Opinions
The intergenerational impact of aging with HIV
Dec. 1 is World AIDS Day
BY TERRI L. WILDER | Today, Dec. 1, 2024, the global HIV community marks the 37th annual World AIDS Day (WAD). Here in the U.S., the face of HIV looks quite different than it did on the first WAD in 1988. It is estimated that more than 50 percent of people living with HIV (PLHIV) in the U.S. are aged 50 and older — an age that must have seemed impossible to the countless young people diagnosed during the height of the epidemic. Some were diagnosed later in life, whereas others have lived with HIV for many years — in some cases, since birth.
While their stories differ, PLHIV all face a common challenge: facing the impact of aging with HIV. The theme of WAD 2024 is “Collective action: Sustain and accelerate HIV progress.” A key to this progress is uplifting and understanding the real stories and lived realities of those growing older with HIV and using their experiences to guide proactive policy.
The spread of misinformation
In 1981, the first cases of what would later be identified as HIV (human immunodeficiency virus, the cause of AIDS) were reported. Three years later, Nathan Townsend was diagnosed with HIV at age 30.
When he got the call with the news, he was shocked. Early reports of HIV often suggested that only specific communities — most notably white gay men — were vulnerable to HIV. However, widespread misinformation contributed to the Black community later accounting for nearly half of all AIDS-related deaths, according to a 1999 CDC report.
Then, Nathan received more grim news: He was told by his doctors he only had two years to live. Believing he was going to die, Nathan purchased a casket and paid for his future funeral — one that thankfully didn’t come.
Today, Nathan is one of the growing number of older people who live with HIV, with researchers estimating that 70 percent of those living with the virus will be 50 and older by 2030.
The stigma of HIV diagnosis
As awareness of HIV grew in the late 1980s, many Americans expressed stigmatizing attitudes. A 1985 Gallup poll found that 28 percent of Americans reported that they or someone they knew had avoided places where gay men might be present because of HIV; by 1986, the percentage had grown to 44 percent.
This was the beginning of the endless stigma faced by those living with HIV — something Porchia Dees and Grissel Granados experienced.
Porchia was diagnosed at two months old through perinatal transmission and is part of the first generation of children born with HIV. Doctors indicated that Porchia wouldn’t live to see her fifth birthday. Fortunately, Porchia would prove them wrong.
Porchia still remembers the stigma she felt when she learned of her diagnosis in sixth grade from a social worker at the Children’s Hospital in Los Angeles. She recalled being pulled aside and asked if she was sexually active before being explicitly warned against having any sexual activity. The next time she heard about HIV was in a sex education class, which furthered the stigmatizing message that she would never live a “normal” life.
Today, Porchia is an advocate, changing people’s perspectives on what it means to live with HIV, but it does not come without challenges. At 38-years-old, Porchia is more focused on her health after witnessing long-term HIV survivors battle kidney failure, renal failure, bone density issues, cognitive issues, breast cancer, and shortened lifespans.
Grissel, another lifetime HIV survivor who acquired HIV through perinatal transmission, considers herself lucky that her mother explained the diagnosis to her at a young age. Despite her family’s support and honesty about HIV, a now 38-year-old Grissel still had to grow up with fear and uncertainty while now facing the fear of early mortality.
Social isolation
When Rev. Claude Bowen was 33 years old, he received a phone call that would change his life: His HIV test came back positive.
Believing he only had two years to live, he hid himself away, self-medicating and isolating himself from his support systems. These coping mechanisms served as an escape from his reality. But eventually, he realized that this was his reality and wanted to fight. He started getting involved in HIV education and advocacy work after his best friend disappeared in the late 80s. He would soon get a phone call, learning his friend had died of complications related to HIV.
For the LGBTQ+ community, losing friends and chosen family during this time became all too common. From 1984-1986, over 42,500 people in the U.S. died from HIV-related causes, which doesn’t account for individuals who died from complications related to HIV whose families or loved ones asked that the cause of death not be disclosed. For older PLHIV, this devastating loss of community has contributed to social isolation and loneliness.
Living and aging with HIV
With access to care, HIV is no longer a death sentence, thanks to scientific advancements in medications and treatments. Whether in your 70s like Nathan or 38 like Portia, many health challenges now faced by people living with HIV are more related to aging than to HIV-related illnesses.
Aging with HIV comes with a greater risk of health problems from inflammation from the virus and the long-term use of HIV medications. Many people aging with HIV also face the “dual stigma” of ageism and HIV-related stigma, leading to high rates of anxiety, depression, and substance use disorders. Furthermore, many have lost friends and family to the HIV epidemic, leading to loneliness and increased risks of cognitive decline and other medical conditions in older adults, as found in a 2023 study from Frontiers in Aging Neuroscience.
Acknowledging the challenges that people aging with HIV face helps ensure they get the necessary support to live a fulfilling and thriving life.
Taking action
The Older Americans Act (OAA) funds aging services and supports for older people across the country to age-in-place. In 2024, the federal Administration for Community Living (ACL) issued new regulations ensuring that LGBTQ+ older people and older people living with HIV could have more equitable access to the programs funded under the OAA. Yet, there is still more work that could be done to ensure equitable access for those living with HIV. Congress is currently in the process of reauthorizing the law.
While we face a challenging time in modern politics, we must urge our legislators to do whatever they can to ensure that the OAA and similar laws support PLHIV. And all of us must work with our state and area agencies on aging to robustly implement the latest OAA regulations, to ensure that all older people, including LGBTQ+ older people and those living with HIV, get the services and supports they need to remain independent.
States can also do more to protect people living with HIV by passing state-level LGBTQ+ and HIV Long-term Care Bills of Rights, as advocated for by activists and organizations, including SAGE, the world’s oldest and largest advocacy organization dedicated to improving the lives of LGBTQ+ elders. These laws ensure that LGBTQ+ older people and those aging with HIV receive equitable treatment in long-term care facilities. For instance, one long-term survivor, 82, who asked to remain anonymous for this piece, credits his doctor for his excellent treatment and care, saying, “It is tremendous to have someone in your corner that you can talk to openly and ask questions” without fear of judgment.
Finally, we must advance policies that address the needs of all those living with HIV and AIDS, no matter their ages.
The time is now
The impact of living with HIV is different for every generation. From lifetime survivors like Porchia and Grissel to those aging with HIV like Claude and Nathan, access to community support, services, and HIV-specific healthcare is essential for quality of life across generations.
This WAD, HIV advocates, aging organizations, and stakeholders must stand with local legislators to ensure care, protection, and support for all PLHIV.
Terri L. Wilder (She/Her), MSW, is the HIV/Aging policy advocate at SAGE, the world’s oldest and largest advocacy organization dedicated to improving the lives of LGBTQ+ elders. In her role, she implements SAGE’s federal and state HIV/aging policy priorities.
Terri has worked in HIV care since 1989, providing social services, directing education programs for clients and medical providers, and advocating for policy change. She is an experienced public speaker who has presented at conferences worldwide on various HIV topics. Terri is also an award-winning writer who has published on multiple HIV-related topics through The Body’s website, among others. Terri served on the New York Governor’s Task Force to End AIDS (EtE) and the New York Governor’s Hepatitis C Elimination Taskforce, where she contributed to the development of state plans to end the HIV epidemic and eliminate Hepatitis C.
She is a member of the New York State Department of Health AIDS Advisory Council EtE Subcommittee, and the Minnesota Council for HIV/AIDS Care and Prevention (MCHACP). Terri has been recognized for her work through the POZ 100: Celebrating Women edition of POZ magazine (2017), as well as awards from the NYS DOH AIDS Institute, AIDS Survival Project, and Bridging Access to Care, Inc.
Commentary
When a church fears the rainbow
Puerto Rico pastor objected to Pride symbols outside congregation
There are moments when an incident stops being merely a local story and begins to reveal something much deeper. What happened on June 28 outside One Church, in Comerío, Puerto Rico, belongs in that category.
I do not know who painted the rainbow colors on the asphalt and on a roadside guardrail. I do not know what motivated them, and it is not my place to justify their actions. If someone believes a law was broken, there are authorities and legal mechanisms to address that. That is not the point of this reflection.
The point is the words that followed.
Hours after those colors appeared, Pastor Jorge J. Santiago Reyes went live on social media. He said he felt threatened. He described what happened as a physical attack against his church. He appeared angry and disappointed. He called those who painted the rainbow “cowards” and “charlatans.” He expressed frustration with the support that, according to him, the municipal government of Comerío has shown toward the LGBTQ community, and with those who support posts related to that community. He repeated several times that the people responsible had “crossed the line.” He ended his message by saying, “These charlatans have to be stopped.”
As I listened to his words, I stopped thinking about the paint.
I began thinking about fear.
There is one phrase the pastor repeated again and again: “They crossed the line.” Yet he never explained what that line was. If he was referring to a possible violation of the law, that is for the authorities to determine. If he meant respect for property, there are also procedures to deal with that. But when that line remains undefined and the message begins to associate a rainbow with a threat, the question changes. It is no longer only about a guardrail or a road. It becomes a question about what boundary, in the pastor’s view, was actually crossed.
Paint can be erased.
A brush can cover the asphalt and return a guardrail to its original color.
What does not disappear so easily is the meaning of those colors.
And perhaps that is where the real conflict begins.
It is significant that this happened precisely on June 28, the day when the LGBTQ community remembers a history marked by exclusion, violence, and the struggle for dignity. What represents memory, hope, and the possibility of living without hiding for millions of people was presented by others as a threat.
I do not know why someone painted that rainbow. I do not need to know in order to ask whether those were the words society should expect from a pastor.
A religious leader may feel hurt, frustrated, or angry. What he cannot forget is the responsibility that comes with every public expression. His words do not end when a livestream ends. They move beyond the space of his church, reach people who may never share his faith, and help shape the way others see those who think differently. When a pastor calls other people “charlatans” and “cowards,” says they “have to be stopped,” and turns a rainbow into evidence of an attack, he is no longer speaking only from frustration. He begins to build a discourse that can feed rejection toward a community far larger than the people responsible for that act.
There was another moment in the livestream that caught my attention. The pastor reminded viewers how much he has served Comerío, how much he has accompanied his community, and how much he has worked for it. I have no reason to question that service. I am sure many people can testify to the good he has done.
That is precisely why it was difficult to hear.
Pastoral vocation is not about reminding a town of everything one has done for it when conflict appears. Service does not lose its value when it goes unrecognized; it loses something when it becomes an argument to claim a moral position from which to speak down to others. A person who serves does so because that is the nature of the calling, not because that service grants authority to discredit those who think differently.
As a pastor, that part of the message left me deeply uneasy. Not because I expect ministers of God to be perfect. We are not. But because our words carry weight, we are called to speak with greater responsibility. Some expressions build bridges. Others raise walls. Some words invite encounter. Others end up justifying rejection.
The paint will disappear. A brush will be enough to cover the asphalt and return the guardrail to its original color.
The words will not disappear as easily.
They will remain recorded in a video, shared again and again on social media, and remembered by those who heard them. They will remain long after the last trace of paint has been erased.
When this episode is remembered, it probably will not be because of the rainbow that appeared outside One Church, in Comerío, Puerto Rico.
It will be because of the words a pastor chose to use when speaking about it.
And that difference changes everything.
Opinions
D.C. queer faith leaders commit to exist, resist, persist
Pride Interfaith Service features remembrances, celebration
Last month, Center Faith hosted the 43rd annual Pride Interfaith Service titled “In Faith We Exist. Resist. Persist!” at St. Mark’s Episcopal Church in Washington, D.C. Amid torrential downpours, queer leaders and people of faith from Muslim, Catholic, Episcopalisn, Unitarian Universalist, Jewish, Pagan, and many other communities gathered in a church immediately behind the John Adams building.
In the two-hour service, leaders spoke about the power of faith in the fight for LGBTQ rights and against Chrisitan nationalism, all while honoring three lifelong leaders in the D.C. LGBTQ interfaith community.
The service began with Rev. Michelle Morgan welcoming everyone to St. Mark’s Episocal Church, followed by greetings from Robert Sanchez, representing The DC LGBTQ+ Community Center, Japer Bowles, representing the D.C. Mayor’s Office of LGBTQ Affairs, and Danielle Goldstone, representing the Interfaith Council of Metro Washington.
Rev. Ebony Peace, a Unitarian Universalist community minister and one of the service organizers, welcomed everyone with a blessing:
“Today in this interfaith worship service, we celebrate our existence. We honor those past and present who resist oppression. We acknowledge today that the fight for freedom and dignity is not over. We will be here. We will not be silent, and we will not back down.”
Representatives from diverse faith traditions followed by creating and blessing the space with a libation ritual by Rev. Elder Dr. Akosua McCray from Unity Fellowship Church of Washington, DC, a recognition and grounding in the elements by David Dashifen Kees from The Firefly House, along with readings from Aura Kaiser (DC Queer Muslims), Daisaku Leslie (Sokka Gakkai International), and Jonah Richmond and Rachel Dubin from Jewish temples throughout the Washington, DC area.
Rev. Cathy Alexander and her partner Dr. Carla Sherrell shared an offering on love, an interpretation of 1 Corinthians 13 and a contemporary meditation by Rev. Tess Baumberger on behalf of the Metropolitan Community Church in DC, followed by words of joy by Rev. Thomas Wieczorek from the National Catholic Church and silent meditation led by Joe Izzo from the Friends Meeting of Washington.
After songs and responsorial affirmations, Bishop Mariann Budde, who is perhaps best known for delivering the homily at the January 2025 interfaith prayer service immediately following Donald Trump’s second presidential inauguration, spoke at the service. In her gentle but determined voice that reverberated throughout the space, she asserted that “I’m here tonight to affirm the unshakable goodness of each person here and of every person, and to say without equivocation that what needs to be resisted by each and everyone one of us is anything that would negate that goodness, that would cause any of us to feel less than worthy of love and belonging.”
She was followed by a beautiful call and response song led by Cantor Ze’evi Tovlev from Temple Shalom titled “The Birds Don’t Know.” As Cantor Tovlev sang the words “I will sing a song of mourning, I will transform and let go,” this service shifted to recognizing–as it had when Elder Akosua McCray led the libation ritual, all the queer and trans elders who have gone before us, including one of the honorees this evening: SaVanna Wanzer who passed away in April of this year.
SaVanna Wanzer was one of the original founders of DC Trans Pride and DC Black Trans Pride. As one of the first leaders creating transgender programming at DC Black Pride, she fought to represent and celebrate her lived experiences, and as a Black trans woman living with HIV, she regularly volunteered for DC’s Whiteman-Walker Health clinic and became the first recipient of its Robert Fenner Urquhart Award recognizing her service. What many people do not know is that Wanzer was an active member and ordained Deacon at Westminster Presbyterian Church, which hosted the first Transpride event in Washington, DC.
At this year’s service, she was honored by Rev. Danielle Dufoe, a Presbyterian minister who is the first Black trans woman to complete both divinity and seminary school, who called the fierce advocate and friend both “mother” and “champion.”
“We need folks like SaVanna, and we need folks like Jesus,” Dufoe said, “who says no man takes my life but I lay it down for the sake of salvation. And SaVanna is saying no man took my life. I laid it down for beloved community.”
Following a remembering of Wanzer’s life, Rev. Dr. Wallace Charles Smith recognized Bishop Cheeks, affectionately known as “Rainey,” is a native Washingtonian who founded Inner Light Ministries in Washington, DC in 1993. Before his time as an ordained minister, he was the lead coordinator for the famous DC “Clubhouse,” where the LGBTQ+ community found both social and spiritual refuge in a space that was totally drug and alcohol free. Continuing the spirit of the “Clubhouse,” he founded Us Helping Us, an organization supporting African Americans who live with HIV/AIDS that fought shame and stigma inside and outside of the LGBTQ+ community.
“Through his ministry and public witness, countless individuals found the courage to live authentically and to claim both their faith and their identity. Tonight, as we affirm that in faith, we exist, resist, and persist, we celebrate a man who has done exactly that. He has existed unapologetically. He has resisted exclusion, stigma, and injustice. He has persisted through epidemics, discrimination, silence, and struggle,” Smith said.
“And through it all, he has continued to remind us of his enduring spiritual affirmation. I see the God in you,” Rev. Smith’s voice thundered as he turned to face his mentor and friend.
Finally, Rev. McCray, a Black lesbian founding pastor of Unity Fellowship Church of Washington, DC, recognized Michael Vanzant. Vanzant served as co-pastor of Faith Temple in Washington, which has described itself as the nation’s first explicitly Black, gay Christian congregation. Vanzant took over the reins after its founder–Dr. James S. Tinney–died in 1988 of AIDS. Although he stepped away from his role as co-pastor several years after succeeding Tinney, he assumed a pastoral role again in the early 2000s and has continued fighting for LGBTQ+ inclusion in Christian and interfaith spaces ever since, serving on the organizing committee for the Pride Interfaith Service.
McCray shared that “the power that he gave to people to preach, to sing, he gave them rope to pull people at the other end toward them.”
The two living honorees — Cheeks and Vanzant — were presented with certificates expressing the community’s gratitude.
A small celebration with food was held in the parish hall after the conclusion of the service that many described as “profound and moving.” Although fewer people than normal attended the service–approximately 60 people in total, it was an important moment for many queer and trans people who are navigating their relationship with faith, especially as far right actors use religion and religious liberty to justify their anti-LGBTQ+ policies.
Amid the rise of Christian nationalism asserting a heternormative, trans-exclusionary politic, faith leaders affirmed the power of queer and trans people to claim and become empowered by faith.
Emma Cieslik is a D.C.-based museum worker and public historian.
Opinions
Democratic Socialists of America are not automatically Democrats
There’s some overlap but also major policy differences
I recognize people come to their opinion of the Democratic Socialists of America Party, a party different from the Democratic Party, usually based on their own backgrounds.
I am a progressive Democrat. A first generation American; gay, and Jewish. My parents were refugees from Hitler, my mother from Austria, my father from Germany. My father’s parents were killed in Auschwitz. I have spent a lifetime working for civil rights, women’s rights, disability rights, and since I came out at the age of 34, LGBTQ rights. I was a union member when I taught school in Harlem. I worked for one of the most progressive members of Congress, Bella S. Abzug (D-N.Y.). Bella understood how to move forward the progressive issues she worked on. She won the right for women to get their own credit cards, without their husband’s signature. She is responsible for the curb cuts we see on every corner. She was the first to break the highway trust fund for mass transit. She fought against the Vietnam War, and to impeach Nixon. She introduced the first Equality Act for the LGBTQ community. She was named a whip by Tip O’Neill in her third term in Congress, not because she gave up her fight for progressive causes, but rather because she could get things done. She understood what compromise meant, and used it to move forward the progressive issues she fought for.
So, people must understand, members of the Democratic Socialists of America (DSA), are their own party, they are not automatically part of the Democratic Party. They have their own platform, different from the Democratic Party platform in many ways. Yes, the two overlap in many areas. But the differences are clear.
DSA was founded in 1982 from a merger of the Democratic Socialist Organizing Committee (DSOC), and the New American Movement (NAM). The merger was seen as a symbolic healing of the rift between the Old Left, represented by DSOC’s social democrats and trade unionists, and the New Left, represented by NAM’s activists who emerged from the social movements of the 1960s. Initially led by Michael Harrington, the DSA continued DSOC’s strategy of “realignment” by working within the Democratic Party to push it to the left, functioning as a small advocacy group for its first three decades. After the 2016 presidential campaign of Sen. Bernie Sanders, a self-identified democratic socialist, and independent, never a Democrat, and the election of Donald Trump, the organization’s membership swelled from about 6,000 members in 2015 to 100,000 in 2026. This growth gave DSA a much younger and more activist base, which shifted its strategy toward one centered on building an independent political force. DSA’s platform calls for reforms such as a Green New Deal, single-payer healthcare, and tuition-free higher education, with a long-term aim of social ownership and democratic control of the American economy. They support defunding the police. DSA’s foreign policy is non-interventionist, strongly supporting spending cuts and footprint reductions to the U.S. military while also supporting pro-Palestinian and anti-Zionist causes. That includes the abolishment of the State of Israel from the ‘river to the sea.’
As a progressive Democrat, I support universal healthcare, and have since Hillary Clinton introduced it to Congress when she was first lady in 1993. I support expanding Medicare, ensuring the solvency of the Social Security System, and making housing, childcare, and education, affordable for everyone. As a Democrat all my life, I supported Democrats who believe in the same things.
This may enrage many, but in my opinion one of the biggest mistakes the Democratic Party made was allowing independent, Democratic Socialist Bernie Sanders, to run in their presidential primary in 2016. When they did, they shared their voter lists, and enabled Sanders to get a foothold in the party without actually being a Democrat. He ended up screwing Hillary Clinton’s chances to be president. He attacked her throughout the entire primary, and even after she secured the nomination, he kept attacking, and wouldn’t endorse her for 30 days. When he finally did, he traveled the country, in essence pretending he was campaigning for her, when in actuality he was building his own brand, and writing his book. So yes, the independent, Democratic Socialist, Bernie Sanders, who has accomplished nothing in a 40-year congressional career, carries a lot of responsibility for helping to elect Donald Trump.
Today we have Mamdani, mayor of New York, who proudly calls himself a Democratic Socialist of America. He is a charismatic leader, and helped a number of Democratic Socialist candidates in New York win their primaries. One who he endorsed for the state Senate in Queens, is Democratic Socialist Aber Kawas. She is the one who said the United States brought the 9/11 terror attacks on itself, believing we asked for and are responsible for the nearly 3,000 people killed.
I have been, and will be, attacked, for saying the DSA platform is anti-Semitic for calling for the total abolishment of the State of Israel. For asking why there is nowhere in the DSA platform a condemnation of Hezbollah or Hamas, for their platforms calling for genocide against Jews in the State of Israel, while they are comfortable calling Israeli killings in Gaza genocide. While I may debate the term, I agree what Israel is doing is horrendous. Netanyahu and his government are committing war crimes, and belong in jail. But then so are Hamas, and Hezbollah committing war crimes.
The way to stop all this is to rid the world of Netanyahu and his government, and the terrorist groups Hamas and Hezbollah. I believe the United States should stop funding Israel’s offensive weapons, while we still ensure they have an adequate defense. Iran and others need to stop funding the two terrorist groups. We need to separate people’s views of the Jewish people, from the Netanyahu government, in the same way we need to separate views of the Palestinian people from Hamas, and the Lebanese people from Hezbollah. That is the only way we will ever have peace and a Palestinian state. If we ever get there, we must ensure the billions of dollars needed to make it self-supporting. But to get to that state, the Palestinian people must also have the support of the world, including the states surrounding Israel, that have never given support to the Palestinian people. I don’t have an answer to all of this, and clearly no one else does at the moment. I believe the last time there could have been a Palestinian state, with Israel agreeing to it, was back during the Camp David accords.
But whatever happens in the Middle East, if we want people in the United States to succeed, if we want to make sure the poor and the middle class can do more than just exist, if we want to provide affordable, decent healthcare, housing, job opportunities, and childcare, etc., the Democratic Party must not think redefining themselves as the Democratic Socialists of America, and all the baggage they bring with them, is the way to go.
While DSA candidates will succeed in a few big cities, this is not where the vast majority of voters in the nation are. If there is a positive Democratic Party platform, and we allow candidates in each district to run on the particular issues they feel can win for them, we can move the vast majority of the nation to more progressive positions, and to younger Democrats. That is the direction the Democratic Party must move in if we are to take back Congress in the midterms, and then the presidency in 2028.
There are a host of candidates around the country who are running, and winning, in Democratic primaries, as Democrats, not as members of the DSA Party. In not one of the districts we need to flip to take back Congress, is being a member of the Democratic Socialists of America a positive thing.
To begin the process of taking back our country, let’s all support Democrats across the board, up and down the ballot. If we do, we win!
Peter Rosenstein is a longtime LGBTQ rights and Democratic Party activist.
