National
SPECIAL REPORT: ‘You can’t let adversity get you down’
Many LGBT elders struggling with economic insecurity
Cedric Burgess says he lives ‘check to check’ while relying on government assistance to pay bills. Despite his struggles, he works to give back to the LGBT community. (Washington Blade photo by Michael Key)
Editor’s note: This is the first of a two-part look at how poverty affects elder members of the LGBT community and part of a yearlong Blade focus on poverty. To share your ideas or personal story, visit us on Facebook or email [email protected]. Click here to read previous installments.
“I did my dirt,” said Cedric Burgess, a black gay man and longtime Washington, D.C. resident who grew up in the District. “I was young and full of fun!”
Today, Burgess, 61, is a recovering alcoholic who suffers from depression. He’s been HIV positive for more than 30 years. “I live from check to check,” said Burgess, who receives Social Security disability benefits.
Before undergoing a hip replacement four years ago, he struggled to walk up to his second-story apartment.
“It is a wonder to be able to walk without my cane,” Burgess said. “No matter what pain pills I took, I couldn’t get to sleep. You don’t realize how much pain you’re in. You adapt. I couldn’t cross my legs. Steps weren’t an option.”
At 19, Burgess came out to his family.
“I was accepted by my family. I was taken in,” he said, “that was a blessing!”
For some years, he worked in a series of clerical jobs. In 1982, Burgess, then living and working as an administrative assistant in Atlanta, was hit by a drunk driver. The accident left him with back pain, nerve damage and sciatica. For two years, unable to work, he did physical therapy. In 1984, Burgess returned to work. After returning to D.C., he went back to doing clerical work.
During the AIDS epidemic, his family confronted Burgess.
“They said ‘you gotta get tested,’” he said. “In 1991, after I found out I was positive, I took a two-week vacation. I got HIV through a blood transfusion I received when I had my accident. They weren’t screening transfusions for HIV then.”
In 2006, his back pain became so severe that Burgess left the workforce. He said he retired from the Green Door, a D.C. organization that helps people with mental challenges, where he worked as a program assistant.
“You can’t let adversity get you down, you have to have a positive attitude,” Burgess added. Fortunately, he said, social safety net programs help him to make ends meet. In addition to his monthly disability check, Burgess receives food stamps. His health care is covered by Medicare and Medicaid.
“I receive energy assistance from Pepco and two-thirds of my rent, with funding from the Ryan White Act, is subsidized by the Washington, D.C. Housing Coalition,” Burgess said.
These programs are a lifeline for him. “Without the rental assistance and the Medicare and Medicaid, I wouldn’t be able to afford housing and health care,” Burgess said. “I couldn’t pay for my HIV medications and I couldn’t have had my hip replacement.”
Cedric Burgess says many elders don’t know their legal rights when it comes to housing and other issues. (Washington Blade photo by Michael Key)
Despite living with economic hardship, Burgess leads an active and full life. Committed to helping others, he has volunteered for groups serving everyone from homeless youth to elders. “I’m a goodwill ambassador for the DC Center for the LGBT Community and for AARP,” Burgess said. “I help seniors learn about their rights in housing and in nursing homes. Many seniors don’t know their rights.”
“I believe in God’s healing,” he went on, “I go to church. I have no prejudice against any other religion. I’m a spiritually free person.”
Burgess’s situation is far from unique. Many LGBT older adults (aging Baby Boomers over 50) live with economic insecurity.
“Media and marketing stereotypes view the LGBT community as an affluent niche group filled with couples with double incomes,” said Matthew J. Corso, chief communications officer and board member of the DC Center for the LGBT Community. “The poverty rate among LGBT older adults is much higher than people would think from the marketing view. Older adults can often feel isolated.”
The DC Center’s Coffee and Conversation is a safe space where older adults can connect with others in the community and discuss issues related to living with economic insecurity, Corso said.
People rarely look at economic insecurity and aging, said Robert Espinoza, senior director of public policy and communications for Services and Advocacy for GLBT Elders (SAGE), “People studying poverty don’t look often enough at poverty among LGBT and older people. On the other side, people studying LGBT issues aren’t looking often enough at aging and poverty.”
But studies that have been done show that poverty is high among elders and even higher among LGBT older adults, Espinoza said. Among the findings:
• One in six Americans aged 65 and older lives in poverty, according to a 2013 Congressional Research Service report.
• The poverty rate is as high or higher among lesbian, gay and bisexual people than for heterosexual people, and lesbian couples, 65 and older, are twice as likely to be poor as straight married couples, according to a 2009 Williams Institute Report.
• There are an estimated 1.5 million gay, lesbian and bisexual elders in the United States today. The number is expected to increase to nearly 3 million by 2030, according to “Improving the Lives of LGBT Older Adults” from SAGE, the Movement Advancement Program (MAP) and Center for American Progress.
• Because historically LGBT people have not been able to marry, many LGBT older adults face the economic insecurity and health issues that come with aging without the support from families that heterosexual older adults often receive. LGBT elders are twice as likely to be single and three to four times more likely to be without children as their straight peers, according to the MAP report.
• Transgender adults encounter profound discrimination, according to a SAGE and National Center for Transgender Equality 2012 report. They experience “striking disparities in … health care access … employment and more,” the report states, “with a growing older transgender population, there is an urgent need to understand the challenges that can threaten financial security, health and overall well-being.”
Several factors contribute to poverty among LGBT elders. “In the past, many faced employment discrimination because they were LGBT. LGBT people of color and lesbians faced even more severe discrimination,” Espinoza said. “Too many LGBT older adults have little, if any, retirement savings.”
• LGBT older adults face health disparities and 47 percent of LGBT people over 50 have a disability, said Imani Woody, Ph.D., chair of SAGE Metro D.C. “More than one in 10 LGBT people aged 50-plus have been denied health care or provided with inferior health care,” she said. “This can lead to economic insecurity, which can translate to poverty. If you don’t have access to health care, what do you have?”
Even older LGBT adults with moderate incomes, who wouldn’t think of themselves as facing poverty, can become impoverished if they become disabled or need long-term care, Espinoza said. “If you only have savings of, say, $60,000, it will go quickly.”
Lack of affordable housing and housing discrimination are key reasons why many LGBT older adults live in or near poverty. Same-sex older couples encounter discrimination when seeking housing in senior living facilities, according to a report, “Opening Doors: An Investigation of Barriers to Senior Housing for Same-Sex couples,” released last month by the Equal Rights Center, a civil rights organization in partnership with SAGE.
“We saw a number of adverse treatments with a high economic impact,” said Don Kahl, executive director, Equal Rights Center. “Sometimes they were charged for having an ‘extra person.’ At other times, they were told they’d have to take a more expensive two-bedroom apartment when they wanted a one-bedroom,” he said, “In other cases, they were treated in such a manner, that they wouldn’t accept the housing even if it was offered.”
It’s a misperception to think that as people age, they accumulate wealth and live out their days in comfort, said Peter Johnson, director of public relations for the Center on Halsted in Chicago. “It’s even more true for LGBT older adults. Before we began to experience marriage equality, LGBT seniors might have shared finances unevenly with their partners,” he said. “Without marriage, if one partner dies or the relationship ends, a huge financial burden is placed on the remaining partner.”
The Center on Halsted is working with the Heartland Alliance to provide LGBT older adults with affordable housing in the LakeView neighborhood of Chicago. “While not exclusively LGBT it will be LGBT focused and friendly,” Johnson said. “It will be 79 units of subsidized housing with the rent being no more than one-third of residents’ income.”
LGBT elders live in or near poverty nationwide — from rural to metropolitan areas, Johnson said. “We are fortunate to have Heartland [Alliance] dealing with us on these issues.”
Next week: Meet elder members of the LGBT community coping with unemployment and economic insecurity.
A Wider Bridge on Friday announced it will shut down at the end of the month.
The group that “mobilizes the LGBTQ community to fight antisemitism and support Israel and its LGBTQ community” in a letter to supporters said financial challenges prompted the decision.
“After 15 years of building bridges between LGBTQ communities in North America and Israel, A Wider Bridge has made the difficult decision to wind down operations as of Dec. 31, 2025,” it reads.
“This decision comes after challenging financial realities despite our best efforts to secure sustainable funding. We deeply appreciate our supporters and partners who made this work possible.”
Arthur Slepian founded A Wider Bridge in 2010.
The organization in 2016 organized a reception at the National LGBTQ Task Force’s Creating Change Conference in Chicago that was to have featured to Israeli activists. More than 200 people who protested against A Wider Bridge forced the event’s cancellation.
A Wider Bridge in 2024 urged the Capital Pride Alliance and other Pride organizers to ensure Jewish people can safely participate in their events in response to an increase in antisemitic attacks after Hamas militants attacked Israel on Oct. 7, 2023.
The Jewish Telegraphic Agency reported authorities in Vermont late last year charged Ethan Felson, who was A Wider Bridge’s then-executive director, with lewd and lascivious conduct after alleged sexual misconduct against a museum employee. Rabbi Denise Eger succeeded Felson as A Wider Bridge’s interim executive director.
A Wider Bridge in June honored U.S. Rep. Debbie Wasserman Schultz (D-Fla.) at its Pride event that took place at the Capital Jewish Museum in D.C. The event took place 15 days after a gunman killed two Israeli Embassy employees — Yaron Lischinsky and Sarah Milgrim — as they were leaving an event at the museum.
“Though we are winding down, this is not a time to back down. We recognize the deep importance of our mission and work amid attacks on Jewish people and LGBTQ people – and LGBTQ Jews at the intersection,” said A Wider Bridge in its letter. “Our board members remain committed to showing up in their individual capacities to represent queer Jews across diverse spaces — and we know our partners and supporters will continue to do the same.”
Editor’s note: Washington Blade International News Editor Michael K. Lavers traveled to Israel and Palestine with A Wider Bridge in 2016.
The White House
‘Trump Rx’ plan includes sharp cuts to HIV drug prices
President made announcement on Friday
President Donald Trump met with leaders from some of the world’s largest pharmaceutical companies at the White House on Friday to announce his new “Trump Rx” plan and outline efforts to reduce medication costs for Americans.
During the roughly 47-minute meeting in the Roosevelt Room, Trump detailed his administration’s efforts to cut prescription drug prices and make medications more affordable for U.S. patients.
“Starting next year, American drug prices will come down fast, furious, and will soon be among the lowest in the developed world,” Trump said during the meeting. “For decades, Americans have been forced to pay the highest prices in the world for prescription drugs by far … We will get the lowest price of anyone in the world.”
Trump signed an executive order in May directing his administration “to do everything in its power to slash prescription drug prices for Americans while getting other countries to pay more.”
“This represents the greatest victory for patient affordability in the history of American health care, by far, and every single American will benefit,” he added.
Several pharmaceutical executives stood behind the president during the announcement, including Sanofi CEO Paul Hudson, Novartis CEO Vas Narasimhan, Genentech CEO Ashley Magargee, Boehringer Ingelheim (USA) CEO Jean-Michel Boers, Gilead Sciences CEO Dan O’Day, Bristol Myers Squibb General Counsel Cari Gallman, GSK CEO Emma Walmsley, Merck CEO Robert Davis, and Amgen Executive Vice President Peter Griffith.
Also in attendance were Health and Human Services Secretary Robert F. Kennedy Jr., Commerce Secretary Howard Lutnick, Centers for Medicare and Medicaid Services Administrator Mehmet Oz, and Food and Drug Administration Commissioner Marty Makary.
Under the Trump Rx plan, the administration outlined a series of proposed drug price changes across multiple companies and therapeutic areas. Among them were reductions for Amgen’s cholesterol-lowering drug repatha from $573 to $239; Bristol Myers Squibb’s HIV medication reyataz from $1,449 to $217; Boehringer Ingelheim’s type 2 diabetes medication jentadueto from $525 to $55; Genentech’s flu medication xofluza from $168 to $50; and Gilead Sciences’ hepatitis C medication epclusa from $24,920 to $2,425.
Additional reductions included several GSK inhalers — such as the asthma inhaler advair diskus 500/50, from $265 to $89 — Merck’s diabetes medication januvia from $330 to $100, Novartis’ multiple sclerosis medication mayzent from $9,987 to $1,137, and Sanofi’s blood thinner plavix from $756 to $16. Sanofi insulin products would also be capped at $35 per month’s supply.
These prices, however, would only be available to patients who purchase medications directly through TrumpRx. According to the program’s website, TrumpRx “connects patients directly with the best prices, increasing transparency, and cutting out costly third-party markups.”
Kennedy spoke after Trump, thanking the president for efforts to lower pharmaceutical costs in the U.S., where evidence has shown that drug prices — including both brand-name and generic medications — are nearly 2.78 times higher than prices in comparable countries. According to the Pharmaceutical Research and Manufacturers of America, roughly half of every dollar spent on brand-name drugs goes to entities that play no role in their research, development, or manufacturing.
“This is affordability in action,” Kennedy said. “We are reversing that trend and making sure that Americans can afford to get the life-saving solutions.”
Gilead CEO Dan O’Day also spoke about how the restructuring of drug costs under TrumpRx, combined with emerging technologies, could help reduce HIV transmission — a virus that, if untreated, can progress to AIDS. The LGBTQ community remains disproportionately affected by HIV.
“Thank you, Mr. President — you and the administration,” O’Day said. “I think this objective of achieving the commitment to affordability and future innovation is extraordinary … We just recently launched a new medicine that’s only given twice a year to prevent HIV, and we’re working with Secretary Kennedy and his entire team, as well as the State Department, as a part of your strategy to support ending the epidemic during your term.
“I’ve never been more optimistic about the innovation that exists across these companies and the impact this could have on America’s health and economy,” he added.
Trump interjected, asking, “And that’s working well with HIV?”
“Yes,” O’Day replied.
“It’s a big event,” Trump said.
“It literally prevents HIV almost 100 percent given twice a year,” O’Day responded.
A similar anti-HIV medication is currently prescribed more than injectable form mentioned by O’Day. PrEP, is a medication regimen proven to significantly reduce HIV infection rates for people at high risk. Without insurance, brand-name Truvada can cost roughly $2,000 per month, while a generic version costs about $60 per month.
Even when medication prices are reduced, PrEP access carries additional costs, including clinic and laboratory fees, office visits, required HIV and sexually transmitted infection testing, adherence services and counseling, and outreach to potentially eligible patients and providers.
According to a 2022 study, the annual total cost per person for PrEP — including medication and required clinical and laboratory monitoring — is approximately $12,000 to $13,000 per year.
The TrumpRx federal platform website is now live at TrumpRx.gov, but the program is not slated to begin offering reduced drug prices until January.
The White House
EXCLUSIVE: Democracy Forward files FOIA lawsuit after HHS deadnames Rachel Levine
Trans former assistant health secretary’s name changed on official portrait
Democracy Forward, a national legal organization that works to advance democracy and social progress through litigation, policy and public education, and regulatory engagement, filed a lawsuit Friday in federal court seeking to compel the U.S. Department of Health and Human Services to release information related to the alteration of former Assistant Secretary for Health Adm. Rachel Levine’s official portrait caption.
The lawsuit comes in response to the slow pace of HHS’s handling of multiple Freedom of Information Act requests — requests that federal law requires agencies to respond to within 20 working days. While responses can take longer due to backlogs, high request volumes, or the need for extensive searches or consultations, Democracy Forward says HHS has failed to provide any substantive response.
Democracy Forward’s four unanswered FOIA requests, and the subsequent lawsuit against HHS, come days after someone in the Trump-Vance administration changed Levine’s official portrait in the Hubert H. Humphrey Building to display her deadname — the name she used before transitioning and has not used since 2011.
According to Democracy Forward, HHS “refused to release any records related to its morally wrong and offensive effort to alter former Assistant Secretary for Health Admiral Rachel Levine’s official portrait caption.” Levine was the highest-ranking openly transgender government official in U.S. history and served as assistant secretary for health and as an admiral in the U.S. Public Health Service Commissioned Corps from 2021 to 2025.
Democracy Forward President Skye Perryman spoke about the need to hold the Trump-Vance administration accountable for every official action, especially those that harm some of the most targeted Americans, including trans people.
“The question every American should be asking remains: what is the Trump-Vance administration hiding? For an administration that touts its anti-transgender animus and behavior so publicly, its stonewalling and silence when it comes to the people’s right to see public records about who was behind this decision is deafening,” Perryman said.
“The government’s obligation of transparency doesn’t disappear because the information sought relates to a trailblazing former federal official who is transgender. It’s not complicated — the public is entitled to know who is making decisions — especially decisions that seek to alter facts and reality, erase the identity of a person, and affect the nation’s commitment to civil rights and human dignity.”
“HHS’s refusal to respond to these lawful requests raises more serious concerns about transparency and accountability,” Perryman added. “The public has every right to demand answers — to know who is behind this hateful act — and we are going to court to get them.”
The lawsuit also raises questions about whether the alteration violated federal accuracy and privacy requirements governing Levine’s name, and whether the agency improperly classified the change as an “excepted activity” during a lapse in appropriations. By failing to make any determination or produce any records, Democracy Forward argues, HHS has violated its obligations under federal law.
The case, Democracy Forward Foundation v. U.S. Department of Health and Human Services, was filed in the U.S. District Court for the District of Columbia. The legal team includes Anisha Hindocha, Daniel McGrath, and Robin Thurston.
The Washington Blade reached out to HHS, but has not received any comment.
The lawsuit and four FOIA requests are below:
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