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‘Berlin Patient’ announces foundation to seek AIDS cure

Timothy Ray Brown maintains he is the first person to be cured of AIDS

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Gay News, Washington Blade, HIV/AIDS

Timothy Ray Brown (Blade photo by Michael Key)

The man who maintains he is the first person in the world to be cured of AIDS stressed during a D.C. news conference on Tuesday that he continues to live without HIV.

“I am HIV negative, and I am free of the virus,” Timothy Ray Brown nervously told reporters, scientists and HIV/AIDS activists at the Westin City Center hotel.

Brown, who became known as the “Berlin Patient,” tested HIV positive in 1995 while studying in the German capital. He maintains that his body became resistant to HIV in 2007 after he underwent the first of two bone marrow stem cell transplants to treat leukemia.

However, researchers from the University of California-San Francisco and other institutions announced last month that they had found traces of HIV in Brown’s blood and tissue samples.

While not a definitive diagnosis, media reports began to question whether Brown’s claim that he had actually been cured of the disease.

“Despite what you may have read and heard recently in the media — I am cured of the AIDS virus,” stressed Brown. “My doctors and the scientists I continue to work with on a regular basis have concluded that I am cured of AIDS — and will remain cured.”

Brown, who had previously never held a news conference in the United States, also unveiled a new foundation that shares his name that will support efforts to find a cure for AIDS. This announcement coincided with the second full day of the International AIDS Conference at the Walter E. Washington Convention Center.

“This foundation will support and invest in cutting-edge therapies and treatments that show promise and have the potential to lead to the end of this disease,” said Brown. “If it weren’t for my own doctor in Berlin, who took a chance on an alternative therapy, I would not be standing here in front of you as living proof that there is — and could be — a cure for AIDS.”

World AIDS Institute CEO David Purdy first met Brown before the 19th International AIDS Conference taking place in Washington. He said during the news conference that his story provides hope to those who continue to struggle with HIV/AIDS.

“I’ve lived with HIV myself for 18 years,” said Purdy. “In the early days of AIDS, people talked about a cure, but the way they talked about it was we need a cure and we need a cure now because they didn’t know what else to say. They didn’t know what an antiretroviral was. The  idea of an AIDS drug was not even on the horizon at that point in time, but it’s different now and it’s because of one man — one very special man.”

Purdy added that House Minority Leader Nancy Pelosi (D-Calif.) described Brown as a “miracle” when they met during an AIDS 2012 reception on Monday night.

“Leader Pelosi was honored to meet Timothy Ray Brown, the ‘Berlin Patient,’ yesterday during her event in honor of the International AIDS Conference,” Pelosi spokesperson Drew Hammill told the Blade. “Thanks to his bravery and the ingenuity of his doctor, we have renewed hope for achieving a cure for this horrific disease.”

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Health

UNAIDS to commemorate Zero Discrimination Day’s 10th anniversary

UN agency urges global action to protect human rights

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A UNAIDS anti-discrimination exhibit at Tocumen International Airport in Panama in 2018. (Washington Blade photo by Michael K. Lavers)

As the world marks the 10th anniversary of Zero Discrimination Day; UNAIDS is sounding the alarm on the increasing threats to human rights, calling for renewed efforts to protect the rights of all individuals as a fundamental step towards ensuring health for everyone.

Established by UNAIDS a decade ago, Zero Discrimination Day aims to promote equality and fairness regardless of gender, age, sexuality, ethnicity or HIV status. The progress achieved over the past years is now in jeopardy, however, due to rising attacks on the rights of women, LGBTQ people and other marginalized communities.

UNAIDS Executive Director Winnie Byanyima emphasized the critical link between protecting human rights and safeguarding public health. 

“The attacks on rights are a threat to freedom and democracy and are harmful to health,” she said in a press release. “Stigma and discrimination obstruct HIV prevention, testing, treatment and care and hold back progress towards ending AIDS by 2030. It is only by protecting everyone’s rights that we can protect everyone’s health.”

Despite challenges, there has been notable progress. 

At the onset of the AIDS pandemic more than 40 years ago, two-thirds of countries criminalized consensual same-sex sexual relations. They are now decriminalized in two-thirds of countries. An additional 38 countries around the world have pledged to end HIV-related stigma and discrimination, contributing to positive changes that include 50 million more girls attending school compared to 2015.

To sustain and enhance these advancements; UNAIDS urges global support for women’s rights movements, LGBTQ rights, racial justice, economic justice, climate justice and peace initiatives. By standing with communities advocating for their rights, the U.N. aims to reinforce the collective effort towards a more inclusive and equitable world.

Zero Discrimination Day is observed on March 1.

Events and activities that will take place around the world throughout the month will serve as reminders of the essential lesson and call to action: Protecting everyone’s health is synonymous with protecting everyone’s rights.

“Through upholding rights for all, we will be able to achieve the Sustainable Development Goals and secure a safer, fairer, kinder and happier world — for everyone,” said Byanyima.

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Health

New CDC report finds transgender women at higher risk for HIV

More than 1,600 people in seven cities surveyed

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The Centers for Disease Control and Prevention in Atlanta (Photo courtesy of the CDC)

The Centers for Disease Control and Prevention issued a new study report this week that revealed that restricted by employment and housing discrimination and lack of access to needed gender-affirming healthcare for transgender women increasing the risk of contracting HIV. 

Researchers reviewed data from a 2019-2020 survey, the National HIV Behavioral Surveillance Among Transgender Women, which found that the demographics of HIV/AIDS have been disproportionally high, especially among Black and Latina trans women, who had experienced employment and housing discrimination coupled with lack of access to gender-affirming healthcare.

The Jan. 25 Morbidity and Mortality Weekly Report was based on data studies of more than 1,600 trans women in seven major urban locales. Participants from Atlanta, Los Angeles, New Orleans, New York, Philadelphia, San Francisco and Seattle were chosen by referrals from people and community-based organizations who knew or were part of the local population of trans women.

The study’s researchers noted: “Employment discrimination occurs at the overlapping nexus of poverty, homelessness, incarceration, health insurance, disability, food insecurity and survival sex work. These issues are interconnected.”

The study stated that trans women’s inability to access quality healthcare, including gender-affirming treatment or access to PrEP, and can expose them to potential incarceration as many turn to “survival sex work” and violence, which increases the risk of contracting HIV. 

The study’s author’s pointed out: “When economically marginalized transgender women are refused employment, this refusal cyclically contributes to economic hardships. This analysis …demonstrates the importance of transgender women working and living with dignity and without fear of unfair treatment.”

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Health

A Whole New Perspective on Well-Being

The Mather’s team recognizes that everyone’s wellness journey is completely unique to their life experiences and influences.

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The Mather is incorporating biophilic design—a design approach to facilitate access to nature or things that replicate natural patterns.

It’s easy to spot the distinctive, elegant silhouette of The Mather, a Life Plan Community for those 62+ opening this spring in Tysons, Virginia. What is not apparent to the naked eye is The Mather’s unique wellness philosophy, which is literally built into the community. 

The Mather’s team recognizes that everyone’s wellness journey is completely unique to their life experiences and influences.

Nature is one of the important factors that contribute to well-being. So The Mather is incorporating biophilic design—a design approach to facilitate access to nature or things that replicate natural patterns. This can include interior spaces with sightlines to a garden, choosing natural wood and stone as interior materials, or incorporating fragrant flowers and plants indoors to spark memories and provide tactile opportunities such as gardening. 

Residents of The Mather will be able to select from plentiful amenities, programs, and other offerings to target their personal wellness goals and preferences.

“Providing biophilic design within interior settings connects residents to the natural world,” says Mary Leary, CEO and President of Mather, the organization behind The Mather. “Research shows that a connection to nature provides positive benefits to mental states and overall well-being. At The Mather, biophilic design is the intersection of buildings and programs with nature in an urban setting.”

“The Mather is attracting a diverse group of older adults,” says Mary. “As a result, we aim to incorporate wellness practices from around the world, including Wyda movement theory of the Celtic Druids, which helps people achieve harmony with nature and contentment through mindfulness.” This holistic regenerative approach is similar to Qi Gong and yoga, while born in a different part of the world. Mather Institute has a special focus on mindfulness to support older adults’ practice of present moment awareness, which can lead to increased overall well-being, compassion, and joy.

A very different example of a wellness offering at The Mather is the Gharieni Welnamis spa wave bed, which uses computer-controlled vibrational therapy and audio frequencies to train the brain to relax. “The bed increases mindfulness, concentration, and creativity—all of which support our mission of creating Ways to Age Well,SM” says Mary.

These and other personalized ways to wellness will ensure that residents of The Mather can choose from seemingly countless ways to focus on their well-being. In other words, the sky’s the limit!

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