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Another Black man found dead in Ed Buck’s WeHo apartment

Raises questions and begs for clarity

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Ed Buck’s apartment complex in West Hollywood (Photo by Karen Ocamb)

When the news first hit early Monday morning, it sounded tragically familiar and frightening: a source alerted a Los Angeles Blade freelancer that Los Angeles County Sheriff’s Homicide investigators, along with Medical Examiner personnel from the County Coroner’s office, were on the scene at 1234 N. Laurel Ave. in West Hollywood investigating the death of a young black male.

That was Ed Buck’s apartment, site of the apparent overdose death on July 27, 2017 of Gemmel Moore, a 26-year old Black male escort who had been a frequent visitor to Buck’s apartment and, through his discovered journal, posthumously claimed Buck hooked him on crystal meth as part of a sexual predilection.

“It is suspicious that this has happened twice now,” L.A. County Sheriff’s Lt. Derrick Alfred told KTLA Monday afternoon, Jan. 7.  But, KTLA added, “Buck is currently not considered a suspect and not in custody, officials said.”

“Currently” perhaps being the word that might catch the eye of those who still angrily believe that Moore’s case was treated differently than if the dead person in Buck’s apartment had been white and Buck had been African American.

Moore’s mother and community activists believed Buck had injected Gemmel with the drugs that killed him, making his death a homicide. But the gruesome Coroner’s report ruled the death an accidental overdose and the case was eventually dismissed by the LA County District Attorney for lack of evidence “beyond a reasonable doubt.”

Though the initial investigators questioned Buck’s neighbors and confirmed his penchant for young Black men, the Coroner ruled Moore’s death accidental and there was nothing to directly tie Buck to Moore’s overdose. That prompted calls of racism.

“If that incident had occurred in my home, the police would have kicked down my door, guns drawn and had me in handcuffs. There’s no doubt about it. That’s how it goes,” Jeffrey King, executive director of In The Meantime Men told the Los Angeles Blade after Moore’s death.

Ed Buck

“That’s part of the bigger issue here. That guy [Buck] was treated like a respectable citizen. But a drug-related accident occurred in a man’s house. He should have been taken down to the station and questioned, at minimum. This is a matter of race on a minimum level. The value of this kid’s life is not the same as a prominent person’s child—he would have been handled different. The police would have been relentless; the DA would have been relentless; the whole system would have been relentless,” King said.

That’s why the chaos that resulted from the second death in Ed Buck’s apartment is so shocking: from very early Monday morning to very late Monday night, despite urgent calls and pleas for accurate information, several levels of the LA Sheriff’s Department stonewalled and stymied press inquiries as well as community members—thus allowing misinformation to dominate the fevered discussions. Surely someone in the Sheriff’s Department remembered the outcry over Moore’s death. Surely someone realized the indignity silence conferred on the second Black man to die in Ed Buck’s apartment in 18 months. Surely someone would react publicly as if this was a hate crime in West Hollywood. But, no.

One easy to convey piece of information that was withheld from the public: the victim was a black man in his mid-50s. In the information vacuum, the community passed along the inaccurate news provided by that first tipster and some of Buck’s neighbors that this death was essentially another Gemmel Moore.

Ed Buck’s apartment complex front door. (Photo by Troy Masters)

One unidentified neighbor interviewed by KTLA said she was out walking her dog around 12:15am when she saw a young black man go into Buck’s apartment. She then saw an older Black man, a “huge gentleman,” go into Buck’s apartment but she didn’t see either of them come out. She called the man’s death a “tragedy.”

Most reports from neighbors indicated that Sheriff’s deputies were on the scene around 3:15am. But Alfred told the Los Angeles Blade that a sheriff’s deputy and paramedics arrived at Buck’s apartment shortly before 1:00am after a 911 call of a person not breathing. The caller was the other person in the apartment—Ed Buck—who performed CPR on the man and called 911 when he was unsuccessful. The Fire Department pronounced the man dead at the scene.

Alfred said they do not yet have a positive identification from the Coroner’s office. However, the man is believed to be “a male Black adult, who is approximately 55 years old, if it’s the person we think it is, the person is definitely in his mid-50s.”

Gemmel Moore Photo via Facebook

Was there any evidence to indicate this death was in any way drug-related? In the Gemmel Moore case the coroner’s report noted “24 syringes with brown residue, five glass pipes with white residue and burn marks, a plastic straw with possible white residue, clear plastic bags with white powdery residue and a clear plastic bag with a ‘piece of crystal-like substance,’” according to the LA Times. 

“We’re not going to comment on the conditions we found at the time until it’s fully investigated,” Alfred said. However, “there were no obvious indicators of what may have caused the death. So at this time we don’t know. We won’t know until we hear from the Coroner’s office after they conduct a post-mortem exam, which would include any toxicology testing that would give us an indication of whether it was drug-related.”

So what happened in the roughly hour and a half between the first and second responses? What happened to the third person in the room, the young Black man the neighbor saw enter Buck’s apartment?

“I personally have no knowledge of that,” Alfred said. “I know the investigators canvassed the apartment complex—they’ll probably go back to try to talk to the neighbors to try to get those statements. We’ll review the information and probably reach out to that person who provided that but to our knowledge there was only the two people in the apartment at the time.”

Lt. Derrick Alfred talking to KTLA (screen grab)

Alfred said he would not comment on any statements that were made by Buck to investigators.

Buck’s attorney, Seymour Amster, showed up outside Buck’s apartment to talk to reporters. He told KTLA that the man at Buck’s home “had already been partying … and already taken some substances” when he arrived. Amster asserted that Buck had been in the shower for some of the time between the man’s arrival and death and that Buck had not taken any substances with him.

“The individual was exhibiting bizarre behavior,” Amster said of the dead man.

“From what I know, it was an old friend who died of an accidental overdose, and unfortunately, we believe that the substance was ingested at some place other than the apartment,” Amster told the Los Angeles Times. “The person came over intoxicated.”

When Alfred returned the Los Angeles Blade’s calls in the late afternoon, he said he was not aware that the community was responding with anger and heartbreak throughout the day, thinking a second young man had died like Gemmel Moore.

But it was a day gripped by anger, stirred by silence, disrespect and lack of or misinformation.

After the Los Angeles Blade’s freelancer reached out to Det. Rodriguez in the morning, the Blade’s news editor drove to Buck’s apartment, left a message, then drove to the West Hollywood Sheriff’s station seeking answers. The Blade asked West Hollywood Watch Commander Sgt. S. Hewitt to please confirm or clarify the timeline since that station no doubt responded to the 911 call. Though explicitly informed that West Hollywood residents were concerned about two similar deaths at this apartment, Hewitt would only say that Homicide was handling the incident, catching herself mid-eye roll when the Blade persisted with questions and the answer was always the same.

In The Meantime Men’s Jeffrey King was among those angered by being stonewalled and disrespect at several levels of the Sheriff’s Department.

“I got several calls, text messages, and messages through Facebook asking what does “In the Meantime intend to do?” King told the Los Angeles Blade late Monday. “ I thought it was important to first find out the facts before I do something. I wanted to know what I was talking about.”

King says he was met with “disrespect, impatience, and lack of willingness to address the concerns I addressed that were community concerns.” When he finally spoke with two people at Homicide, he and the lead detective had a “fairly decent conversation going,” but he still couldn’t confirm or give out information.

“One more time here is a black person—forget his age—being found dead in this man’s apartment. And his death is not being addressed properly. Our community is not being respected. No one is saying anything to the family. There is no dignity to the lives of these individuals and it’s because they’re Black.”

The Homicide official who first responded to several calls from the Los Angeles Blade said there was no homicide investigation and that Homicide detectives routinely roll out for death investigations. He said LASD press relations would issue a statement and forwarded several Blade calls to Alfred, which went to voicemail. The Sheriff’s press person, while trying to be nice and polite, at first had no knowledge of the incident. She finally said a press release was being cleared by “the administration” and would be sent out when completed.  But the Sheriff’s News Room site was impossible to search for press releases.

Meanwhile, the Los Angeles Blade contacted the City and members of the West Hollywood City Council for comment—hoping the Sheriff’s Department was at least telling them the facts of what happened.

The City of West Hollywood has requested “a full investigation” by the Sheriff’s Department, a press release stated.

WeHo Mayor John Duran said he would not comment and is leaving the matter in the hands of the sheriffs and District Attorney

Councilmember Lauren Meister’s response illustrates the misinformation that was circulating throughout the day. “This is tragic,” Meister told Los Angeles Blade. “My heartfelt sympathies go out to the family and friends of this young man.” However, she says she has “discussed with our City Manager and Public Safety Director this morning — the Los Angeles Sheriff’s Department and the District Attorney must provide a thorough investigation into the circumstances of this incident and any similarities to prior incidents at the same location.”

Councilmember John D’Amico said he was not going to comment, but added some information. “I asked the city manager to contact Sheriff Villanueva’s office first thing this morning and I’m going to let the DA and LASD do their jobs,” he wrote. “Mr. Buck made donations in 2011 and 2014, $1,000 total, those dollars were spent on those campaigns and the campaign accounts were closed years ago.  Keith and I have made donations many times that amount every year to social service agencies that help with sobriety, HIV AIDS, mental health and homelessness. I thought that a better use of the money than returning it to Mr. Buck.”

KTLA got Alfred on camera in the afternoon, by chance, it turns out. When the Blade and other news outlets were staking out the apartment to no avail, KTLA stayed on and suddenly noted activity in the afternoon. Alfred later told the Los Angeles Blade that a call had come in saying someone was throwing something out the window that could be evidence in the second death so a patrol deputy and fire fighter dashed to the scene and recovered the object. He would not say what was found.

By late afternoon, news outlets were reporting the story—presumably because they still think Buck is a “wealthy prominent Democratic donor,” though he has been political kryptonite since Gemmel Moore’s death. The LA LGBT Center issued a statement around 4:30pm calling on the Sheriff to keep the public fully informed—which had not happened by then, and presuming that like Moore, the second death was also linked to drug abuse:

“The Los Angeles LGBT Center calls upon Los Angeles County Sheriff Alex Villanueva and his department to fully investigate this tragedy and aggressively seek justice wherever the investigation might lead. “Although the investigation is in its early stages, we urge Sheriff Villanueva to keep the public fully informed as LGBT people have a considerable and urgent interest in a case that is so clearly linked to the health and safety of our community. The reports we have heard provide more questions than answers. The fact is two black men have died at Mr. Buck’s home in less than two years. “While much is still to be learned, it appears this tragedy is linked to substance use. LGBT people and other marginalized groups are at elevated risk for impacts that result from the current epidemic uses of opioids, methamphetamine, and other dangerous drugs. The Center provides free or low-cost, comprehensive, and judgment-free addiction recovery services and has a service to provide free fentanyl testing strips to those who request them. For help or more information, contact the Center’s Addiction Recovery Services at [email protected] or 323-993-7448.”

At the end of the 11-minute interview, Alfred asked for the public’s help and indicated that he is willing to reopen the Gemmel Moore case and file criminal charges with the DA, if new evidence emerges.

“We always appreciate any help we can get from the community. They may have more knowledge about this or any similar instances that occurred—or any type of activity that occurs in the area or that particular apartment. We’re always interested in finding out what’s going on,” he said, asking anyone with information to come forward.

“Our first concern for the Homicide Bureau, specifically, is to be to fully investigate the circumstances surrounding the death of this individual. Also we’re going to look into the prior incident where Gemmel Moore had died at the scene to see if there’s any similarities,” Alfred said.

“We’re just going to look at everything we have and we’re going to see where the information and evidence takes us. And if it takes us to criminal filing or if we uncover new information—although Gemmel’s case was determined to be an accidental overdose—if we learn something new and that has to be looked at a second time, then of course, we’ll take that new information and we will investigate fully.”

From there, they’ll work with the District Attorney’s office “to determine what, if any criminal activity may have occurred and if so, present it for potential filing. But we won’t know until we’re able to do a thorough exam and all the facts come in.”

Anyone with information can call the Homicide Bureau directly at 323-890-5500 and ask for Det. Q. Rodriguez or Sgt. P. Cardella. To make an anonymous tip, go through Crime Stoppers.

The “Decline to File” notice from the LA DA in the Gemmel Moore case

Finally, if the community considers Ed Buck and the alleged use of illicit drugs in his apartment to be a public menace or nuisance, Alfred suggested that the community work with the West Hollywood Sheriff’s station to find a solution akin to the “broken windows” policy of community policing.

“As it pertains to any type of public nuisance – we’ll work with West Hollywood Sheriff’s station—who could probably get the community involved—concerning these ongoing public nuisance situations,” Alfred said. He defined public nuisance as “anything that would cause quality of life for people who live in a particular area to be lessened by these ongoing criminal acts,” major or minor. “Either way, they affect those around them. Life quality is something that can be looked at in a community policing type of thing where the station can look at the assets available and pour resources into the community to try to effect change.”

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The White House

As house Democrats release Epstein photos, Garcia continues to demand DOJ transparency

Blade this week sat down with gay House Oversight Committee ranking member

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A photo released by the House Oversight Committee showing Donald Trump 's close relationship with Jeffrey Epstein . (Photo courtesy of the U.S. House Oversight Committee)

Democrats on the House Oversight Committee have released new photos from Jeffrey Epstein’s email and computer records, including images highlighting the relationship between President Donald Trump and the convicted sex offender.

Epstein, a wealthy financier, was found guilty of procuring a child for prostitution and sex trafficking, serving a 13-month prison sentence in 2008. At the time of his death in prison under mysterious circumstances, he was facing charges of sex trafficking and conspiracy to traffic minors.

Among those pictured in Epstein’s digital files are Trump, former President Bill Clinton, former Trump adviser Steve Bannon, actor and director Woody Allen, economist Larry Summers, lawyer Alan Dershowitz, entrepreneurs Richard Branson and Bill Gates, and Andrew Mountbatten-Windsor.

One photo shows Trump alongside Epstein and a woman at a Victoria’s Secret party in New York in 1997. American media outlets have published the image, while Getty Images identified the woman as model Ingrid Seynhaeve.

Oversight Committee Democrats are reviewing the full set of photos and plan to release additional images to the public in the coming days and weeks, emphasizing their commitment to protecting survivors’ identities.

With just a week left for the Justice Department to publish all files related to Epstein following the passage of the Epstein Files Transparency Act, which requires the Justice Department to release most records connected to Epstein investigations, the Washington Blade sat down with U.S. Rep. Robert Garcia (D-Calif.), the ranking member on the Oversight Committee to discuss the current push the release of more documents.

Garcia highlighted the committee’s commitment to transparency and accountability.

U.S. Rep. Robert Garcia (D-Calif.) during a sit down with the Washington Blade. (Washington Blade photo by Michael Key)

“We’ve said anything that we get we’re going to put out. We don’t care who is in the files … if you’ve harmed women and girls, then we’ve got to hold you accountable.”

He noted ongoing questions surrounding Trump’s relationship with Epstein, given their long history and the apparent break in friendship once Trump assumed public office.

“There’s been a lot of questions about … Donald Trump and Jeffrey Epstein. They were best friends for 10 years … met women there and girls.”

Prior to Trump’s presidency, it was widely reported that the two were friends who visited each other’s properties regularly. Additional reporting shows they socialized frequently throughout the 1990s and early 2000s, attending parties at Trump’s Mar-a-Lago resort in Florida and Epstein’s residences. Flight logs from an associate’s trial indicate Trump flew on Epstein’s private jet multiple times, and Epstein claimed Trump first had sex with his future wife, Melania Knauss, aboard the jet.

“We’ve provided evidence … [that leads to] questions about what the relationship was like between Donald Trump and Jeffrey Epstein.”

Garcia stressed the need for answers regarding the White House’s role in withholding information, questioning the sudden change in attitude toward releasing the files given Trump’s campaign promises.

“Why is the White House trying to cover this up? So if he’s not covering for himself … he’s covering up for his rich friends,” Garcia said. “Why the cover up? Who are you hiding for? I think that’s the question.”

He confirmed that Trump is definitively in the Epstein files, though the extent remains unknown, but will be uncovered soon.

“We know that Trump’s in them. Yeah, he’s been told. We know that Trump’s in them in some way. As far as the extent of it … we don’t know.”

Garcia emphasized accountability for all powerful figures implicated, regardless of financial status, political party, or personal connections.

“All these powerful men that are walking around right now … after abusing, in some cases, 14‑ and 15‑year‑old girls, they have to be held accountable,” he said. “There has to be justice for those survivors and the American public deserves the truth about who was involved in that.”

He added that while he is the ranking member, he will ensure the oversight committee will use all available political tools, including subpoenas — potentially even for the president. 

“We want to subpoena anyone that we can … everyone’s kind of on the table.”

He also emphasized accountability for all powerful figures implicated, regardless of financial status, political party, or relationship with the president.

“For me, they’re about justice and doing the right thing,” Garcia said. “This is about women who … were girls and children when they were being abused, trafficked, in some cases, raped. And these women deserve justice.”

“The survivors are strong.”

Deputy White House Press Secretary Abigail Jackson issued a statement regarding the release the photos, echoing previous comments from Republicans on the timing and framing of the photos by the Oversight Committee.

“Once again, House Democrats are selectively releasing cherry-picked photos with random redactions to try and create a false narrative,” Jackson said.

“The Democrat hoax against President Trump has been repeatedly debunked and the Trump administration has done more for Epstein’s victims than Democrats ever have by repeatedly calling for transparency, releasing thousands of pages of documents, and calling for further investigations into Epstein’s Democrat friends,”

In a press release on Friday, Garcia called for immediate DOJ action:

“It is time to end this White House cover-up and bring justice to the survivors of Jeffrey Epstein and his powerful friends. These disturbing photos raise even more questions about Epstein and his relationships with some of the most powerful men in the world. We will not rest until the American people get the truth. The Department of Justice must release all the files, NOW.”

Steve Bannon and Jeffrey Epstein in Epstein Files photo. (Photo courtesy of the U.S. House Oversight Committee)
Trump in another photo from Epstein’s digital files. (Photo courtesy of the U.S. House Oversight Committee)
(Photo courtesy of the U.S. House Oversight Committee)
Bill Gates and Andrew Montbatton-Windsor in Epstein Files photo. (Photo courtesy of the U.S. House Oversight Committee)
Bill Clinton and Ghislaine Maxwell and Jeffrey Epstein in Epstein Files photo.
(Photo courtesy of the U.S. House Oversight Committee)

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The White House

White House deadnames highest-ranking transgender official

Rachel Levine’s portrait altered at HHS

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Adm. Rachel Levine speaks at the International LGBTQ Leaders Conference on Dec. 2, 2021. (Washington Blade photo by Michael Key)

Admiral Rachel Levine — the first transgender person ever confirmed by the U.S. Senate and the highest-ranking trans official in American history — had her official portrait in the Humphrey Building altered, with staff replacing her correct name with her deadname, the name she has not used since 2011.

NPR first reported the change, and an HHS spokesperson confirmed to the outlet that Levine’s portrait had recently been altered. A digital photograph obtained by NPR shows Levine’s former (male) name typed on a placard beneath the portrait, placed under the glass of the frame.

Levine served as a four-star admiral in the U.S. Public Health Service Commissioned Corps under the Biden-Harris administration and was appointed the 17th assistant secretary for health.

During her tenure, Levine oversaw the Commissioned Corps and helped lead national public-health initiatives, including the federal COVID-19 response and vaccination strategy; efforts to address rising syphilis infection rates; HIV/AIDS prevention and treatment programs; and strategies to combat the opioid epidemic, particularly through expanded harm-reduction approaches for the communities most affected.

The Trump-Vance administration’s decision to publicly deadname Levine is widely viewed within the trans community as demeaning and disrespectful. The move comes amid a series of federal policy reversals targeting LGBTQ Americans, particularly trans youth seeking gender-affirming care.

Those actions include: weakening workplace protections for LGBTQ employees; limiting restroom access; downgrading gender-identity discrimination cases; pressuring hospitals to end gender-affirming care; cutting HIV research and prevention funding; removing LGBTQ crisis resources; restricting access to trans-inclusive medical policies for veterans and young people; supporting trans sports bans and threatening funding for teams that include trans athletes; and forcing schools and universities to eliminate DEI and LGBTQ offices, inclusive curricula, gender-neutral bathrooms, and books or training materials addressing LGBTQ issues.

The Trump–Vance administration has also expanded federal censorship by removing LGBTQ language from surveys, agency websites, Smithsonian materials, and human-rights reports; blocking Pride recognitions; creating federal communications that misgender trans women; imposing passport and travel barriers for trans Americans; lifting protections for trans service members; limiting benefits and care for LGBTQ veterans; and pressuring states, universities, and hospitals to end trans-inclusive policies under threat of losing federal research, education, or Medicaid funds. The administration has additionally deported LGBTQ asylum seekers to unsafe conditions, removed LGBTQ issues from global human-rights reporting, and escalated anti-trans rhetoric at public events.

These actions stand in stark contrast to Levine’s public-health record. As assistant secretary for health, she worked to expand LGBTQ+ health data collection, promote equitable vaccine distribution, strengthen national health-equity initiatives, and reduce care disparities experienced by historically underserved communities, including LGBTQ populations. Within HHS, she led councils and task forces dedicated to reducing structural barriers to care and improving community outcomes.

Before joining the federal government, Levine oversaw health and safety for nearly 13 million residents as Pennsylvania’s physician general from 2015–2017 and as Pennsylvania secretary of health from 2018–2021.

Rachel Levine‘s official portrait, which now bears her deadname. (Photo public domain)

Asked by NPR about the alteration of her official portrait, Levine responded that it had been an honor to serve as assistant secretary for health, adding: “I’m not going to comment on this type of petty action.”

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Health

The harsh truth about HIV phobia in gay dating

HIV and stigma remain baked into queer dating culture

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(Photo by Val Chaparro for Uncloseted Media)

Uncloseted Media published this article on Dec. 9.

This story was produced with the support of MISTR, a telehealth platform offering free online access to PrEP, DoxyPEP, STI testing, Hepatitis C testing and treatment and long-term HIV care across the U.S. MISTR did not have any editorial input into the content of this story.

By SAM DONNDELINGER | In his room, 19-year-old Cody Nester toggles between Grindr profiles on his phone.

As he senses chemistry with a match, he knows he has to flag something that could be a deal breaker.

“Did you see on my profile that I’m HIV positive?” he writes.

The reply arrives instantly.

“You’re disgusting. I don’t know why you’re on here.” Seconds later, the profile disappears, suggesting Nester is blocked.

“He went out of his way to say that. People could at least be more aware, ask questions, and understand the reality [of living with HIV] instead of attacking us,” Nester told Uncloseted Media.

“I would say 95 percent of people respond that way,” says Nester, who lives in Hollywood, Fla., and works at a Mexican restaurant. “The entire conversation is going fine. They’re down to meet up and then right when I mention [HIV], it’s always, ‘Oh no, never mind.’”

Some other messages he’s received include:

“You’ll never get anything in your life.”
“Why don’t you die?”
“Why are you on here?”

More often, it’s silence, a cold “No” or a sudden block.

“It’s like you’re a white fish in a school of black fish,” he says. “You’re immediately the odd one out.”

Even though Nester’s undetectable status makes it impossible for him to transmit HIV to partners during sex, he experiences stigma around HIV, something which nearly 90 percent of Americans agree still exists, according to a 2022 GLAAD report. And a survey shared in 2019 found that 64 percent of respondents would feel uncomfortable having sex with someone living with HIV, even on effective treatment. The emotional cost of this stigma is a significant barrier to intimacy and can result in a loss of self-esteem, fear of disclosure and suicidal thoughts.

What the science says — and why it doesn’t seem to matter

“The fear comes from antiquated ideas around HIV,” says Xavier A. Erguera, senior clinical research coordinator at University of California, San Francisco,’s Division of HIV, Infectious Diseases & Global Medicine. “A lot of people who are newly diagnosed still fear it’s a death sentence. Even though we have medications now to treat it effectively, and it’s basically a chronic condition, people haven’t caught up.”

Since 1996, antiretroviral therapies have developed to where they can suppress the virus to levels so low that it is undetectable in the blood, and thus not able to be transmitted to sexual partners. This is known as Undetectable = Untransmittable, or U=U. According to a Centers for Disease Control and Prevention report from 2024, 65 percent of HIV-positive cases are virally suppressed.

Another line of defense is pre-exposure prophylaxis (PrEP), which reduces the risk of acquiring HIV from sexual intercourse by roughly 99 percent when taken as prescribed. Approved by the Food and Drug Administration in 2012, the medication launched as a once-a-day pill and was hailed as a breakthrough as it transformed the sex lives of gay men, which had been shaped by decades of fear about HIV complications and about where AIDS came from.

“Internal logic doesn’t reflect what we know scientifically,” says Kim Koester, associate professor in the Department of Medicine at UCSF. “I was very optimistic when PrEP came out. The drug works, so why wouldn’t everyone use it?”

Even with PrEP use on the rise, less than 600,000 Americans used it in 2024, and Koester says skepticism and judgments about taking the drug persist.

“The phobia is pervasive,” Koester told Uncloseted Media. “People believe that others get the disease because of their lifestyle. … PrEP was supposed to be the antidote to the threat of HIV, reduce the anxiety, and make you more open to who you are and the sex you want. It’s supposed to be liberating. It is part of the answer. But it’s not enough. We don’t have enough people using PrEP for it to make the dent in the stigma we need.”

According to a 2023 study of seven informants living with HIV, public stigma stems from problematic views from society that those living with HIV are “a dangerous transmission source,” “disgraceful” and “violators of social and religious norms who have committed deviant behavior.”

Laramie Smith, assistant professor of Global Public Health at the University of California, San Diego, says this stigma is unwarranted and fueled by misunderstanding:

“With today’s treatments, it shouldn’t be a life-altering identity shift. It should be no different than, ‘I have diabetes.’ If you’re virally suppressed, it shouldn’t matter whether you’re friends with someone, whether you’re sleeping with someone — the science shows us that.”

How HIV phobia shows up online

Nester, who contracted HIV last year from a Grindr hook-up who insisted he was negative, says he is just starting to accept his diagnosis. “I didn’t go back on the apps for a long time after that. It messed with my mental health … realizing I’d have to take medication for the rest of my life.”

Since he started dating again this year, returning to apps like Grindr and Sniffies, he has faced a new normal. He tries to do everything “right” and disclose his status early. Even on his Grindr profile, he identifies as “poz,” slang for HIV-positive.

Still, he says most people ghost him once they find out. “The second I bring it up, it’s ‘No,’” says Nester. “The amount of discrimination you get … it’s always the same pattern. … People don’t know, and they don’t want to know. It messes with you.”

This discrimination may be fueled by a deprioritization of HIV awareness programs across the country. Earlier this month, the U.S. State Department did not commemorate World AIDS Day for the first time in 37 years. HIV prevention programs have been slashed, especially in conservative districts, and only 25 states and D.C. require both HIV and sex education. In many states, health curricula often lag behind current science and omit teaching about PrEP, gay sex and concepts like U=U. Research shows that Gen Z is currently the least educated generation about HIV.

“I could go all day explaining HIV, but people don’t want to listen,” says Nester, who is part of Gen Z. “People don’t want to learn about it; they just want to avoid it.”

HIV anxiety and public stigma shaped by history

Even in more progressive areas, stigma still exists. Damian Jack, a 45-year-old from Brooklyn, remembers sitting in an exam room in 2009 as a doctor explained how low his T-cell count was, which is a hallmark of HIV infection.

“I started hysterically crying,” he told Uncloseted Media. “HIV meant death. That’s what I thought.”

In 1981, when Jack was 1 year old, the first reports of a mysterious and deadly immune deficiency syndrome, which would later be named AIDS, appeared in the U.S. Growing up, Jack saw countless terrifying images of men on their deathbeds with Kaposi sarcoma, the purple lesions the media once called “gay cancer.” Public misinformation and fearmongering spread ideas that AIDS was a disease that “only gay men and drug users get.” And politicians often equated it with homosexuality and moral failure, calling it a “gay plague.” It wasn’t until September 1985, four years after the crisis began and thousands had died, that President Ronald Reagan first publicly mentioned AIDS.

Decades later, the emotional residue of that era and the shame associated with the virus lingers.

Hours after learning of his diagnosis, Jack faced his first encounter with rejection. He already had a date planned that night, and his doctor and friends encouraged him to go.

They had a great time until the date asked him: “Are you negative or positive?”

He told the truth.

“It was just understood there wouldn’t be a second date,” says Jack. “I remember thinking, ‘This is how dating is going to be now.’ I felt so anxious telling guys. It followed me everywhere. I don’t think that anxiety ever truly goes away.”

The emotional impact of HIV stigma

For those who are HIV-negative, experts say that “stigma’s whole design is to ‘other.’”

“The ‘us versus them’ creates that false sense of safety when it comes to HIV,” says Smith. “If I can believe that someone did something to deserve their diagnosis, and I’m not that [kind of person], then I’m safe.”

This othering is painful and can lead to shame, fear and isolation, and it is linked to a higher risk of depression and anxiety.

“If I’m undesirable, and that’s what those messages are communicating, that threatens your sense of safety, your sense of belonging and the fundamental desire we all have to be loved,” Smith says. “And that starts to reinforce the thinking that ‘I am not worthy. This virus that I have means that I’m not lovable. I am not safe showing up among other men.’”

“I pretend it doesn’t hurt, but some things do sting a little bit,” Nester says. “You start thinking, ‘Am I really that disgusting? Am I really that singled out?’”

When public stigma turns inward

“Internalized stigma is what occurs when applying the stereotypes about who gets HIV, the prejudice, the negative feelings, onto yourself,” says Smith.

In 2024, 38 percent of people living with HIV reported internalized stigma. And studies show that it can predict hopelessness and lower quality of life, even when people are engaged in care or virally suppressed.

Internalized stigma can also affect how people practice safe sex and communicate about the virus. A 2019 survey of men who have sex with men found that individuals who perceived greater community-level stigma were less likely to be aware of — and use — safer-sex functions available on dating apps, such as HIV-status disclosure fields, as well as sexual health information and resources.

“[HIV phobia] is probably the most intense, subvert bigotry I think you could experience,” Joseph Monroe Jr., a 48-year-old living in the Bronx, told Uncloseted Media.

On dating apps, men have messaged him things like, “You look like you’ve got that thing” and “Go ahead and infect someone else.”

Monroe has also dealt with misinformed people who rudely opine about how he contracted the virus: “Who fucked you? That’s how you got it, right?” people will say to him.

“You end up internalizing all these stereotypes about who gets HIV — that you were promiscuous, that you didn’t care about yourself, that you did something wrong,” says Smith. “You carry that in, and then you have to relearn: ‘No, I didn’t. This is just a health condition.’”

What HIV acceptance looks like and raising awareness

For those living with HIV, acceptance feels far away.

“You’re living under this threat of HIV and the threat that others find you threatening. It inhabits you socially and sexually,” Koester says. “People are hunkering down. Not putting themselves out there and having a mediocre quality of life. To have a sense of empowerment, you have to be legitimate and seen in the world and it’s hard to do that with the stigma that exists.”

Researchers say the path forward lies as much in conversation as in medicine.

Koester says she talks about HIV and PrEP anywhere she can, including in salons, cafes and restaurants. “Whenever I get into a cab with someone, I’m going to bring up HIV so the driver gets accustomed to hearing about it. … We have a long way to go in terms of exposure and awareness and every little bit helps.”

Part of this lies in increasing awareness through targeted marketing campaigns. PrEP is still profoundly misunderstood outside major urban centers, with uneven uptake among minority groups and usage gaps in the Bible Belt. And a 2022 U.S. survey found that 54.5 percent of people living with HIV didn’t know what U=U meant, and less than half of Americans agree that people living with HIV who are on proper medications cannot transmit the virus.

While eradicating stigma is slow, there is hope for acceptance.

Years after Jack’s diagnosis, in 2021, he told a man he was on a third date with that he was HIV-positive but undetectable. His date’s reply was almost casual:

“Oh — is that it? I thought you were going to say you had a boyfriend or something. I’m on PrEP. You’re fine.”

“It felt so good to hear him say that and accept me,” says Jack. “I was like, ‘This is my person. You’re my person.’” One year later, they got married.

Back in Florida, 19-year-old Cody Nester isn’t feeling this acceptance. He still scrolls past profiles that read “Only negative guys” and tries to ignore the hateful messages.

“It still hurts, but I know it’s coming from fear,” he says. “I wasn’t too informed about HIV before I got it. … When I got it, I really jumped into the rabbit hole and began to learn. I really do think [HIV and stigma] is because people are not knowledgeable. … When people don’t know details, they tend to get scared.”

Additional reporting by Nandika Chatterjee.

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