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AIDS 2012: Sebelius unveils public-private collaborations to fight disease

HHS to work with MAC AIDS Fund, Walgreens, others

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Secretary of Health & Human Services Kathleen Sebelius announced four HIV/AIDS private-public initiatives Sunday. (Blade photo by Michael Key)

Health & Human Services Secretary Kathleen Sebelius announced four new public-private initiatives on Sunday night aimed at removing barriers that cause some living with HIV/AIDS within the United States to fall out of care.

Sebelius announced the projects — including a new $4.5 million multi-year project with the MAC AIDS Fund called the Care for Life Initiative — during remarks she delivered as the final speaker on the opening night of the 19th International AIDS Conference, which is being held in the United States for the first time since 1990. An estimated 25,000 are in attendance for the week-long conference in D.C.

“Perhaps the most important principle in our national strategy is one we’ve been reminded of over and over again in our response to HIV/AIDS: none of us can do this alone,” Sebelius said. “That’s why we’re making a new effort to reach to community-based organizations, businesses, foundations, NGOs, faith organizations and more.”

The Care for Life Initiative is a collaboration of the MAC AIDS fund, which was established in 1994 to support people who are living with HIV/AIDS across the world, and has three arms that aim to keep people with HIV/AIDS within care, according to a statement from the organization:

  • A $4 million partnership with AIDS United over the next three years to create an innovation fund on the both the national and regional levels to improve retention in care and treatment adherence. Geographic focuses will be determined based on need and capacity of the local providers to address that need. It will also involve an open call for proposals.
  • Working with the Health Resources and Services Administration, or HRSA, for a pilot launch of UCARE4LIFE, an evidence-based program that will employ mobile texting to improve care retention and medication adherence. With a focus on Southern states, the two-year project consists of developing a message library for delivering phone text notifications to HIV-positive individuals — in English and Spanish — regarding medical appointment reminders and taking medications.
  • MAC AIDS Fund will work with HHS and the President’s Emergency Plan for AIDS Relief to convene a meeting of international leaders in fall 2012 on leveraging global lessons on HIV care. This forum is expected to explore lessons from PEPFAR that can be applied to the United States for best practices on treatment and retention.

According to the MAC AIDS Fund, under the current system, one in two people living with HIV/AIDS in the United States falls out of care.

Nancy Mahon, global executive director of the MAC AIDS Funds, said the Care for Life Initiative is important because it uses new technologies and ideas in its outreach to people with HIV/AIDS.

“We cannot end the epidemic without breakthrough approaches that support and empower those living with HIV/AIDS to stay connected to the care and life-saving treatment they deserve,” Mahon said.

Besides the Care for Life Initiative, Sebelius also hit on the other three initiatives during her remarks. With the pharmaceutical retailer Walgreens, she announced a three-year partnership with the Centers for Disease Control to explore ways in which pharmacies can help patients stay on their medications. According to a news statement, Walgreens is supplying nearly $1 million in in-kind services for this initiative.

With Medscape, a leading provider of online continuing education for U.S. clinicians, Sebelius unveiled partnership training programs with the Centers for Medicare & Medicaid to help clinicians better understand and address HIV patients’ needs. According to a news statement, three new training modules have already been created for physicians, nurses and other medical professionals.

Finally, Sebelius announced that HHS is partnering with the eight largest AIDS drug companies — Abbot Laboratories, Boehringer Ingelheim, Bristol Myers Squibb, Gilead, Genentech, Johnson & Johnson, Merck and ViiV — to create a single application form for AIDS medications offered through their patient assistance programs.

“I want to thank all of these partners for stepping up,” Sebelius said. “And we will continue to seek out new public-private collaborations that will help us beat this disease.”

In addition to announcing the new public-private partnerships, Sebelius also revealed that the Food & Drug Administration would announce this week that more than 150 antiretroviral drugs are now available through PEPFAR.

The secretary also enumerated earlier initiatives of the Obama administration, including last week’s decision to distribute nearly $80 million to the states “to allow them to fully clear” wait lists for AIDS Drug Assistance Programs, which provide HIV/AIDS drugs to low-income people. An estimated 2,000 people nationwide had been awaiting drugs through programs.

According to a statement from HHS, around $69 million will be sent to 25 states and territories and, based on estimates provided by the states, will eliminate any waiting lists. The remaining $10 million — a portion of which was allocated by the Affordable Care Act — will be distributed to community-based health clinics nationwide to expand access for 14,000 new HIV/AIDS patients for medical and support services.

Other initiatives against HIV/AIDS under the Obama administration that Sebelius touted were recent FDA approval of an at-home HIV test and using Truvada to prevent HIV infection. Sebelius also credited the Bush administration, calling PEPFAR, which was established under the previous administration, one of “the great health success stories of the 21st century.”

“Our task now is to make it even stronger,” Sebelius said.

“Under President Obama, we’re on pace to achieve an ambitious goal of reaching an additional two million people around the world with life-saving treatment by the end of 2013. At the same time, we’re putting a renewed focus on the key ‘combination prevention’ interventions that have proven most effective in combating HIV.”

The secretary’s mention of PEPFAR received among the most applause of anything discussed that evening before an audience that included many HIV/AIDS advocates from overseas. Obama’s fiscal year 2013 budget request cuts the program by half a billion dollars, but the White House has said PEPFAR is an example of a program that is doing more with less because of the reduced cost of drugs.

Sebelius wasn’t the only public official representing the United States on the stage during the opening night of the conference. Rep. Barbara Lee (D-Calif.), a renowned LGBT and HIV/AIDS advocate, also spoke on stage to call for an end to the epidemic, observing it has had a particularly devastating impact on black Americans.

“Although AIDS has made the transition from a death sentence to a chronic disease, new infections unfortunately continue at alarming rates,” Lee said. “HIV/AIDS disproportionately affects no group of people in our country more than African Americans. Of the 1.4 million people in the United States living with HIV, nearly half are black men and women, even though blacks make up 14 percent of the population.”

Last week, Lee announced that had introduced into the U.S. House legislation called the “Ending the HIV/AIDS Epidemic Act.” The bill has 26 co-sponsors who are all Democrats and aims to establish a policy and financing framework to eliminate AIDS domestically and abroad.

The bill aims to fight HIV/AIDS by providing additional funds for programs such as the AIDS Drug Assistance Programs; addressing policy barriers to accessing prevention and care, such as encouraging condom use in prisons; and calling for a more advanced strategy overseas to end the global AIDS epidemic.

D.C. Mayor Vincent Gray (Washington Blade photo by Michael Key)

D.C. Mayor Vincent Gray also took to the stage to welcome international attendees to D.C. and talk about how HIV/AIDS has impacted the city.

“HIV/AIDS has crossed all racial, ethnic, religious and socio-economic borders,” Gray said. “It is a disease that knows no boundaries.”

According to Gray, an estimated 20,000 people in D.C. have been infected with HIV/AIDS, and 10,000 residents have died as a result of the disease.

Other speakers on Sunday were Annah Sango, a Zimbabwe advocate living with HIV who seeks visibility for female patients, World Bank President Jim Yong Kim, who said he was the first World Bank president to the address the international conference, UNAIDS Executive Director Michel Sidibé, South African Deputy President Kgalema Motlanthe and Mark Dybul, global AIDS coordinator for President George W. Bush who touted that administration’s achievements in the global AIDS fight.

The co-chairs of the conference, Elly Katabira, a Ugandan activist and president of the International AIDS Society, and Diane Havlir, chief of HIV/AIDS Division at the University of California, San Francisco, welcomed attendees to the conference. U.N. Secretary General Ban Ki-Moon prepared a video message for attendees.

Also on Sunday, the White House unveiled a video message from Obama welcoming the international attendees to the conference. The video message was prepared in lieu of a live appearance by Obama at the conference.

In the video, Obama talks about HIV/AIDS advocates’ commitment to fighting the disease and a voice-over talks about discovery of the disease in the 1980s as well as activism and scientific advances to thwart it.

Watch the video below:

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The White House

Four states to ignore new Title IX rules protecting transgender students

Biden administration last Friday released final regulations

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March for Queer and Trans Youth Autonomy in D.C. in 2023. (Washington Blade photo by Michael Key)

BY ERIN REED | Last Friday, the Biden administration released its final Title IX rules, which include protections for LGBTQ students by clarifying that Title IX forbids discrimination based on sexual orientation and gender identity. 

The rule change could have a significant impact as it would supersede bathroom bans and other discriminatory policies that have become increasingly common in Republican states within the U.S. 

As of Thursday morning, however, officials in at least four states — Oklahoma, Louisiana, Florida, and South Carolina — have directed schools to ignore the regulations, potentially setting up a federal showdown that may ultimately end up in a protracted court battle in the lead-up to the 2024 elections.

Louisiana State Superintendent of Education Cade Brumley was the first to respond, decrying the fact that the new Title IX regulations could block teachers and other students from exercising what has been dubbed by some a “right to bully” transgender students by using their old names and pronouns intentionally. 

Asserting that Title IX law does not protect trans and queer students, Brumley states that schools “should not alter policies or procedures at this time.” Critically, several courts have ruled that trans and queer students are protected by Title IX, including the 4th U.S. Circuit Court of Appeals in a recent case in West Virginia.

In South Carolina, Schools Supt. Ellen Weaver wrote in a letter that providing protections for trans and LGBTQ students under Title IX “would rescind 50 years of progress and equality of opportunity by putting girls and women at a disadvantage in the educational arena,” apparently leaving trans kids out of her definition of those who deserve progress and equality of opportunity. 

She then directed schools to ignore the new directive while waiting for court challenges. While South Carolina does not have a bathroom ban or statewide “Don’t Say Gay or Trans” law, such bills continue to be proposed in the state.

Responding to the South Carolina letter, Chase Glenn of Alliance For Full Acceptance stated, “While Supt. Weaver may not personally support the rights of LGBTQ+ students, she has the responsibility as the top school leader in our state to ensure that all students have equal rights and protections, and a safe place to learn and be themselves. The flagrant disregard shown for the Title IX rule tells me that our superintendent unfortunately does not have the best interests of all students in mind.”

Florida Education Commissioner Manny Diaz also joined in instructing schools not to implement Title IX regulations. In a letter issued to area schools, Diaz stated that the new Title IX regulations were tantamount to “gaslighting the country into believing that biological sex no longer has any meaning.” 

Governor Ron DeSantis approved of the letter and stated that Florida “will not comply.” Florida has notably been the site of some of the most viciously anti-queer and anti-trans legislation in recent history, including a “Don’t Say Gay or Trans” law that was used to force a trans female teacher to go by “Mr.”

State Education Supt. Ryan Walters of Oklahoma was the latest to echo similar sentiments. Walters has recently appointed the right-wing media figure Chaya Raichik of Libs of TikTok to an advisory role “to improve school safety,” and notably, Raichik has posed proudly with papers accusing her of instigating bomb threats with her incendiary posts about LGBTQ people in classrooms.

The Title IX policies have been universally applauded by large LGBTQ rights organizations in the U.S. Lambda Legal, a key figure in fighting anti-LGBTQ legislation nationwide, said that the regulations “clearly cover LGBTQ+ students, as well as survivors and pregnant and parenting students across race and gender identity.” The Human Rights Campaign also praised the rule, stating, “rule will be life-changing for so many LGBTQ+ youth and help ensure LGBTQ+ students can receive the same educational experience as their peers: Going to dances, safely using the restroom, and writing stories that tell the truth about their own lives.”

The rule is slated to go into effect Aug. 1, pending any legal challenges.

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Erin Reed is a transgender woman (she/her pronouns) and researcher who tracks anti-LGBTQ+ legislation around the world and helps people become better advocates for their queer family, friends, colleagues, and community. Reed also is a social media consultant and public speaker.

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The preceding article was first published at Erin In The Morning and is republished with permission.

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Pennsylvania

Malcolm Kenyatta could become the first LGBTQ statewide elected official in Pa.

State lawmaker a prominent Biden-Harris 2024 reelection campaign surrogate

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President Joe Biden, Malcolm Kenyatta, and Vice President Kamala Harris (Official White House Photo by Adam Schultz)

Following his win in the Democratic primary contest on Wednesday, Pennsylvania state Rep. Malcolm Kenyatta, who is running for auditor general, is positioned to potentially become the first openly LGBTQ elected official serving the commonwealth.

In a statement celebrating his victory, LGBTQ+ Victory Fund President Annise Parker said, “Pennsylvanians trust Malcolm Kenyatta to be their watchdog as auditor general because that’s exactly what he’s been as a legislator.”

“LGBTQ+ Victory Fund is all in for Malcolm, because we know he has the experience to win this race and carry on his fight for students, seniors and workers as Pennsylvania’s auditor general,” she said.

Parker added, “LGBTQ+ Americans are severely underrepresented in public office and the numbers are even worse for Black LGBTQ+ representation. I look forward to doing everything I can to mobilize LGBTQ+ Pennsylvanians and our allies to get out and vote for Malcolm this November so we can make history.” 

In April 2023, Kenyatta was appointed by the White House to serve as director of the Presidential Advisory Commission on Advancing Educational Equity, Excellence and Economic Opportunity for Black Americans.

He has been an active surrogate in the Biden-Harris 2024 reelection campaign.

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The White House

White House debuts action plan targeting pollutants in drinking water

Same-sex couples face higher risk from environmental hazards

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President Joe Biden speaks with reporters following an Earth Day event on April 22, 2024 (Screen capture: Forbes/YouTube)

Headlining an Earth Day event in Northern Virginia’s Prince William Forest on Monday, President Joe Biden announced the disbursement of $7 billion in new grants for solar projects and warned of his Republican opponent’s plans to roll back the progress his administration has made toward addressing the harms of climate change.

The administration has led more than 500 programs geared toward communities most impacted by health and safety hazards like pollution and extreme weather events.

In a statement to the Washington Blade on Wednesday, Brenda Mallory, chair of the White House Council on Environmental Quality, said, “President Biden is leading the most ambitious climate, conservation, and environmental justice agenda in history — and that means working toward a future where all people can breathe clean air, drink clean water, and live in a healthy community.”

“This Earth Week, the Biden-Harris Administration announced $7 billion in solar energy projects for over 900,000 households in disadvantaged communities while creating hundreds of thousands of clean energy jobs, which are being made more accessible by the American Climate Corps,” she said. “President Biden is delivering on his promise to help protect all communities from the impacts of climate change — including the LGBTQI+ community — and that we leave no community behind as we build an equitable and inclusive clean energy economy for all.”

Recent milestones in the administration’s climate policies include the U.S. Environmental Protection Agency’s issuance on April 10 of legally enforceable standard for detecting and treating drinking water contaminated with polyfluoroalkyl substances.

“This rule sets health safeguards and will require public water systems to monitor and reduce the levels of PFAS in our nation’s drinking water, and notify the public of any exceedances of those levels,” according to a White House fact sheet. “The rule sets drinking water limits for five individual PFAS, including the most frequently found PFOA and PFOS.”

The move is expected to protect 100 million Americans from exposure to the “forever chemicals,” which have been linked to severe health problems including cancers, liver and heart damage, and developmental impacts in children.

An interactive dashboard from the United States Geological Survey shows the concentrations of polyfluoroalkyl substances in tapwater are highest in urban areas with dense populations, including cities like New York and Los Angeles.

During Biden’s tenure, the federal government has launched more than 500 programs that are geared toward investing in the communities most impacted by climate change, whether the harms may arise from chemical pollutants, extreme weather events, or other causes.

New research by the Williams Institute at the UCLA School of Law found that because LGBTQ Americans are likelier to live in coastal areas and densely populated cities, households with same-sex couples are likelier to experience the adverse effects of climate change.

The report notes that previous research, including a study that used “national Census data on same-sex households by census tract combined with data on hazardous air pollutants (HAPs) from the National Air Toxics Assessment” to model “the relationship between same-sex households and risk of cancer and respiratory illness” found “that higher prevalence of same-sex households is associated with higher risks for these diseases.”

“Climate change action plans at federal, state, and local levels, including disaster preparedness, response, and recovery plans, must be inclusive and address the specific needs and vulnerabilities facing LGBT people,” the Williams Institute wrote.

With respect to polyfluoroalkyl substances, the EPA’s adoption of new standards follows other federal actions undertaken during the Biden-Harris administration to protect firefighters and healthcare workers, test for and clean up pollution, and phase out or reduce use of the chemicals in fire suppressants, food packaging, and federal procurement.

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