employment Opportunity Commission designed to protect against workplace harassment based on gender identity and sexual orientation.

The EEOC in April 2024 updated its guidelines to comply with the U.S. Supreme Court’s ruling in Bostock v. Clayton County (2020), which determined that discrimination against transgender people constituted sex-based discrimination as proscribed under Title VII of the Civil Rights Act of 1964.

To ensure compliance with the law, the agency recommended that employers honor their employees’ preferred pronouns while granting them access to bathrooms and allowing them to wear dress code-compliant clothing that aligns with their gender identities.

While the the guidelines are not legally binding, Kacsmaryk ruled that their issuance created “mandatory standards” exceeding the EEOC’s statutory authority that were “inconsistent with the text, history, and tradition of Title VII and recent Supreme Court precedent.”

“Title VII does not require employers or courts to blind themselves to the biological differences between men and women,” he wrote in the opinion.

The case, which was brought by the conservative think tank behind Project 2025, the Heritage Foundation, presents the greatest setback for LGBTQ inclusive workplace protections since President Donald Trump’s issuance of an executive order on the first day of his second term directing U.S. federal agencies to recognize only two genders as determined by birth sex.

Last month, top Democrats from both chambers of Congress reintroduced the Equality Act, which would codify LGBTQ-inclusive protections against discrimination into federal law, covering employment as well as areas like housing and jury service.

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