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Meet ‘one of the most powerful disabled people on the planet’
Eddie Ndopu a wizard of advocacy and glam
(Editor’s Note: One in four people in America has a disability, according to CDC. Queer and disabled people have long been a vital part of the LGBTQ community. Take two of the many queer history icons who were disabled: Michelangelo is believed to have been autistic. Marsha P. Johnson had physical and psychiatric disabilities. Today, Deaf-Blind fantasy writer Elsa Sjunneson, actor and bilateral amputee Eric Graise and Kathy Martinez, a blind, Latinx lesbian, who was Assistant Secretary of Labor for Disability Employment Policy for the Obama administration are just a few of the people who identify as queer and disabled. Yet, the stories of this vital segment of the queer community have rarely been told. It its series “Queer, Crip and Here,” the Blade is telling some of these long un-heard stories.)
Everything comes full circle: back to Britney Spears for Eddie Ndopu, 32, a queer, Black, disabled man who is a wizard with advocacy and glam.
“I knew I was queer early on,” Ndopu whose memoir “Sipping Dom Perignon Through a Straw: Reimagining Success as a Disabled Achiever” (Legacy Lit) is just out, told the Blade recently in an extended interview, “though I didn’t have the language for it.”
Ndopu, whose mother fled from South Africa because of apartheid, was born in Namibia. At age nine, he and his family moved to Cape Town, South Africa. He was raised by his mother, a single mom.
When he was two, he was diagnosed with spinal muscular atrophy. He was expected to die from this degenerative disability by the time he turned five.
Decades later, Ndopu knows what it means to live with declining strength, and the knowledge, that while we’ll all die, he’ll likely die sooner than most of us.
At the same time,through his queerness, disability, and imagination, Ndopu said, he embodies what it’s like to live a fabulous life.
It began when he was a child watching and listening to Spears. “Britney was the first pop star I encountered as a young boy,” Ndopu said. “She was iconic in so many ways. I adored her! I watched her dance.”
His mother gave him an album by Spears. “It was my thing,” Ndopu said, “The first thing I owned.”
Spears seemed unstoppable to Ndopu. It triggered something in him. “It made me want to be on the global stage,” he said.
Years later, Ndopu empathized with Spears when she fought to be released from the conservatorship she was under from 2008 to 2021.
“Disabled fans, especially, were with Britney in her battle to be free,” Ndopu said, “because often, disabled people, particularly intellectually disabled people, have been denied agency. Have been denied their autonomy.”
We owe Spears an apology, Ndopu said. “It’s analogous to what disabled people go through,” he added, “we’re owed an apology for all the ways in which we’ve been made to endure so much [through ableism].” (This reporter is queer and disabled.)
Since childhood, Ndopu has loved beauty, fashion and glam. “My first dream was to be a designer,” he said, “I sketched in art classes in school.”
Ndopu daydreamed about living in the United States – about being based in New York City. He watched the soap opera “The Bold and the Beautiful.” “I didn’t watch for the stories about the characters,” Ndopu said, “I watched for the fashion! It gave me glimpses into a world where I wanted to be.”
But as his disability progressed, Ndopu lost strength in his hands. He could no longer draw. “I had to dream a new dream,” he said, “I knew I wanted to do something extraordinary. I imagined an escape.”
One day, he looked through a magazine and saw a story about a school, the African Leadership Academy, that was going to train young people in Africa to be future leaders. He applied to the school.
“They rejected me. Because they didn’t know what to do with me,” Ndopu said, “I wrote to them and got in.”
“I don’t know if I’d do that today,” but I did then,” he added, “that was my saving grace.”
Going there was Ndopu’s first big break. When he was only in his teens, Ndopu was speaking about disability justice.
After graduating from the Leadership Academy, Ndopu graduated with a bachelor’s degree in interdisciplinary studies from Carleton University in Canada in 2014. In 2017, Ndopu was the first African student with a degenerative disability to graduate with a master’s in public policy from the Blavatnik School of Government, Oxford University. Based at Somerville College, Ndopu received a full scholarship from Oxford.
Today, Ndopu, known for his fab oversized, bejeweled sunglasses, is an award-winning global humanitarian and social justice advocate. Time magazine has called him “one of the most powerful disabled people on the planet.”
Ndopu, fulfilling his childhood daydream, now, lives in New York City.
He is on the board of the United Nations Foundation, a group founded by Ted Turner to support the work of the UN. He works for the UN as a global advocate for sustainable development on issues from climate change to hunger.
Ndopu likes to identify as queer because, he believes, the word “queer” embodies all of his identities – from race to disability to sexuality to being fabulous. “I love to identify as queer,” he said.
In college, Ndopu was infatuated with a guy on the basketball team. He was heartbroken when his affections were unrequited. “That was the moment when I fully embraced my queerness,” Ndopu said, “I came out with my first heartbreak. There was no sitting with it. I went from zero to 100!”
Ndopu became one of the directors at Carleton’s gender and sexuality resource center. He studied queer theory.
There’s a critical contradiction for queer, disabled people, Ndopu believes. At its best, queerness (and the queer community) celebrates the full spectrum of bodies, sexuality and gender from nonbinary to pansexual to two-spirit. “The body is at the center for queer folks,” he said, “that’s something to celebrate.”
On the other side of the coin, though, the queer community doesn’t want to accept, “doesn’t want to have a conversation about bodies that aren’t the socialized idea of the body,” Ndopu said.
That often boils down to ableism toward queer, disabled bodies, Ndopu said. If you’re queer and disabled, you go through “the tension between acceptance and desire,” Ndopu said.
There are many “inspirational” memoirs by disabled people – tales of “overcoming” disability – of overpowering insurmountable odds.
Thankfully, Ndopu’s memoir doesn’t fit this bill at all. “Sipping Dom Perignon Through a Straw” is searing and intimate. Ndopu describes his family: what it was like to grow up with an absent father, how oppressed his mother was by apartheid and how loving and caring she was of him. But much of the memoir is focused on his year at Oxford.
For most people, queer, non-queer, disabled or nondisabled, being at Oxford would have been like being in a fairy tale. Like living the fantasy of your life.
For Ndopu, it was a crowning achievement. He had friends, studied what he wanted to study at a renowned university, and, even became student body president of his program.
Yet, from the get-go, his time at Oxford was riddled with ableism. The physical inaccessibility of the buildings was bad enough. But, Ndopu needs help 24/7 with activities of daily life from getting dressed to going to the bathroom. Finding and paying for caregivers at Oxford was a nightmare for him.
“A sharp, illuminating debut memoir,” Publishers Weekly, said of Ndopu’s book, “…Ndopu shines a light on ableism both conscious and unconscious.”
His experience at Oxford made Ndopu realize that being successful wouldn’t protect him from disability-based prejudice and discrimination. Being brilliant wouldn’t guarantee that you’d have a caregiver to help you pee. He came to believe exceptionalism is used against disabled people (and other marginalized groups).
“The idea that we have to be resilient – that if we have enough grit we’ll overcome all obstacles is used to oppress disabled people,” he said.
You might think that, given his shortened life expectancy and experience of ableism, homophobia, and racism, Ndopu would give up hope. But you’d be wrong.
“I’m going to go out like a fucking meteor!” queer and disabled icon Audre Lorde says in the epigraph to Ndopu’s memoir.
“I deliberately chose this quote from Lorde’s Cancer Journals,” Ndopu said, “I hope I’ll die in as close to a transcendent experience as possible.”
No matter what, Ndopu will be fabulous. “It’s not a frivolous thing,” Ndopu said, “being fabulous makes me, visible.”
For too long, queer and disabled people have been invisible, he added.
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a&e features
Memorial for groundbreaking bisexual activist set for May 2
Loraine Hutchins remembered as a ‘force of nature’
The Montgomery County Pride Center will host a celebration honoring the life and legacy of Loraine Hutchins, Ph.D., on May 2. People are invited to attend the onsite memorial or a livestream event. The on-site event will begin at 10 a.m. with a meet-and-greet mixer before moving into a memorial service around the theme “Loraine a Force of Nature!” at 11 a.m., a panel talk at 12 p.m., break out sessions for artists, academics, and activists to build on her legacy at 1 p.m. and a closing reception at 2 p.m.
Attendees are encouraged to register for the on-site memorial gathering or the livestreamed memorial. The goal of this event is also to collect stories and memories of Loraine. Attendees and others can share their stories at padlet.com.
An obituary for Hutchins was published in the Bladelast Nov. 24, where people can learn more about her activism in the bisexual community. A private service for friends and family was held in December but this memorial service is open to all.
Alongside her groundbreaking work organizing for U.S. bisexual rights and liberation including co-editing “Bi Any Other Name: BIsexual People Speak Out” (1991), she also integrated faith into her sexual education and advocacy work. Her 2001 doctoral dissertation, “Erotic Rites: A Cultural Analysis of Contemporary U.S. Sacred Sexuality Traditions and Trends,” offered a pointed queer and feminist analysis to sex-neutral and sex-positive spiritual traditions in the United States. Her thesis was also groundbreaking in exploring the intersections between sex workers and those in caregiving professionals, including spiritual ones.
In an oral history interview conducted by Michelle Mueller back in August 2023, Hutchins described herself as a “priestess without a congregation.” While she has occasionally had a sense of community and feels part of a group of loving people, she admitted that “I don’t feel like we have the shape or the purpose that we need.”
“I’ve often experienced being the Cassandra in the room, the Cassandra in the community. Somebody who’s kind of way out there ahead, thinking through the strategic action points that my community hasn’t gotten to yet, and getting a lot of resistance and hostile responses from people who are frightened by dissent and conflict and not ready for the changes we have to make to survive,” she said.
“For somebody who’s bisexual in an out political way and who’s been a spokesperson for the polyamory movement in an out political way, it’s very exposing. And it’s very important to me to be able to try to explain and help other people understand the connection between spirituality and sexuality,” she explained citing how even as a graduate student she was “exploring how to feel erotic and spiritual, and not feel them in conflict with each other in my own spiritual contemplative life and my own sensual body awareness of being alive in the world.”
“Every religion has a sense of sacred sexuality. It’s just they put a lot of boundaries and regulations on it, and if we have a spiritual practice that is totally affirming of women’s priesthood and of gay people, queer people’s ability to minister to everyone and to be ministered to be everyone, what does that do to the gender of God, or our understanding of how we practice our spirituality and our sexuality in community and privately?”
“There’s no easy answer,” she concludes, and she continued to grapple with these questions throughout her life, co-editing another seminal text, “Sexuality, Religion and the Sacred: Bisexual, Pansexual, and Polysexual Perspectives,” published in 2012. Her work blending spiritual and queer liberation remains groundbreaking to this day.
Rev. Eric Eldritch, a local community organizer and ordained Pagan minister with Circle Sanctuary who has worked for decades with the DC Center’s Center Faith to organize the Pride Interfaith Service, is eager to highlight this element of her legacy at the memorial service next month.
a&e features
Queery: Meet artist, performer John Levengood
Modern creative talks nightlife, coming out, and his personal queer heroes
John Levengood (he/him) describes himself as a modern creative with a wide‑ranging toolkit. He blends music, technology, civic duty, and a sharp sense of wit into a cohesive artistic identity. Known primarily as a recording artist and performer, he’s also a self‑taught music producer and software engineer who embodies a generation of creators who build their own lanes rather than wait for one to appear.
Levengood, 32, who is single and identifies as gay and queer, is best known as a recording artist who has performed at Pride festivals across the country, including the main stages of World Pride DC, Central Arkansas Pride, and Charlotte Pride.
“Locally in the DMV, I’m known for turning heads at nightlife venues with my eye-catching sense of style. When I go out, I don’t try to blend in. I hope I inspire people to be themselves and have the courage to stand out,” he says.
He’s also known for hosting karaoke at Freddie’s Beach Bar in Arlington, Va., on Thursday nights. “I like to create a space where people feel comfortable expressing themselves, building community, and showcasing their talents.”
He also creates social media content from my performances and do interviews at LGBTQ+ bars and theatres in the DMV. Follow the Arlington resident @johnlevengood.
How long have you been out and who was the hardest person to tell?
I have been fully out of the closet since 2019. My parents were the hardest people to tell because my family has always been my rock and at the time I couldn’t imagine a world without them. Their reactions were extremely positive and supportive so I had nothing to fear all along.
I remember sitting on the couch with my mom, dad, and sister in our hotel room in New Orleans during our winter vacation and being so nervous to tell them. After I finally mustered up the nerve and made the proclamation, I realized my dad had already fallen asleep on the couch. My mom promised to tell him when he woke up.
Who’s your LGBTQ hero?
My LGBTQ heroes are Harvey Milk for paving the way for gays in politics and Elton John for being a pioneer for the fabulous and authentic. My local heroes in the DMV are Howard Hicks, manager of Green Lantern, and Tony Rivenbark, manager of Freddie’s Beach Bar. Both of them are essential to creating spaces where I’ve felt welcome and safe since moving to the DMV.
What’s Washington’s best nightspot, past or present?
Trade tops the list for me because of the dance floor and outdoor space. It’s so nice to get a break from the music every once and a while to be able to have a conversation.
We live in challenging times. How do you cope?
I’m still figuring this out. What is working right now is writing music and spending time with family and friends. I’ve also been spending less time on social media going to the gym at least three times a week.
What streaming show are you binging?
After “Traitors” Season 4 ended, I was in a bit of a show hole, but “Stumble” has me in a laughing loop right now. The writing is so witty.
What do you wish you’d known at 18?
At 18, I wish I would have known how liberating it is to come out of the closet. It would have been nice to know some winning lottery numbers as well.
What are your friends messaging about in your most recent group chat?
We are planning our next trip to New York City. If you can believe it, I visited NYC for the first time in 2025 for Pride and I’ve been back every quarter since. Growing up in the country, I was subconsciously primed to be scared of the city. But my mind has been blown. I can’t wait to go back.
Why Washington?
It’s the closest metropolitan area to my family, but not too close. I love the museums, the diversity, the history, and the proximity to the beach and mountains. It’s also nice to live in a city with public transportation.
Aging RFK Stadium has come down, but the RFK grounds are still getting lit up. Welcome back to the stage Project GLOW, D.C.’s homegrown electronic festival, on May 30-31. Back for its fifth year on these musically inclined acres, Project GLOW returns with an even more diverse lineup, and one that continues to celebrate LGBTQ antecedents, attendees, and acts.
Project GLOW 2026 headliners include house and techno star Mau P, progressive house legend Eric Prydz, hard-techno favorite Sara Landry, and bass acts Excision b2b Sullivan King, among the lineup of trance, bass, house, techno, dubstep, and others for the fifth anniversary year.
President & CEO Pete Kalamoutsos — born and raised in D.C. — founded Club GLOW in 1999. In 2020, GLOW entered into a partnership with global entertainment company Insomniac Events to produce live events like Project GLOW, which kicked off in 2022.
As in past years, Project GLOW not only makes space, but is intentionally inclusive of the LGBTQ community, one of its most dedicated fan bases. The festival’s LGBTQ-focused Secret Garden stage blooms again — a more intimate dance area that stands on the strength of DJs and musicians who draw from the LGBTQ community. D.C.’s LGBTQ nightlife mastermind Ed Bailey is the creative mind behind Secret Garden again. He joined Project GLOW in 2023.
“Kalamoustos says that “he’s proud of his partnership with Ed Bailey, along with Capital Pride and [nightlife producer] Jake Resnikow. It’s amazing to collaborate with Bailey at the Secret Garden stage, especially after the curated lineup we worked on at Pride last year.”
The Secret Garden will be a bit different from other stages: Eternal (“At the Eternal stage, time stands still. Lose yourself in the dance of past, present, and future, surrendering to the eternal rhythm of the universe”) and Pulse (“Feel the rhythm of the beat pulse through your veins as the heartbeat of the crowd synchronizes into one. Here, every moment vibrates with life as it guides you through a new dimension of euphoria”). The Secret Garden stage is in the round, surrounded by 16 shipping containers. The containers play canvas to muralists from around the world, who are coming in to paint them in a vibrant garden-style vibe. “We gave this stage some extra love with this layout,” K says, “ we finally cracked the code.”
K says that this will be the biggest lineup yet for the Secret Garden, featuring Nicole Moudaber b2b Chasewest, Riordan b2b Bullet Tooth, Ranger Trucco, Cassian, Eli & Fur, Cosmic Gate and Hayla. The stage is also the largest yet, featuring an expanded dance floor and 360-degree viewing.
Across all stages, K says that his goal for the fifth anniversary is “More art and fan interactive experience, more like a festival, strive to be like a Tomorrowland, as budget grows to add more experience.” Last year’s Project GLOW alone drew 40,000 attendees over two days.
K, however, was not satisfied with one festival this spring. GLOW recently announced a “pop-up” one-day event. Teaming up with Black Book Records, GLOW is set to throw a first-of-its-kind dance-music takeover of Pennsylvania Avenue, N.W., headlined by electronic music star Chris Lake. Set for April 18, this euphoric block party will feature bass and vibes blocks from the White House. Organizers expect as many as 10,000 fans to attend. Beyond music, there will be food, activations, and plenty of other activities taking place around 6th St and Pennsylvania Ave NW – a location familiar to many in the LGBTQ community, as this sits squarely inside the blocks of the Capital Pride party that takes place in DC every June.
Over the past two decades, Club GLOW has produced thousands of events, from club nights to large-scale festivals including Project GLOW, Moonrise Festival, and more. Club GLOW also operates Echostage.
Comings & Goings
Learn more about queer love
Calendar: May 8-14
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