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Biden-Harris administration commemorates Intersex Awareness Day

Blade speaks with senior State Department advisor Kimberly Zieselman

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Kimberly Zieselman (Photo courtesy of Kimberly Zieselman)

Thursday is the annual Intersex Awareness Day.

Intersex Awareness Day commemorates the world’s first-ever intersex protest that took place in Boston on Oct. 26, 1996. The Washington Blade this week spoke with Kimberly Zieselman, a senior policy advisor to Jessica Stern, the special U.S. envoy to advance the human rights of lesbian, gay, bisexual, transgender, queer and intersex persons.

BLADE: What is intersex?

ZIESELMAN: Intersex is an umbrella term used to describe a person with one or more sex characteristics (including genitals, internal reproductive organs, chromosome patterns and hormone levels) that do not fit typical binary notions of male or female bodies. In some cases, intersex traits are visible at birth while in others they are not apparent until puberty. Some intersex variations may not be physically apparent at all. 

According to experts, between 0.05 percent and 1.7 percent of the population is born with intersex traits — the upper estimate is similar to the number of red-haired people or people with green eyes and is more common than identical twins. Approximately 136 million people meet the definition. 

BLADE: What are some common misconceptions about intersex people?

ZIESELMAN: Two common misconceptions include assuming all intersex persons have nonbinary gender identities or bisexual orientations. A third common mistake is confusing intersex with transgender.  

Being intersex relates to biological sex characteristics and is distinct from a person’s sexual orientation or gender identity. An intersex person may be straight, gay, lesbian, bisexual or asexual and may identify as female, male, both or neither. Intersex individuals may identify as men, women, transgender, nonbinary or any of the range of diverse gender identities — just like everyone else. 

BLADE: What is Intersex Awareness Day? 

ZIESELMAN: Intersex Awareness Day falls annually on Oct. 26 and marks the first public demonstration by intersex persons in North America that took place back in 1996 in Boston, Massachusetts, outside a conference of the American Academy of Pediatrics. In 2003 activists began using the date to raise awareness, and today 20 years later, it has become an internationally recognized date, and the period between Oct. 26 and Nov. 8 (Intersex Day of Solidarity) has increasingly become a period of both education and awareness raising across the world.  

BLADE: Why is Intersex Awareness Day important?

ZIESELMAN: Despite not being that rare (after all, it is more common than cystic fibrosis or identical twins), intersex has largely remained invisible due to the shame and stigma many cultures and societies have attached to it. Because their bodies are seen as different or even disordered (medical practitioners commonly refer to intersex persons as having “disorders of sex development”), intersex children and adults are often stigmatized and their human rights undermined, including related to their health and physical integrity, equality and nondiscrimination and freedom from harmful medical practices. 

Intersex infants and young children are frequently subjected to unnecessary harmful medical practices (including cosmetic genital surgery) for the purpose of trying to make their appearance conform to binary sex stereotypes. These medically unnecessary procedures can cause permanent infertility, pain, incontinence, loss of sexual sensation and life-long mental suffering, including anxiety and depression, post-traumatic stress and even suicide. In some cases, intersex persons may even grow up not identifying with the sex they were surgically assigned in infancy. 

In essence, much of society has historically tried to erase intersex persons. 

These medical procedures undermine bodily integrity and subject intersex persons to harmful practices. They are regularly performed without the full, free and informed consent of the intersex person concerned. Moreover, they are frequently performed on individuals under age two and children who are too young to be part of the decision-making.  

Parents and caregivers are often not given all necessary information to make a fully informed decision and may be pressured by doctors and other community members to permanently “fix” their healthy child. Such procedures are frequently justified by harmful norms and discriminatory beliefs about intersex persons and their integration into society.   

In short, Intersex Awareness Day is important because many are still unaware that intersex persons exist and/or that they are often subjected to human rights abuses. Sharing information and stories can help change hearts and minds and lead to changes in harmful treatment. 

BLADE: How is the State Department planning to commemorate Intersex Awareness Day?

ZIESELMAN: Last year State hired me as the first intersex policy advisory to assist with advancing the human rights of intersex persons in foreign policy. 

Last month, State, under the leadership of the Special Envoy to Advance the Human Rights of LGBTQI+ Persons, hosted five intersex activists to share their perspectives and activism work in five diverse regions of the world. The intersex experts met with a range of State Department staff as well as other agencies and NGOs while in D.C. 

Now the special envoy’s team is working on new resources for all State Department employees providing information on key issues of concern related to intersex persons and suggestions for working together with civil society and local governments to not only raise awareness but also to work towards the advancement of human rights.

In celebration and recognition of Intersex Awareness Day, State will release a statement once again affirming the United States’ commitment to promoting the human rights of intersex persons globally. 

BLADE: What has the Biden-Harris administration done to protect intersex people? Can you please highlight a specific example/s? 

ZIESELMAN: The Biden-Harris administration has been the first ever to invite intersex Americans to share their stories and voice their concerns. This has occurred during two separate roundtables hosted by the White House as well as via a public call for input this year as part of the development of a soon-to-be-released report on Intersex Health Equity by the Department of Health and Human Services as mandated by Executive Order in 2022.  

Also, the State Department and USAID (U.S. Agency for International Development) have released an updated U.S. Strategy to Prevent and Respond to Gender-Based Violence (GBV) Globally that is inclusive of the GBV risks and needs of LGBTQI+ persons, including medically unnecessary and harmful surgeries on intersex persons. Intersex persons, and their needs and concerns, are starting to be addressed. 

BLADE: What have other countries done to protect intersex people? What can the Biden-Harris administration do to implement so-called best practices from around the world with regards to intersex people? 

ZIESELMAN: Some countries have passed laws banning or significantly restricting harmful cosmetic genital surgeries on intersex infants and children. Malta was the first to do so in 2015 and since then Germany, Greece, Iceland, Kenya, Portugal and Spain have joined the list. In addition, territories in both Australia and India have passed laws in attempt to protect intersex children. 

Though these medical practices still occur across most of the world including the United States, the Biden-Harris administration is currently working with intersex persons and families, provide platforms to share their lived experiences, and develop medical practices that affirm and support intersex persons across the lifespan. 

**

U.S. Reps. Becca Balint (D-Vt.) and Mark Pocan (D-Wis.), who chairs the Congressional Equality Caucus, on Thursday introduced the first-ever Intersex Awareness Day resolution.

The resolution specifically:

  • Supports the goals and ideals of Intersex Awareness Day;
  • Encourages the federal government, states, localities, nonprofit organizations, schools and community organizations to observe the day with appropriate programs and activities, with the goal of increasing public knowledge of the intersex community and empowering individuals to celebrate and respect their diversity;
  • Encourages health care providers to offer culturally and clinically competent care to the intersex community, and schools to support education regarding the intersex community and connect individuals to resources for young people with intersex variations and their families and
  • Encourages the federal government, states, international funding organizations, and United States bilateral and multilateral aid efforts to prioritize the health and human rights of intersex people. 

“Intersex people must be recognized as valid and seen within the LGBTQI+ community,” said Balint in a press release. This resolution is an important step in uplifting the intersex community and fighting interphobia.”

Erika Lorshbough, executive director of interACT, a group that advocates on behalf of intersex youth, in a statement applauded the resolution.

“Intersex awareness is not merely a matter of educating the public that people with intersex variations exist; it is additionally about illuminating the harmful legacy — and continuing practice — of unnecessary and unwanted medical interventions on young intersex children, which is increasingly recognized as a human rights violation around the world,” said Lorshbough. “We extend our deep gratitude to Representatives Balint and Pocan for taking action to further these goals.”

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The White House

‘Trump Rx’ plan includes sharp cuts to HIV drug prices

President made announcement on Friday

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President Donald Trump during his meeting on lowering drug prices through TrumpRx. (Washington Blade photo by Joe Reberkenny)

President Donald Trump met with leaders from some of the world’s largest pharmaceutical companies at the White House on Friday to announce his new “Trump Rx” plan and outline efforts to reduce medication costs for Americans.

During the roughly 47-minute meeting in the Roosevelt Room, Trump detailed his administration’s efforts to cut prescription drug prices and make medications more affordable for U.S. patients.

“Starting next year, American drug prices will come down fast, furious, and will soon be among the lowest in the developed world,” Trump said during the meeting. “For decades, Americans have been forced to pay the highest prices in the world for prescription drugs by far … We will get the lowest price of anyone in the world.”

Trump signed an executive order in May directing his administration “to do everything in its power to slash prescription drug prices for Americans while getting other countries to pay more.”

“This represents the greatest victory for patient affordability in the history of American health care, by far, and every single American will benefit,” he added.

Several pharmaceutical executives stood behind the president during the announcement, including Sanofi CEO Paul Hudson, Novartis CEO Vas Narasimhan, Genentech CEO Ashley Magargee, Boehringer Ingelheim (USA) CEO Jean-Michel Boers, Gilead Sciences CEO Dan O’Day, Bristol Myers Squibb General Counsel Cari Gallman, GSK CEO Emma Walmsley, Merck CEO Robert Davis, and Amgen Executive Vice President Peter Griffith.

Also in attendance were Health and Human Services Secretary Robert F. Kennedy Jr., Commerce Secretary Howard Lutnick, Centers for Medicare and Medicaid Services Administrator Mehmet Oz, and Food and Drug Administration Commissioner Marty Makary.

Under the Trump Rx plan, the administration outlined a series of proposed drug price changes across multiple companies and therapeutic areas. Among them were reductions for Amgen’s cholesterol-lowering drug repatha from $573 to $239; Bristol Myers Squibb’s HIV medication reyataz from $1,449 to $217; Boehringer Ingelheim’s type 2 diabetes medication jentadueto from $525 to $55; Genentech’s flu medication xofluza from $168 to $50; and Gilead Sciences’ hepatitis C medication epclusa from $24,920 to $2,425.

Additional reductions included several GSK inhalers — such as the asthma inhaler advair diskus 500/50, from $265 to $89 — Merck’s diabetes medication januvia from $330 to $100, Novartis’ multiple sclerosis medication mayzent from $9,987 to $1,137, and Sanofi’s blood thinner plavix from $756 to $16. Sanofi insulin products would also be capped at $35 per month’s supply.

These prices, however, would only be available to patients who purchase medications directly through TrumpRx. According to the program’s website, TrumpRx “connects patients directly with the best prices, increasing transparency, and cutting out costly third-party markups.”

Kennedy spoke after Trump, thanking the president for efforts to lower pharmaceutical costs in the U.S., where evidence has shown that drug prices — including both brand-name and generic medications — are nearly 2.78 times higher than prices in comparable countries. According to the Pharmaceutical Research and Manufacturers of America, roughly half of every dollar spent on brand-name drugs goes to entities that play no role in their research, development, or manufacturing.

“This is affordability in action,” Kennedy said. “We are reversing that trend and making sure that Americans can afford to get the life-saving solutions.”

Gilead CEO Dan O’Day also spoke about how the restructuring of drug costs under TrumpRx, combined with emerging technologies, could help reduce HIV transmission — a virus that, if untreated, can progress to AIDS. The LGBTQ community remains disproportionately affected by HIV.

“Thank you, Mr. President — you and the administration,” O’Day said. “I think this objective of achieving the commitment to affordability and future innovation is extraordinary … We just recently launched a new medicine that’s only given twice a year to prevent HIV, and we’re working with Secretary Kennedy and his entire team, as well as the State Department, as a part of your strategy to support ending the epidemic during your term.

“I’ve never been more optimistic about the innovation that exists across these companies and the impact this could have on America’s health and economy,” he added.

Trump interjected, asking, “And that’s working well with HIV?”

“Yes,” O’Day replied.

“It’s a big event,” Trump said.

“It literally prevents HIV almost 100 percent given twice a year,” O’Day responded.

A similar anti-HIV medication is currently prescribed more than injectable form mentioned by O’Day. PrEP, is a medication regimen proven to significantly reduce HIV infection rates for people at high risk. Without insurance, brand-name Truvada can cost roughly $2,000 per month, while a generic version costs about $60 per month.

Even when medication prices are reduced, PrEP access carries additional costs, including clinic and laboratory fees, office visits, required HIV and sexually transmitted infection testing, adherence services and counseling, and outreach to potentially eligible patients and providers.

According to a 2022 study, the annual total cost per person for PrEP — including medication and required clinical and laboratory monitoring — is approximately $12,000 to $13,000 per year.

The TrumpRx federal platform website is now live at TrumpRx.gov, but the program is not slated to begin offering reduced drug prices until January.

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EXCLUSIVE: Democracy Forward files FOIA lawsuit after HHS deadnames Rachel Levine

Trans former assistant health secretary’s name changed on official portrait

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Adm. Rachel Levine (Washington Blade photo by Michael Key)

Democracy Forward, a national legal organization that works to advance democracy and social progress through litigation, policy and public education, and regulatory engagement, filed a lawsuit Friday in federal court seeking to compel the U.S. Department of Health and Human Services to release information related to the alteration of former Assistant Secretary for Health Adm. Rachel Levine’s official portrait caption.

The lawsuit comes in response to the slow pace of HHS’s handling of multiple Freedom of Information Act requests — requests that federal law requires agencies to respond to within 20 working days. While responses can take longer due to backlogs, high request volumes, or the need for extensive searches or consultations, Democracy Forward says HHS has failed to provide any substantive response.

Democracy Forward’s four unanswered FOIA requests, and the subsequent lawsuit against HHS, come days after someone in the Trump-Vance administration changed Levine’s official portrait in the Hubert H. Humphrey Building to display her deadname — the name she used before transitioning and has not used since 2011.

According to Democracy Forward, HHS “refused to release any records related to its morally wrong and offensive effort to alter former Assistant Secretary for Health Admiral Rachel Levine’s official portrait caption.” Levine was the highest-ranking openly transgender government official in U.S. history and served as assistant secretary for health and as an admiral in the U.S. Public Health Service Commissioned Corps from 2021 to 2025.

Democracy Forward President Skye Perryman spoke about the need to hold the Trump-Vance administration accountable for every official action, especially those that harm some of the most targeted Americans, including trans people.

“The question every American should be asking remains: what is the Trump-Vance administration hiding? For an administration that touts its anti-transgender animus and behavior so publicly, its stonewalling and silence when it comes to the people’s right to see public records about who was behind this decision is deafening,” Perryman said.

“The government’s obligation of transparency doesn’t disappear because the information sought relates to a trailblazing former federal official who is transgender. It’s not complicated — the public is entitled to know who is making decisions — especially decisions that seek to alter facts and reality, erase the identity of a person, and affect the nation’s commitment to civil rights and human dignity.”

“HHS’s refusal to respond to these lawful requests raises more serious concerns about transparency and accountability,” Perryman added. “The public has every right to demand answers — to know who is behind this hateful act — and we are going to court to get them.”

The lawsuit also raises questions about whether the alteration violated federal accuracy and privacy requirements governing Levine’s name, and whether the agency improperly classified the change as an “excepted activity” during a lapse in appropriations. By failing to make any determination or produce any records, Democracy Forward argues, HHS has violated its obligations under federal law.

The case, Democracy Forward Foundation v. U.S. Department of Health and Human Services, was filed in the U.S. District Court for the District of Columbia. The legal team includes Anisha Hindocha, Daniel McGrath, and Robin Thurston.

The Washington Blade reached out to HHS, but has not received any comment.

The lawsuit and four FOIA requests are below:

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Empty seats, canceled shows plague Kennedy Center ahead of Trump renaming

It would take an act of Congress to officially rename the historic music venue, despite the Trump-appointed board’s decision.

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Protesters march in defiance of the changes to the Kennedy Center following Trump's takeover in March. (Washington Blade Photo by Michael Key)

The board of the Kennedy Center in Washington, D.C., voted to rename it the Trump-Kennedy Center, according to the White House Press Office.

White House Press Secretary Karoline Leavitt announced the decision in a post on X Thursday, thanking the president for his work on the cultural center “not only from the standpoint of its reconstruction, but also financially, and its reputation.”

Speaking to reporters later that day at the White House, Trump said he was “surprised” and “honored” by the board’s vote.

“This was brought up by one of the very distinguished board members, and they voted on it, and there’s a lot of board members, and they voted unanimously. So I was very honored,” he said.

Earlier this year, GOP Rep. Mike Simpson of Idaho introduced an amendment that would have renamed the building after first lady Melania Trump, later saying she had not been aware of his efforts prior to the amendment’s public introduction.

Despite the board’s vote (made up of Trump-appointed loyalists), the original laws guiding the creation of the Kennedy Center during the Eisenhower, Kennedy, and Johnson administrations explicitly prohibit renaming the building. Any change to its name would require an act of Congress.

Trump has exerted increasing control over the center in recent months. In February, he abruptly fired members of the Kennedy Center’s board and installed himself as chair, writing in a Truth Social post at the time, “At my direction, we are going to make the Kennedy Center in Washington D.C., GREAT AGAIN.”

In that post, Trump specifically cited his disapproval of the center’s decision to host drag shows.

He later secured more than $250 million from the Republican-controlled Congress for renovations to the building.

Since Trump’s takeover, sales of subscription packages are said to have declined, and several touring productions — including “Hamilton” — have canceled planned runs at the venue. Rows of empty seats have also been visible in the Concert Hall during performances by the National Symphony Orchestra.

“The Kennedy Center Board has no authority to actually rename the Kennedy Center in the absence of legislative action,” House Minority Leader Hakeem Jeffries told reporters.

For decades, the Kennedy Center has hosted performances by LGBTQ artists and companies, including openly queer musicians, choreographers, and playwrights whose work helped push LGBTQ stories into the cultural mainstream. Those artists include the Gay Men’s Chorus of Washington, Harvey Fierstein, and Tennessee Williams.

In more recent years, the center has increasingly served as a space for LGBTQ visibility and acceptance, particularly through Pride-adjacent programming and partnerships.

That legacy was on display at this year’s opening production of Les Misérables, when four drag performers — Tara Hoot, Vagenesis, Mari Con Carne, and King Ricky Rosé — attended in representation of Qommittee, a volunteer network uniting drag artists to support and defend one another amid growing conservative attacks.

“We walked in together so we would have an opportunity to get a response,” said Tara Hoot, who has performed at the Kennedy Center in full drag before. “It was all applause, cheers, and whistles, and remarkably it was half empty. I think that was season ticket holders kind of making their message in a different way.”

The creation of the Kennedy Center is outlined in U.S. Code, which formally designates the institution as the John F. Kennedy Center for the Performing Arts.

As a result, it appears unlikely that Congress will come together to pass legislation allowing the historic venue to be renamed.

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