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Price of new once-daily AIDS drug draws criticism

Protests in San Francisco after new breakthrough Gilead pill given $33k price tag

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Truvada, Gilead, gay news, Washington Blade
Truvada, Gilead, gay news, Washington Blade

(Photo courtesy of Gilead)

SAN FRANCISCO — Gilead’s new once-daily AIDS drug Stribild provides an attractive option for those with HIV who have never started a meds regiment before, but activists say the $33,000 a year price-tag will make it unattainable for most who need it.

“In the long run, the cost to Gilead to actually produce [Stribild] will be a small fraction of its selling price, which means Gilead can show restraint on…pricing and still make an enormous profit,” AIDS Healthcare Foundation president Michael Weinstein told the Huffington Post, after a massive ACT UP San Francisco demonstration at the drug maker’s headquarters over the price.

Activists are putting pressure not just on Gilead, but on lawmakers to intervene and making HIV drugs more affordable for more people.

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Federal Government

Trump-Vance administration removes LGBTQ, HIV resources from government websites

President took similar action shortly after his first inauguration in 2017

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President Donald Trump (Washington Blade photo by Michael Key)

The Trump-Vance administration has “eliminated nearly all LGBTQ and HIV focused content and resources” from WhiteHouse.gov and “key federal agency” websites, GLAAD announced in a press release Tuesday.

Prior to President Donald Trump’s inauguration on Monday, GLAAD had catalogued more than 50 links to LGBTQ- and HIV-related content on White House web pages and on websites for the State Department and the Departments of Education, Justice, Defense, Health and Human Services, and Labor, along with other agencies like the U.S. Equal Employment Opportunity Commission.

As of Tuesday, GLAAD specifically found that terms like “lesbian,” “bisexual,” “gay,” “transgender,” “sexual orientation,” “gender identity,” and “LGBTQ” are “no longer accessible on WhiteHouse.gov,” while “some LGBTQ-specific pages have been taken down from sites for the Centers for Disease Control, Department of State, and more.”

Among the pages that are no longer accessible on WhiteHouse.gov are an equity report  from July 2021, a fact sheet with information on expanding access to HIV prevention and treatment from March 2024, and information about Pride Month.

Among the entries on federal agency websites that are no longer available are 94 entries for “LGBT Rights” that were once published on the State Department’s site and dozens of links to information and resources on “LGBTQI+ Policy” that were once available on the Department of Labor website.

“President Trump claims to be a strong proponent of freedom of speech, yet he is clearly committed to censorship of any information containing or related to LGBTQ Americans and issues that we face,” GLAAD President Sarah Kate Ellis said. “Today’s action proves the Trump administration’s goal of making it as difficult as possible for LGBTQ Americans to find federal resources or otherwise see ourselves reflected under his presidency.”

Ellis added, “Sadly for him, our community is more visible than ever; and this pathetic attempt to diminish and remove us will again prove unsuccessful.”

Shortly after Trump’s first presidential inauguration in 2017, the Trump-Pence administration scrubbed the White House and federal government websites of LGBTQ and HIV related content, provoking backlash from LGBTQ advocates.

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National

Meta’s policy changes ‘putting us back in the dark ages’

Expert says rolling back hate speech protections threatens queer youth

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Mark Zuckerberg, co-founder and CEO of Meta (Screen capture via Bloomberg Television/YouTube)

LGBTQ advocates have expressed alarm in recent weeks, as Meta has taken steps to undermine protections for queer youth and apparently worked to appease the incoming conservative administration in Washington.

Meta, the parent company of popular social media and messaging companies Facebook, Instagram, and WhatsApp, is owned by Mark Zuckerberg, who was once considered to be an ally of the LGBTQ community.

Two weeks ago, the internet was afire with discussion of Liv, the now-deleted Instagram profile of a “proud black Queer momma of 2” AI made by Meta as part of its AI user dreams

Then, last week, independent tech journalist Taylor Lorenz revealed that Instagram had been blocking teens from searching LGBTQ-related content for months. 

This comes as no surprise to Celia Fisher, a professor of Psychology and the Marie Ward Doty University Chair in Ethics at Fordham University who has spent her career studying children and adolescent health, especially for marginalized groups like the LGBTQ community.

When speaking to the Washington Blade in November 2024 on TikTok, Fisher remarked that it was increasingly difficult to research the Meta platforms. Fisher and her team have used advertisements on social media to recruit youth for anonymous surveys for studies. “One of the advantages of social media is that you can reach a national audience,” she says.

The advertisements are specifically linked to keywords and popular celebrities to reach LGBTQ populations of youth.  When she spoke to the Bladeagain this week, she was not surprised to hear that keywords were being blocked from youth. “Now, there is a major barrier to being able to recruit when you are doing online studies.”

It makes her research—which has looked at the mental health of youth online, HIV prevention strategies, and COVID vaccine barriers—impossible. “If Meta prevents researchers from using the platform, then the research can’t be done,” she said. 

The search blocks are not just a threat to the research, they are a threat to youth. “Hiding those terms from youth means they can’t see that there is a community out there. That’s a tremendous loss, especially for transgender youth,” said Fisher.

Fisher suspects where the restrictions are coming from, not that Zuckerberg has been particularly opaque as he cozies up to the new administration. “I think there’s been a creeping fear on the part of companies not to do anything that might elicit the ire of more conservative politicians,” she said.

A Meta spokesperson told Lorenz that the restriction was a mistake. “It’s important to us that all communities feel safe and welcome on Meta apps, and we do not consider LGBTQ+ terms to be sensitive under our policies,” said the spokesperson.

Meta backtracked immediately; the next day the company removed longstanding anti-LGBTQ hate speech policies.

Zuckerberg announced large changes to the platform via video in which he sported a $900,000 watch. (More than 1 in 5 LGBTQ adults are living in poverty. More than 1 in 3 transgender adults are living in poverty.)

The changes, which eliminate independent fact-checking for a system similar to X’s “community notes,” have been highly critiqued by journalists and fact-checking organizations. Many experts see it as a “bow” to Trump.

Zuckerberg also noted that the platform would “remove restrictions on topics like immigration and gender that are out of touch with mainstream discourse.” He directly linked the changes to the recent election. 

Those changes happened quickly. That same day GLAAD, an LGBTQ media monitoring non-profit, reported the changes to the hateful conduct policies. Changes include allowances for calling LGBTQ people mentally ill and the removal of prohibitions against the dehumanization of protected groups, among many. Notably, Meta’s guidelines include the right-wing transphobic dog whistle “transgenderism.” 

On Jan. 9, reporting from The Intercept and Platformer on internal training documents revealed the use of even more slurs. The t-slur against transgender people is now allowed on the sites with no restrictions. Phrases like—and this is a quoted example—”A trans person isn’t a he or she, it’s an it” are allowed on the sites with no restrictions.

Notably, the training manuals differentiate between different members of the LGBTQ community. For example, The Intercept found that the phrase “Lesbians are so stupid” would be prohibited while “trans people are mentally ill” would not be.

(These training manuals also include permissive use of racist and dehumanizing language for other marginalized groups.)

And then, as a cherry on top, Meta removed DEI programs and deleted the transgender and non-binary Messenger themes, on Jan. 10.

These changes are undeniably bad. Arturo Béjar, a former engineering director at Meta with expertise in online harassment, told the Associated Presshe is horrified by the changes.

“I shudder to think what these changes will mean for our youth, Meta is abdicating their responsibility to safety, and we won’t know the impact of these changes because Meta refuses to be transparent about the harms teenagers experience, and they go to extraordinary lengths to dilute or stop legislation that could help,” he said. 

Fisher, who has researched the effects of hate speech online on LGBTQ youths’ mental health, agrees that the results will be devastating. “We had many people who said they observed transgender harassment for others or were actually attacked themselves,” said Fisher. “This prevents people from wanting to come out online and to actually engage in those kinds of online communities that might be helpful to them.”

What is happening also confirms LGBTQ youths’ worst fears. “We’ve found that a major concern is that there would be an increased violation of civil rights and increased violence against LGBTQ individuals,” she said.

Fisher, a psychologist, sees this as “putting us back into the dark ages of psychiatry and psychology when LGBTQ individuals were seen as having some kind of a mental health problem or disorder.”

Fisher emphasized: “This kind of misinformation about mental illness is certainly going to be putting transgender people, especially at even greater risk than they were before.”

(This story is part of the Digital Equity Local Voices Fellowship lab through News is Out. The lab initiative is made possible with support from Comcast NBCUniversal.)

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State Department

Trump executive order bans passports with ‘X’ gender markers

President signed directive hours after he took office

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A sweeping executive order that President Donald Trump issued on Monday bans the State Department from issuing passports with “X” gender markers.

Former Secretary of State Antony Blinken in June 2021 announced the State Department would begin to issue gender-neutral passports and documents for American citizens who were born overseas.

Dana Zzyym, an intersex U.S. Navy veteran who identifies as nonbinary, in 2015 filed a federal lawsuit against the State Department after it denied their application for a passport with an “X” gender marker. Zzyym in October 2021 received the first gender-neutral American passport.

The State Department policy took effect on April 11, 2022.

“The secretaries of State and Homeland Security, and the director of the Office of Personnel Management, shall implement changes to require that government-issued identification documents, including passports, visas, and Global Entry cards, accurately reflect the holder’s sex,” reads Trump’s executive order.

The gender marker is among the provisions contained within Trump’s executive order titled “Defending women from gender ideology extremism and restoring biological truth to the federal government.” Trump in his inaugural speech said the federal government’s “official policy” is “there are only two genders, male and female.”

The Washington Blade will have additional reporting on Trump’s executive orders and their impact on the LGBTQ community.

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