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Corbett Joan O’Toole still fighting for self-determination, respect for disabled people

Author and activist on coming out, intersectionality, and a lifetime of advocacy

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Corbett Joan O’Toole is the author of the acclaimed ‘Fading Scars.’ (Book cover image via Amazon)

(Editor’s Note: One in four people in America has a disability, according to the Centers for Disease Control and Prevention. Queer and disabled people have long been a vital part of the LGBTQ community. Take two of the many queer history icons who were disabled: Michelangelo is believed to have been autistic. Marsha P. Johnson, who played a heroic role in the Stonewall Uprising, had physical and psychiatric disabilities. Today, Deaf-Blind fantasy writer Elsa Sjunneson, actor and bilateral amputee Eric Graise and Kathy Martinez, a blind, Latinx lesbian who was Assistant Secretary of Labor for Disability Employment Policy for the Obama administration, are only a few of the numerous queer and disabled people in the LGBTQ community. Yet, the stories of this vital segment of the queer community have rarely been told. In its series “Queer, Crip and Here,” the Blade will tell some of these long unheard stories.)

Corbett Joan O’Toole, 71, a queer, disabled elder and a Ford Foundation 2022 Disability Futures Fellow, knew one thing for sure growing up in Boston: She didn’t want to be a nurse. 

O’Toole has had a physical disability since she was 12 months old. “I sometimes joke that my becoming disabled was my birthday present when I turned one year old,” she said in a phone interview with the Blade.

O’Toole has used a wheelchair since she was 30. Before that, she walked with crutches and leg braces.

As a child, she’d had surgery, O’Toole said. “I saw what nurses did,” she added. “Men told them what to do. I knew nursing wasn’t for me.”

Even as a child, O’Toole could tell that male employers had the same attitude toward secretaries. “Sitting in an office all day didn’t seem like fun,” she said, “The only other thing a white woman in my generation could be when they grew up was to be a teacher.”

“I decided to be a teacher,” O’Toole added, “where I’d have my own classroom and no man would be telling me what to do.”

When she was young, O’Toole led, by her account, a sheltered life. She didn’t know then that she was queer. “I didn’t know if I met any queer people,” O’Toole said, “but I always knew that I liked strong women. I thought they were interesting.”

And, O’Toole, like many kids and teens with disabilities then (and, even often, now) knew that little was expected of disabled people. That disabled lives weren’t highly valued. “I was in school all the time with nondisabled kids,” O’Toole said.

Nearly everything was inaccessible then from libraries to courthouses to movie theaters. The Americans with Disabilities Act of 1990 (ADA) wouldn’t be passed until decades later. “You were expected to adapt even if things were inaccessible,” O’Toole said.

If you couldn’t make it in an inaccessible world, the attitude was “you don’t have to be here,” O’Toole said.

O’Toole didn’t meet other disabled people except during the summer, when she’d spend a month at a camp for disabled kids. The director and staff were nondisabled, O’Toole said. But at camp, she got to hang out with 90 other disabled kids. O’Toole got to interact with people like herself – disabled kids living vibrant lives. “We explored nature,” she said, “we collected blueberries. Made pancakes.”

There, O’Toole developed her life-long love of sports. As an adult, she has played competitive wheelchair basketball and power soccer. At her childhood summer camp, “We did archery,” O’Toole said, “and played baseball.”

At a time when sexism was the norm, O’Toole got to do things that girls usually couldn’t do at camp. “We went fishing,” she said, “We used power tools in a woodshop,” she said, “It was empowering!”

At camp, if the kids wanted to do something, they’d figure out a way to make it accessible  – to make it work, O’Toole added.

O’Toole, author of “Fading Scars: My Queer Disability History,” a groundbreaking book that was a Lambda Literary Award finalist, graduated in 1973 from Fitchburg State University with a bachelor’s degree in education and her teaching credentials. The summer after graduation, she moved with a friend to Berkeley, Calif.

O’Toole was eager to go to California. It would get her out of the cold of New England, where getting around in ice and snow if you’re using crutches or a wheelchair is difficult. “It sounded like fun,” she said. “I’d be in a part of the country where it’s a Mediterranean climate – it’s spring or summer. No snow.”

The move to California was transformative for O’Toole.

There, people thought about disability accessibility. She met queer people and disabled people as well as many nondisabled and disabled lesbians.

“At 23, I came out,” O’Toole said, “I met a woman in a women’s workshop.”

She got to know Kitty Cone, an out disabled lesbian and disability rights movement leader. (Cone died in 2015.) She connected O’Toole to the burgeoning independent living movement. “She brought me to the Center for Independent Living in Berkeley and to the disabled lesbian community,” O’Toole said.

The independent living movement believes in self-determination and self-respect for disabled people. It fights disability-based discrimination and views disability from a cultural and social, rather than a medical perspective. Independent living centers are community-based, non-profit organizations, organized and controlled by disabled people. They provide advocacy, information and other services.

“The Berkeley CIL had a lot of lesbians who were nondisabled,” O’Toole said, “we are the wives of every movement.”

O’Toole came to California at a pivotal moment in disability history – at the beginning of the modern disability rights movement. She quickly became a vital part of that history.

O’Toole, along with Cone and Judith Heumann, the disability rights movement founder who died last month, was a leader in a 1977 nearly month-long occupation by disabled protesters and their allies of a San Francisco federal building known as the “504 sit-in.” As a result of the protest, the Carter administration signed the ‘504′ regulations, which prohibited schools, hospitals, and other entities receiving federal funds from discriminating against disabled people. These regulations were the precursor to the ADA.

“Berkeley became like Mecca,” O’Toole, who is featured in the Oscar-nominated documentary “Crip Camp,” said. “Disabled people came to Berkeley from all over the world.”

In the years since the 1970s, O’Toole’s life has contained more multitudes than even Walt Whitman could have fathomed.

She is a single mom. Her daughter, whom she adopted, has a physical disability. O’Toole was a founder of the Axis Dance Company, an acclaimed ensemble of disabled and nondisabled performers. Currently, she’s working on a novel and traveling in a self-built camper van.

But things haven’t always been easy for O’Toole. Like many disabled parents, especially those who are disabled and queer, she’s encountered prejudice.

O’Toole’s daughter is now 30. Raising her daughter, O’Toole often feared that because she was a single mother, disabled and queer, she’d lose custody of her physically disabled child. It was fraught, O’Toole said, because of the bias against queer and disabled people being parents.

“The courts – the social service system – are all too happy to take your kids away,” O’Toole said.

O’Toole had to fight to get her daughter the services and education she needed.

“Because I was a lesbian, I had to constantly be in the closet,” she said, “our of fear that they’d take my child away if I was out.”

Her lovers, if they were around school system staff, would have to pretend to “just be my friends,” O’Toole said.

For decades, long before intersectionality was a fashionable buzzword, O’Toole, who is white, has thought about the intersection of class, queerness, race, and disability.

“I grew up in a working class neighborhood,” O’Toole said. “My Dad was a firefighter. I was taught a lot about class.”

“But there was a lot of racism embedded in my world,” she added.

It wasn’t until she went to Berkeley and became part of the lesbian community that she was “in rooms with lesbians of color,” O’Toole said.

White women need to listen better to women of color, she said. “We need to follow their lead.”

O’Toole couldn’t believe how much she didn’t know about what women of color experienced. Take just one thing: “I didn’t know that parking tickets could turn into jail sentences,” she said.

“I have to do the work,” O’Toole added, “it’s not their job to educate me. It’s my racism that’s blocking me from the truth.”

Despite all of the difficulties, O’Toole is hopeful. People are resilient. They love and care for each other, she said. “What are you doing to spread hope,” O’Toole asked.

The Blade may receive commissions from qualifying purchases made via this post.

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D.C. LGBTQ sports bar Pitchers listed for sale

Move follows months of challenges for local businesses in wake of Trump actions

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Pitchers is for sale at an undisclosed price. (Washington Blade file photo by Michael Key)

A Santa Monica, Calif.-based commercial real estate company called Zacuto Group has released a 20-page online brochure announcing the sale of the D.C. LGBTQ sports bar Pitchers and its adjoining lesbian bar A League of Her Own.

 The brochure does not disclose the sale price, and Pitchers owner David Perruzza told the Washington Blade he prefers to hold off on talking about his plans to sell the business at this time.

He said the sale price will be disclosed to “those who are interested.” 

“Matthew Luchs and Matt Ambrose of the Zacuto Group have been selected to exclusively market for sale Pitchers D.C., located at 2317 18th Street, NW in Washington, D.C located in the vibrant and nightlife Adams Morgan neighborhood,” the sales brochure states.

 “Since opening its doors in 2018, Pitchers has quickly become the largest and most prominent LGBTQ+ bar in Washington, D.C., serving as a cornerstone of D.C.’s modern queer nightlife scene,” it says, adding, “The 10,000+ SF building designed as a large-scale inclusive LGBTQ+ sports bar and social hub, offering a welcoming environment for the entire community.”

It points out that the Pitchers building, which has two years remaining on its lease and has a five-year renewal option, is a multi-level venue that features five bar areas, “indoor and outdoor seating, and multiple patios, creating a dynamic and flexible layout that supports a wide range of events and high customer volume.”

“Pitchers D.C. is also home to A League of Her Own, the only dedicated lesbian bar in Washington, D.C., further strengthening its role as a vital and inclusive community space at a time when such venues are increasingly rare nationwide,” the brochure says. 

Zacuto Group sales agent Luchs, who serves as the company’s senior vice president, did not immediately respond to a phone message left by the Blade seeking further information, including the sale price. 

News of Perruzza’s decision to sell Pitchers and A League of Her Own follows his Facebook postings last fall saying Pitchers, like other bars in D.C., was adversely impacted by the Trump administration’s deployment of National Guard soldiers on D.C. streets   

In an Oct. 10 Facebook post, Perruzza said he was facing, “probably the worst economy I have seen in a while and everyone in D.C. is dealing with the Trump drama.” He told the Blade in a Nov. 10 interview that Pitchers continued to draw a large customer base, but patrons were not spending as much on drinks.

The Zacuto Group sales brochure says Pitchers currently provides a “rare combination of scale, multiple bars, inclusivity, and established reputation that provides a unique investment opportunity for any buyer seeking a long-term asset with a loyal and consistent customer base,” suggesting that, similar to other D.C. LGBTQ bars, business has returned to normal with less impact from the Trump related issues.

The sales brochure can be accessed here.

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Alexander Skarsgård describes ‘Pillion’ in 3 words: lube, sweat, leather

Highly anticipated film a refreshingly loving look at Dom-sub life

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Harry Melling and Alexander Skarsgård star in ‘Pillion,’ which premieres in the U.S. on Feb. 6. (Photo courtesy of A24)

Whether you’ve seen him in popular HBO series like “True Blood,” “Succession,” or “Big Little Lies,” the dynamic Swedish actor Alexander Skarsgård has that smoldering gaze that immediately draws viewers in. 

Following in the footsteps of his father Stellan, (who just won the Golden Globe for “Sentimental Value”) the Golden Globe, Emmy, and SAG winner Skarsgård continues to be an actor who is fearless in the roles he takes on. 

That courageousness is evident in Skarsgård’s latest film, the BDSM black comedy “Pillion,”which he also executive produces. He plays Ray, the handsome, hyper-dominant leader of a gay bike gang. The film was written and directed by Harry Lighton, and is based on the 2020 novel “Box Hill,” by Adam Mars-Jones. 

“This was a small film by a first time filmmaker and it wasn’t financed when I read it,”  Skarsgård told journalists at a recent awards news conference. “And I felt that, if I could help in any small way of getting it financed, I wanted to, because I thought it was such an incredible screenplay and I believe in Harry Lighton so much as a filmmaker. And it felt tonally unlike anything I’d ever read. It was such an exciting, surprising read.”

Skarsgård was blown away by the quality of the unconventional script. “When I heard BDSM relationship, biker culture, I expected something very different. I didn’t expect it to have so much sweetness and tenderness and awkwardness.”

For the sex scenes and nudity with co-star, Harry Melling — who excels in his portrayal as Ray’s submissive Colin — Skarsgård talked very early on with Lighton about how he wanted to shoot those scenes, and why they were in the film. 

“I often find sex scenes quite boring in movies because a lot of the tension is in the drama leading up to two people hooking up, or several people hooking up, as in our movie. But what I really enjoyed about these scenes — they are all pivotal moments in Colin’s journey and his development. It’s the first time he gets a blowjob. It’s the first time he has sex. It’s the first time he has an orgasm. And these are pivotal moments for him, so they mean a lot. And that made those scenes impactful and important.” 

Skarsgård was happy that Lighton’s script didn’t have gratuitous scenes that shock for the sake of just shocking. “I really appreciated that because I find that when this subculture is portrayed, it’s often dangerous and crazy and wild and something like transgressive.”

He continued: “I really love that Harry wanted it to feel real. It can be sexy and intense, but also quite loving and sweet. And you can have an orgy in the woods, rub up against a Sunday roast with the family. And that kind of feels real.”

One of the obstacles Skarsgård had to work with was Ray’s emotionally distant personality.

“Ray is so enigmatic throughout the film and you obviously never find out anything about him, his past. He doesn’t reveal much. He doesn’t expose himself. And that was a challenge to try to make the character interesting, because that could easily feel quite flat…That was something that I thought quite a lot about in pre production…there are no big dramatic shifts in his arc.”

For the film, Lighton consulted the GMBCC, the UK’s largest LGBT+ biker club, attending their annual meetup at which 80 riders were present. 

“Working with these guys was extraordinary and it brought so much texture and richness to the film to have them present,” said Skarsgård. “They were incredibly sweet and guiding with us — I can’t imagine making this movie without them. I’d go on a road trip with them anytime.”

Added Skarsgård: “To sum up ‘Pillion’ in three words: lube, sweat, and leather. I hope people will connect with Colin and his journey, and come to understand the nuance and complexity of his bond with Ray.”

This year is shaping up to be a busy one for Skarsgård. “Pillion” premieres in select cities on Feb. 6 and then moves into wide release on Feb. 20. After that for Skarsgård is a role in queer ally Charli XCX’s mockumentary, “The Moment,” which premieres at the Sundance Film Festival. HIs sci-fi comedy series,  Apple TV’s “Murderbot,” which he also executive produces, will begin filming its second season. And this weekend, he hosts “Saturday Night Live.”

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MISTR’s Tristan Schukraft on evolution of HIV prevention

From ACT UP to apps, embracing stigma-free care

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Tristan Schukraft (Photo courtesy of Schukraft)

It was not too long ago that an HIV diagnosis was read as a death sentence. In its earlier decades, the HIV/AIDS crisis was synonymous with fear and loss, steeped in stigma. Over recent years, open conversation and science have come together to combat this stigma while proactively paving the way for life-saving treatments and preventive measures like PrEP. Now, in 2026, with discreet and modern platforms that meet people where they’re at in their lives, HIV prevention has evolved from hushed words of warning into something far more sex-positive and accessible. Game-changing services like MISTR are a testament to this shift, showing our community that healthcare doesn’t have to feel clinical or shaming to work. It can be empowering and, dare I say,  celebratory.

Few people embody this evolution quite like Tristan Schukraft, founder of MISTR. With one hand in healthcare and the other high-fiving through queer nightlife, Schukraft gets that, from the bar to the bedroom and beyond,  prevention happens in person and in real life. His approach has helped turn PrEP, DoxyPEP, and testing into normalized parts of our daily queer life, reaching hundreds of thousands of people across the US.

In our conversation, Schukraft shares candidly about stigma, policy, and why the future of sexual health depends on keeping it real.

BLADE: You have one hand in healthcare and the other in nightlife and queer spaces. Can you share with us how these two spheres impact and inform each other? How do they impact and inform you? 

SCHUKRAFT: Honestly, for me, they’ve never been separate. Nightlife and queer spaces are where people meet, date, hook up, fall in love, and make friends. That’s real life. Being in queer spaces all the time keeps me grounded and reminds me who we’re building MISTR for. 

BLADE: MISTR markets sexual health in a sex-positive, stigma-free fashion. Can you share with us how you measure the impact of this approach? 

SCHUKRAFT: This year, we held the first-ever National PrEP Day.  Dua Lipa performed, and Cardi B was there.  After the event, Cardi B went on her Instagram live to encourage people to sign up for PrEP.  

When you make sexual health stigma-free and sex positive, people talk about it. We see it in how people use the platform. When 700,000 people are willing to sign up, get tested, start PrEP, and add things like DoxyPEP, that tells us we’ve made it feel safe and normal instead of scary or awkward. And then we see it in the results. Since we expanded DoxyPEP, STI positivity among our patients dropped by half.  

BLADE: How have you seen the conversation of sexual health in our LGBTQ+ community change in mainstream culture in recent years? 

SCHUKRAFT: Ten years ago, nobody was casually talking about PrEP, and if they did, it likely referenced one being a Truvada whore. Now it’s part of the culture. Popstars like Troye Sivan post pictures of their daily PrEP pill on social media. Cardi B goes on Instagram Live telling people to get on PrEP.  

For many sexually active gay men, taking PrEP is simply part of the gay experience.  For people in more remote areas, it might not be as talked about. Particularly in rural or more conservative places, MISTR can be a life-changing option. No awkward visits to the family doctor or the local pharmacy where everybody knows your business. It’s all done discreetly online and shipped straight to your door. 

BLADE: You have publicly argued that cuts to government HIV prevention funding are of high risk. Would you please elaborate for us on what those budget decisions mean on an individual level? 

SCHUKRAFT: It means real people fall through the cracks. Someone doesn’t get tested. Someone waits too long to start PrEP. Someone finds out they’re HIV-positive later than they should have. Community clinics will be the hardest hit, especially those in underserved communities. The good news is that MISTR is ready to help people who might lose their access to care. All you need to do is sign up at mistr.com, and it’s totally free with or without insurance. 

BLADE: From your (and MISTR’s) perspective, how do these funding cuts threaten ongoing efforts to end the HIV epidemic? 

SCHUKRAFT: For the first time, we have all the tools to end HIV. If everybody who is HIV negative is taking PrEP and everyone HIV+ is virally suppressed, we can end all new HIV transmissions in the United States.  We have everything we need today.  All we need is to get more people on PrEP. Cutting funding risks losing that momentum. Ending HIV requires scale and consistency. Every time funding gets cut, you lose momentum, trust, and infrastructure, and rebuilding that takes years. 

HIV transmissions don’t pause because budgets change. 

BLADE: In our current climate of decreased federal investment, what role do you feel private healthcare and business should play in sexual health? 

SCHUKRAFT: With reports that the current administration is considering cuts to HIV and prevention funding,  we face a moment of reckoning. At the same time, some employers are seeking to exclude PrEP and HIV prevention from their coverage on religious freedom grounds. If these challenges succeed, and if federal funding is slashed, the consequences for public health will be devastating. But this is where the private sector must step up to fill the gap, bridge divides, and deliver results. 

Businesses have the power and platform to normalize HIV prevention and drive measurable outcomes. At MISTR, we see firsthand what’s possible: since introducing DoxyPEP, STI positivity rates among our patients have been cut in half. But it’s not just about medication. It’s about messaging.  

Our sex-positive, stigma-free marketing speaks directly to our community, making sexual health part of everyday life. No awkward doctor visits, no needles, no paperwork — just free online PrEP and STI testing, prescribed by real physicians and delivered to your door. That kind of impact could grow exponentially if more employers embraced this approach and made HIV prevention part of their employee wellness programs. 

Employers, this is your call to action. Start by making sure your health plans cover PrEP and DoxyPEP. Partner with platforms like MISTR to give employees private, stigma-free access to care. Offer on-site testing. Talk openly about sexual health, not just during Pride, but every day of the year. This is not political — this is about protecting lives, strengthening communities, and building a healthier, more productive workforce. Because healthy employees aren’t just good for public health — they’re good for business. 

When the private sector steps up, outcomes improve. And when businesses align with platforms like MISTR, scaling impact isn’t just possible — it’s happening. 

BLADE: Has MISTR experienced any direct effects from these recent shifts in public health funding? 

SCHUKRAFT: MISTR’s unique model is totally free for patients with or without insurance, and we don’t cost the government or taxpayers a penny. We are scaling up our efforts to reach people who might be losing their access or care. 

BLADE: What would be your message to policymakers who are considering further cuts to HIV/AIDS programs? 

SCHUKRAFT: During his first term, President Donald Trump committed unprecedented resources to the Ending the HIV Epidemic initiative here at home. Bipartisan support has shown what’s possible when bold leadership meets smart strategy. To policymakers: I urge you to reconsider any cuts to HIV prevention funding. This is not the time to pull back. It’s the time to push forward. Ending HIV is within reach — but only if government, private industry, and community organizations stand together. 

BLADE: What is one perhaps overlooked win from last year that impacted you on a personal level? 

SCHUKRAFT: Seeing our STI positivity rate drop by half after expanding DoxyPEP. 

BLADE: Looking at the year ahead, what are MISTR’s most significant priorities for sexual health in 2026? 

SCHUKRAFT: Expanding access, especially in the South and in communities that still get left out. Rolling out injectable PrEP. And just continuing to make sexual healthcare easier and more normal. 

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