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Puerto Rico HIV/AIDS groups struggling to recover from Maria

Infection rate among the highest in U.S.



Bill's Kitchen, gay news, Washington Blade

An employee of Bill’s Kitchen, a San Juan-based organization that prepares meals for people with HIV/AIDS, puts diesel into a generator on Jan. 30, 2018. Utility crews the next day restored electricity to Bill’s Kitchen, which had had not had power since Hurricane Irma brushed Puerto Rico on Sept. 7, 2017. (Washington Blade photo by Michael K. Lavers)

SAN JUAN, Puerto Rico — It was shortly after 4 p.m. on Jan. 30 when an employee of Bill’s Kitchen, an organization that prepares meals for Puerto Ricans with HIV/AIDS, added diesel to a large generator that is on it’s roof.

The generator — which broke down the week before — has powered one of Bill’s Kitchen’s two walk-in freezers and the top two floors of its building in San Juan’s Hato Rey neighborhood since the day before Hurricane Maria devastated Puerto Rico on Sept. 20. Bill’s Kitchen Executive Director Sandy Torres insisted the Washington Blade take a picture of her employee refilling the generator. She also described him as “our star employee, handyman, mechanic, inventor.”

“If anything happens, he is there,” said Torres.

A lack of electricity is one of the multitude of problems that Bill’s Kitchen and other HIV/AIDS service providers in Puerto Rico continue to face nearly five months after Maria.

People with HIV/AIDS in the days immediately after Maria were unable to receive their medications because their clinics were closed or they could not get to them because of flooding, damaged roads or a lack of transportation. Fallen trees and other debris prevented some of them from leaving their homes.

San Juan Mayor Carmen Yulín Cruz told the Blade during an interview in D.C. last November that a clinic the San Juan Department of Health operates reopened two weeks after Maria and was able to distribute medication, food and water to patients.

The Puerto Rico Community Network for Clinical Research (PR CoNCRA), an HIV/AIDS service organization that is based near the main campus of the University of Puerto Rico in Río Piedras, reopened a week after Maria. PR CoNCRA Executive Director Rosaura López-Fontánez told the Blade on Jan. 30 that her clients were able to receive their medications because Caridad, a Puerto Rican pharmacy chain, had a space inside the organization.

Ivette González of Asamblea Permanente de Personas Infectadas y Afectadas con VIH/SIDA de Puerto Rico (APPIA), told the Blade on Feb. 3 during an interview in Old San Juan that people with HIV/AIDS who live outside of the Puerto Rican capital had a more difficult time receiving their medications after Maria.

“In San Juan we had access to medications,” said González.

González, who lives with HIV and advises Cruz on her administration’s response to the epidemic, told the Blade that one of the immediate challenges after Maria was getting people with HIV/AIDS back into treatment.

She said APPIA worked with Merck, the Puerto Rico Department of Health’s AIDS Drug Assistance Program and the local planning council that allocates Ryan White Comprehensive AIDS Resources Emergency (CARE) Act funds to San Juan and other municipalities in Puerto Rico determine which clinics were able to operate. González told the Blade radios were the only “functioning means of communication” after Maria.

“If their clinic was not available, the patient was directed and referred to where they should be,” she said. “The important thing was to re-link the patient to their health care.”

Ivette González of Asamblea Permanente de Personas Infectadas y Afectadas con VIH/SIDA de Puerto Rico (APPIA) advises San Juan Mayor Carmen Yulín Cruz on her city’s response to HIV/AIDS. (Washington Blade photo by Michael K. Lavers)

González said some APPIA clients still did not have access to their medications two months after Maria. She told the Blade a lack of electricity, telephone and Internet further complicated APPIA’s ability to communicate with them.

“All of this affected us,” she told the Blade. “As a result it made our work much more difficult.”

Hurricane damaged offices, equipment

Maria also damaged many of the facilities and equipment the HIV/AIDS service organizations used.

López-Fontánez told the Blade during a previous interview that PR CoNCRA “lost” more than $250,000 in equipment and medication.

Several feet of water flooded the first floor of the building in which PR CoNCRA’s offices are located. Maria also damaged its sewage and electrical systems.

“We are still finding things,” López-Fontánez told the Blade on Jan. 30 as Anselmo Fonseca of Pacientes de Sida Pro Política Sana, a San Juan-based HIV/AIDS service organization, sat next to her in PR CoNCRA’s conference room.

From left: Anselmo Fonseca of Pacientes de Sida Pro Política Sana and Puerto Rico Community Network for Clinical Research Executive Director Rosaura López-Fontánez in López-Fontánez’s office in Río Piedras, Puerto Rico, on Jan. 30, 2018. (Washington Blade photo by Michael K. Lavers)

Maria destroyed Bill’s Kitchen’s switchboard. The organization did not have working landlines in its San Juan offices until late last month.

Fumes from Bill’s Kitchen’s large generator forced its administrative staff to convert a second floor conference room into a makeshift office. Humidity and a lack of air conditioning made the building’s first floor offices damp.

A small generator provided electricity to the first floor until it was turned off at 4:30 p.m. It powered lights, fans that staff were using in their offices and a room with Internet access that had a small air conditioner conversion unit on the wall.

“You see the way that we are working here,” Torres told the Blade. “You can smell the humidity.”

Maria damaged the door to AIDS Healthcare Foundation’s new clinic in the municipality of Trujillo Alto that is under construction.

Hurricane Maria damaged the door of AIDS Healthcare Foundation’s new clinic that is under construction in Trujillo Alto, Puerto Rico. (Washington Blade photo by Michael K. Lavers)

The inside of the facility, which will include a pharmacy and exam rooms, was undamaged.

HIV/AIDS organizations distributed food, generators after Maria

HIV/AIDS service organizations in the San Juan metropolitan area also became staging areas for relief supplies after Maria.

AIDS Healthcare Foundation distributed generators and packages from its existing Trujillo Alto clinic that is located on the campus of a drug rehabilitation center. It also provided drinking water and other supplies to clients and local residents.

Cruz’s administration worked with AIDS Healthcare Foundation to deliver roughly 150 generators to people with HIV/AIDS after Maria. González told the Blade that APPIA, AIDS Healthcare Foundation and Cruz’s administration also provided assistance to HIV/AIDS service organizations, domestic and gender-based violence groups and children’s homes outside of San Juan.

AIDS Healthcare Foundation distributed generators from its clinic in Trujillo Alto, Puerto Rico, after Hurricane Maria. (Photo courtesy of Ariel Negron/AIDS Healthcare Foundation)

Ariel Negron, an employee at AIDS Healthcare Foundation’s Trujillo Alto clinic, noted to the Blade on Jan. 30 a woman from Caguas, a city that is roughly 20 miles south of San Juan, is among those who received supplies from the organization after Maria. Negron said the woman had not had electricity or water since Hurricane Irma brushed Puerto Rico on Sept. 7.

“She was so amazed that there was water here,” said Negron.

Bill’s Kitchen did not have electricity from Sept. 7 until it was restored on Jan. 31. The organization in the weeks and months after Maria prepared meals for PR CoNCRA clients and staff, doctors who were volunteering in the municipality of Toa Alta, which is roughly 15 miles southwest of San Juan, and elderly people who could not leave their apartments in high-rise buildings near their San Juan offices because of the lack of power.

Bill’s Kitchen also delivered portable gas stoves to their clients and replaced mattresses and beds that Maria damaged.

López-Fontánez said a woman who lives next to PR CoNCRA’s offices “lost everything” during Maria. She told the Blade she gave her an old couch that she had in her home, while another PR CoNCRA staffer brought her a mattress.

“We all gathered,” said López-Fontánez.

Island was ‘in a disaster for a long, long time’ before Maria

Puerto Rico has one of the highest HIV/AIDS infection rates in the U.S. People with HIV/AIDS were vulnerable before Maria because of a combination of factors that include a lack of resources to fight the epidemic and Puerto Rico’s debt crisis.

The U.S. commonwealth’s economy had been in recession for more than a decade before Maria. Puerto Rico’s power grid had also fallen into disrepair.

“People blame Maria for all the disaster,” López-Fontánez told the Blade. “Yes, it caused a lot of disaster, but this country as in a disaster for a long, long time. What Maria did it just said . . . now you can see it better.”

Fonseca added Maria “pulled back the veil.”

González told the Blade that Puerto Ricans with HIV/AIDS “did not have access to medications” in 2006, 2017 and 2012. She also noted advocates and service providers “practically had to protest in the street asking for our medications.”

González said the situation for people with HIV/AIDS in San Juan has improved since Cruz took office in 2013. González nevertheless told the Blade the Puerto Rican government “thinks the problem has been resolved because there are medications.”

“We continue to stereotype and stigmatize HIV with the gay community,” she added. “It is one of the challenges that we have in Puerto Rico.”

Ponce Mayor María “Mayita” Meléndez on Feb. 2 noted to the Blade that she has urged the federal government to restore Ryan White CARE Act funds her city used to provide medications and other care to people with HIV/AIDS. Torres and other service providers with whom the Blade spoke said Maria has made navigating local and federal bureaucracies even more challenging.

“Puerto Rico is a very polarized country,” said González. “Sometimes your party affiliation dictates your objectivity, but the reality is that if you are looking at the situation objectively, the federal government has been very slow and what little has been done has been very limited in helping Puerto Ricans in need.”

‘People have lost it’

Cruz and many of the HIV/AIDS service providers with whom the Blade spoke remain highly critical of how the federal and Puerto Rican governments have responded to Maria. The slow response continues to take a toll on Puerto Ricans with HIV/AIDS and those who provide services to them.

A utility pole rests precariously on a power line in Vieques, Puerto Rico, on Jan. 31, 2018. Damaged power lines and piles of debris are common sights on the island and throughout Puerto Rico in the wake of Hurricane Maria. (Washington Blade photo by Michael K. Lavers)

PR CoNCRA Medical Director Vivian Tamayo told the Blade on Jan. 30 that an IV specialist who worked at the organization for 13 years has left. Tamayo said roughly 40 of PR CoNCRA’s clients have moved to the U.S. mainland since Maria.

“You have to remember that this was also happening before the hurricanes,” added Manuel Quiñones, a PR CoNCRA case manager who shares an office with Tamayo that had several feet of water in it after Maria. “This is like the last push to go to the states.”

The Federal Emergency Management Agency denied Fonseca’s claim to fix the roof of his house near Trujillo Alto because the woman with whom he filled out the application said it was not his primary residence. López-Fontánez said the more than $120,000 in private donations that PR CoNCRA has received since Maria has allowed her organization to continue to operate.

Torres told the Blade she used private funding to hire a psychologist who provides support to Bill’s Kitchen’s clients and staff.

PR CoNCRA’s electricity was restored two weeks after Maria because it is near a hospital, but López-Fontánez said it “goes and comes.” She and Torres told the Blade that several of PR CoNCRA and Bill’s Kitchen’s clients and employees still have no electricity or water.

“That’s so difficult,” said López-Fontánez. “What it has done is that people have lost it.”

González told the Blade the electricity at her home in San Juan’s Puerto Nuevo neighborhood was restored less than a month ago.

The D.C.-based Food and Friends bought Bill’s Kitchen a new generator to replace the old one. Torres told the Blade that she plans to pick up the new generator on Thursday and hopes it will be installed this week.

A fire at a substation on Sunday caused a blackout that impacted Bill’s Kitchen, PR CoNCRA and large parts of the San Juan metropolitan area and northeastern Puerto Rico. Power was restored to Bill’s Kitchen and PR CoNCRA a few hours later.

“The country is in a horrible crisis,” González told the Blade. “We had a disaster, a catastrophe and there are still people who don’t understand the level of attention this requires.”

Editor’s note: Puerto Rico’s HIV/AIDS service organizations continue to seek donations that will allow them to serve their clients and repair damage they suffered during Maria. Information on how to contribute to them is below.

AIDS Healthcare Foundation

Bill’s Kitchen

Pacientes de Sida Pro Política Sana


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Top 10 Blade news stories by web traffic

COVID breakthroughs, Equality Act, and anti-trans attacks



Elliot Page created excitement by posting his first photo in swim trunks back in May.

Each year our staff gathers in late December to review the highest trafficked stories of the year and there’s more than a little bit of competitive spirit as we review the results. Here are the top 10 stories by web traffic at  HYPERLINK “” for 2021.

#10: Mark Glaze, gun reform advocate, dies at 51

The sad, tragic story of Glaze’s death captivated readers in November. 

#9: COVID breakthrough infections strike summer tourists visiting Provincetown

This one went viral in July after a COVID outbreak was blamed on gay tourists.

#8: Thank you, Kordell Stewart, for thoughtful response to ‘the rumor’

This opinion piece thanked the former NFL quarterback for writing a personal essay addressing gay rumors. 

#7: Elliot Page tweets; trans bb’s first swim trunks #transjoy #transisbeautiful

The actor created excitement by posting his first photo in swim trunks back in May.

#6: Romney declares opposition to LGBTQ Equality Act

Mitt Romney disappointed activists with his announcement; the Equality Act passed the House but never saw a vote in the Senate.

#5: White House warns state legislatures that passing anti-trans bills is illegal

The year 2021 saw a disturbing trend of GOP-led legislatures attacking trans people.

#4: Lincoln Project’s avowed ignorance of Weaver texts undercut by leaked communications

The Lincoln Project’s leaders, amid a scandal of co-founder John Weaver soliciting sexual favors from young men, have asserted they were unaware of his indiscretions until the Blade obtained electronic communications that called that claim into question.

#3: FOX 5’s McCoy suspended over offensive Tweet

Blake McCoy tweeted that obese people shouldn’t get priority for the COVID vaccine. 

#2: Transgender USAF veteran trapped in Taliban takeover of Kabul

Among the Americans trapped in the suburban areas of Kabul under Taliban control was a transgender government contractor for the U.S. State Department and former U.S. Air Force Sergeant. She was later safely evacuated.

#1: Amid coup chaos, Trump quietly erases LGBTQ protections in adoption, health services

And our most popular story of 2021 was about the Trump administration nixing regulations barring federal grantees in the Department of Health & Human Services from discriminating against LGBTQ people, including in adoption services.

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CDC still falling short on LGBTQ data collection for COVID patients: expert



COVID-19 vaccine, gay news, Washington Blade
The CDC is still not issuing guidance to states on LGBTQ data collection among COVID patients.

Despite requests since the start of the COVID pandemic for the U.S. government to enhance data collection for patients who are LGBTQ, the Centers for Disease Control & Prevention is still falling short on issuing nationwide guidance to states on the issue, a leading expert health on the issue told the Blade.

With a renewed focus on COVID infections reaching new heights just before the start of the holidays amid the emergence of Omicron, the absence of any LGBTQ data collection — now across both the Trump and Biden administrations — remains a sore point for health experts who say that information could be used for public outreach.

Sean Cahill, director of Health Policy Research at the Boston-based Fenway Institute, said Wednesday major federal entities and hospitals have been collecting data on whether patients identify as LGBTQ for years — such as the National Health & Nutrition Examination Survey, which has been collecting sexual orientation data since the 1990s — but the CDC hasn’t duplicated that effort for COVID even though the pandemic has been underway for two years.

“It’s not like this is a new idea,” Cahill said. “But for some reason, the pandemic hit, and all of a sudden, we realize how little systematic data we were collecting in our health system. And it’s a real problem because we’re two years into the pandemic almost, and we still don’t know how it’s affecting this vulnerable population that experiences health disparities in other areas.”

The Blade was among the first outlets to report on the lack of efforts by the states to collect data on whether a COVID patient identifies as LGBTQ, reporting in April 2020 on the absence of data even in places with influential LGBTQ communities. The CDC hasn’t responded to the Blade’s requests for nearly two years on why it doesn’t instruct states to collect this data, nor did it respond this week to a request for comment on this article.

Cahill, who has published articles in the American Journal of Public Health on the importance of LGBTQ data collection and reporting in COVID-19 testing, care, and vaccination — said he’s been making the case to the CDC to issue guidance to states on whether COVID patients identify as LGBTQ since June 2020.

Among those efforts, he said, were to include two comments he delivered to the Biden COVID-19 Health Equity Task Force in spring 2021, a letter a coalition of groups sent to the Association of State & Territorial Health Officers asking for states to collect and report SOGI in COVID in December 2020 as well as letters to HHS leadership and congressional leadership in spring and summer 2020 asking for them to take steps to encourage or require SOGI data collection in COVID.

Asked what CDC officials had to say in response when he brought this issue to their attention, Cahill said, “They listen, but they don’t really tell me anything.”

“We’ve been making that case, and to date, as of December 22, 2021, they have not issued guidance, they have not changed the case report form. I hope that they’re in the process of doing that, and maybe we’ll be pleasantly surprised in January, and they’ll come up with something…I really hope that’s true, but right now they’re not doing anything to promote SOGI data collection and reporting in surveillance data.”

Cahill, in an email to the Blade after the initial publication of this article, clarified CDC has indicated guidance on LGBTQ data collection for COVID patients may come in the near future.

“HHS leaders told us this fall that CDC is working on an initiative to expand SOGI data collection,” Cahill said. “We are hopeful that we will see guidance early in 2022. Key people at CDC, including Director Walensky, understand the importance of SOGI data collection given their long history of working on HIV prevention.”

In other issues related to LGBTQ data collection, there has been a history of states resisting federal mandates. The Trump administration, for example, rescinded guidance calling on states to collect information on whether foster youth identified as LGBTQ after complaints from states on the Obama-era process, much to the consternation of LGBTQ advocates who said the data was helpful.

The White House COVID-19 Health Equity Task Force has at least recognized the potential for enhancing LGBTQ data collection efforts. Last month, it published an implementation plan, calling for “an equity-centered approach to data collection, including sufficient funding to collect data for groups that are often left out of data collection (e.g….LGBTQIA+ people).”

The plan also calls for “fund[ing] activities to improve data collection…including tracking COVID-19 related outcomes for people of color and other underserved populations,” and specifically calls for the collection of LGBTQ data.

The importance of collecting LGBTQ data, Cahill said, is based on its potential use in public outreach, including efforts to recognize disparities in health population and to create messaging for outreach, including for populations that may be reluctant to take the vaccine.

“If we see a disparity, we can say: Why is that?” Cahill said. “We could do focus groups of the population — try to understand and then what kind of messages would reassure you and make you feel comfortable getting a vaccine, and we could push those messages out through public education campaigns led by state local health departments led by the federal government.”

The LGBTQ data, Cahill said, could be broken down further to determine if racial and ethnic disparities exist within the LGBTQ population, or whether LGBTQ people are likely to suffer from the disease in certain regions, such as the South.

“We have data showing that lesbian or bisexual women, and transgender people are less likely to be in preventive regular routine care for their health,” Cahill said. “And so if that’s true, there’s a good chance that they’re less likely to know where to get a vaccine, to have a medical professional they trust to talk to about it today.”

Among the leaders who are supportive, Cahill said, is Rachel Levine, assistant secretary for health and the first openly transgender person confirmed by the U.S. Senate for a presidential appointment. Cahill said he raised the issue with her along with other officials at the Department of Health & Human Services three times in the last year.

In her previous role as Pennsylvania secretary of health, Levine led the way and made her state the first in the nation to set up an LGBTQ data collection system for COVID patients.

“So she definitely gets it, and I know she’s supportive of it, but we really need the CDC to act,” Cahill said.

Although the federal government has remained intransigent in taking action, Cahill said the situation has improved among states and counted five states — California, Pennsylvania, Rhode Island, Nevada and Oregon — in addition to D.C. as among those that have elected to collect data on sexual orientation and gender identity of COVID patients.

However, Cahill said even those data collection efforts are falling short because those jurisdictions have merely been public about collecting the data, but haven’t reported back anything yet.

“Only California has reported data publicly, and the data that they’re reporting is really just the completeness of the data,” Cahill said. “They’re not reporting the data itself…And they’re also just asking people who tests positive. So, if somebody says positive COVID in California, a contact tracer follows up with that individual and asks them a battery of questions, and among the questions that are asked are SOGI questions.”

As a result of these efforts, Cahill said, California has data on the LGBTQ status of COVID patients, but the data is overwhelmingly more complete for the gender identity of these patients rather than their sexual orientation. As of May 2021, California reported that they had sexual orientation data for 9.5 percent of individuals who had died from COVID and 16 percent of people who tested positive, but for gender identity, the data were 99.5 percent.

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Equality Act, contorted as a danger by anti-LGBTQ forces, is all but dead

No political willpower to force vote or reach a compromise



Despite having President Biden in the White House and Democratic majorities in both chambers of Congress, efforts to update federal civil rights laws to strengthen the prohibition on discrimination against LGBTQ people by passing the Equality Act are all but dead as opponents of the measure have contorted it beyond recognition.

Political willpower is lacking to find a compromise that would be acceptable to enough Republican senators to end a filibuster on the bill — a tall order in any event — nor is there the willpower to force a vote on the Equality Act as opponents stoke fears about transgender kids in sports and not even unanimity in the Democratic caucus in favor of the bill is present, stakeholders who spoke to the Blade on condition of anonymity said.

In fact, there are no imminent plans to hold a vote on the legislation even though Pride month is days away, which would be an opportune time for Congress to demonstrate solidarity with the LGBTQ community by holding a vote on the legislation.

If the Equality Act were to come up for a Senate vote in the next month, it would not have the support to pass. Continued assurances that bipartisan talks are continuing on the legislation have yielded no evidence of additional support, let alone the 10 Republicans needed to end a filibuster.

“I haven’t really heard an update either way, which is usually not good,” one Democratic insider said. “My understanding is that our side was entrenched in a no-compromise mindset and with [Sen. Joe] Manchin saying he didn’t like the bill, it doomed it this Congress. And the bullying of hundreds of trans athletes derailed our message and our arguments of why it was broadly needed.”

The only thing keeping the final nail from being hammered into the Equality Act’s coffin is the unwillingness of its supporters to admit defeat. Other stakeholders who spoke to the Blade continued to assert bipartisan talks are ongoing, strongly pushing back on any conclusion the legislation is dead.

Alphonso David, president of the Human Rights Campaign, said the Equality Act is “alive and well,” citing widespread public support he said includes “the majority of Democrats, Republicans and independents and a growing number of communities across the country engaging and mobilizing every day in support of the legislation.”

“They understand the urgent need to pass this bill and stand up for LGBTQ people across our country,” David added. “As we engage with elected officials, we have confidence that Congress will listen to the voices of their constituents and continue fighting for the Equality Act through the lengthy legislative process.  We will also continue our unprecedented campaign to grow the already-high public support for a popular bill that will save lives and make our country fairer and more equal for all. We will not stop until the Equality Act is passed.”

Sen. Jeff Merkley (D-Ore.), chief sponsor of the Equality Act in the Senate, also signaled through a spokesperson work continues on the legislation, refusing to give up on expectations the legislation would soon become law.

“Sen. Merkley and his staff are in active discussions with colleagues on both sides of the aisle to try to get this done,” McLennan said. “We definitely see it as a key priority that we expect to become law.”

A spokesperson Senate Majority Leader Charles Schumer (D-N.Y.), who had promised to force a vote on the Equality Act in the Senate on the day the U.S. House approved it earlier this year, pointed to a March 25 “Dear Colleague” letter in which he identified the Equality Act as one of several bills he’d bring up for a vote.

Despite any assurances, the hold up on the bill is apparent. Although the U.S. House approved the legislation earlier this year, the Senate Judiciary Committee hasn’t even reported out the bill yet to the floor in the aftermath of the first-ever Senate hearing on the bill in March. A Senate Judiciary Committee Democratic aide, however, disputed that inaction as evidence the Equality Act is dead in its tracks: “Bipartisan efforts on a path forward are ongoing.”

Democrats are quick to blame Republicans for inaction on the Equality Act, but with Manchin withholding his support for the legislation they can’t even count on the entirety of their caucus to vote “yes” if it came to the floor. Progressives continue to advocate an end to the filibuster to advance legislation Biden has promised as part of his agenda, but even if they were to overcome headwinds and dismantle the institution needing 60 votes to advance legislation, the Equality Act would likely not have majority support to win approval in the Senate with a 50-50 party split.

The office of Manchin, who has previously said he couldn’t support the Equality Act over concerns about public schools having to implement the transgender protections applying to sports and bathrooms, hasn’t responded to multiple requests this year from the Blade on the legislation and didn’t respond to a request to comment for this article.

Meanwhile, Sen. Susan Collins (R-Maine), who declined to co-sponsor the Equality Act this year after having signed onto the legislation in the previous Congress, insisted through a spokesperson talks are still happening across the aisle despite the appearances the legislation is dead.

“There continues to be bipartisan support for passing a law that protects the civil rights of Americans, regardless of their sexual orientation or gender identity,” said Annie Clark, a Collins spokesperson. “The Equality Act was a starting point for negotiations, and in its current form, it cannot pass. That’s why there are ongoing discussions among senators and stakeholders about a path forward.”

Let’s face it: Anti-LGBTQ forces have railroaded the debate by making the Equality Act about an end to women’s sports by allowing transgender athletes and danger to women in sex-segregated places like bathrooms and prisons. That doesn’t even get into resolving the issue on drawing the line between civil rights for LGBTQ people and religious freedom, which continues to be litigated in the courts as the U.S. Supreme Court is expected any day now to issue a ruling in Fulton v. City of Philadelphia to determine if foster care agencies can reject same-sex couples over religious objections.

For transgender Americans, who continue to report discrimination and violence at high rates, the absence of the Equality Act may be most keenly felt.

Mara Keisling, outgoing executive director of the National Center for Transgender Equality, disputed any notion the Equality Act is dead and insisted the legislation is “very much alive.”

“We remain optimistic despite misinformation from the opposition,” Keisling said. “NCTE and our movement partners are still working fruitfully on the Equality Act with senators. In fact, we are gaining momentum with all the field organizing we’re doing, like phone banking constituents to call their senators. Legislating takes time. Nothing ever gets through Congress quickly. We expect to see a vote during this Congress, and we are hopeful we can win.”

But one Democratic source said calls to members of Congress against the Equality Act, apparently coordinated by groups like the Heritage Foundation, have has outnumbered calls in favor of it by a substantial margin, with a particular emphasis on Manchin.

No stories are present in the media about same-sex couples being kicked out of a restaurant for holding hands or transgender people for using the restroom consistent with their gender identity, which would be perfectly legal in 25 states thanks to the patchwork of civil rights laws throughout the United States and inadequate protections under federal law.

Tyler Deaton, senior adviser for the American Unity Fund, which has bolstered the Republican-led Fairness for All Act as an alternative to the Equality Act, said he continues to believe the votes are present for a compromise form of the bill.

“I know for a fact there is a supermajority level of support in the Senate for a version of the Equality Act that is fully protective of both LGBTQ civil rights and religious freedom,” Deaton said. “There is interest on both sides of the aisle in getting something done this Congress.”

Deaton, however, didn’t respond to a follow-up inquiry on what evidence exists of agreeing on this compromise.

Biden has already missed the goal he campaigned on in the 2020 election to sign the Equality Act into law within his first 100 days in office. Although Biden renewed his call to pass the legislation in his speech to Congress last month, as things stand now that appears to be a goal he won’t realize for the remainder of this Congress.

Nor has the Biden administration made the Equality Act an issue for top officials within the administration as it pushes for an infrastructure package as a top priority. One Democratic insider said Louisa Terrell, legislative affairs director for the White House, delegated work on the Equality Act to a deputy as opposed to handling it herself.

To be sure, Biden has demonstrated support for the LGBTQ community through executive action at an unprecedented rate, signing an executive order on day one ordering federal agencies to implement the U.S. Supreme Court’s decision last year in Bostock v. Clayton County to the fullest extent possible and dismantling former President Trump’s transgender military ban. Biden also made historic LGBTQ appointments with the confirmation of Transportation Secretary Pete Buttigieg and Rachel Levine as assistant secretary of health.

A White House spokesperson insisted Biden’s team across the board remains committed to the Equality Act, pointing to his remarks to Congress.

“President Biden has urged Congress to get the Equality Act to his desk so he can sign it into law and provide long overdue civil rights protections to LGBTQ+ Americans, and he remains committed to seeing this legislation passed as quickly as possible,” the spokesperson said. “The White House and its entire legislative team remains in ongoing and close coordination with organizations, leaders, members of Congress, including the Equality Caucus, and staff to ensure we are working across the aisle to push the Equality Act forward.”

But at least in the near-term, that progress will fall short of fulfilling the promise of updating federal civil rights law with the Equality Act, which will mean LGBTQ people won’t be able to rely on those protections when faced with discrimination based on sexual orientation or gender identity.

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